IGenics (sp?) testing

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3488
   Posted 11/17/2009 9:04 AM (GMT -6)   
My NP recommended to do the Igenics test for Lyme's with co-infections, is this a good test to go by? Then I'm to take it to a Lyme's specialist. I told him that some of you said the band 23KD  and 41KD could mean a positive for the bactiera Bartonella, I had to tell him, he didn't know and so he changed his mind and said yes it could mean Lyme's. Do you all still feel 23KD and 41KD means something with Lyme's?
 
Anways, this Igenics test cost $660 and I guess it's not covered by medical insurance. He said my chances of having Lyme's is 60% percent, ....he doesn't really know. I feel he's guessing at this. I do appreciate the fact he says he doesn't know how to treat Lyme's though and referred me to a specialist, which by the way I already have an appt with in December.
 
 Do you have to fast for it? I forgot to ask the nurse.
 
Thank you again for all the help (((hugs))), more info I have to take with me to the specialist the better.
Also he said I have two bacteria, Chlamydophila Pneumoniae is one of them, it says  Past Infection on my test results any comments on this or is this a common bacteria?
 
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/17/2009 1:17 PM (GMT -6)   
therearemiraclels,

I was told to go to IgenX for testing because they do the most accurate processing. You can get the blood drawn elsewhere and sent to IgenX if that would be less expensive. IgenX did not take insurance, but I submitted their lab form to my insurance company and got reimbursed for a little of the expense. When I was tested for coinfections, the LLMD told me I could get the bartonella testing done at a local lab to save money, but he wanted the babesia test processed at IgenX (his office drew the blood) because if the initial test indicates a possible positive they follow up with a FISH test that looks for babesia RNA in our blood, and he said that is more accurate. I do not know anything about the other bacteria you mentioned; sorry I couldn't be more help.

Rose
I have Lyme; it doesn't have me.


mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 11/17/2009 2:13 PM (GMT -6)   
Why dont they make a home lyme test? like a pregnancy test? +or---?
 I am a Zebra


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/17/2009 4:08 PM (GMT -6)   
therearemiracles,

Igenex is the best lab to test for Lyme and co-infections. You usually have to pay out of pocket but you can put in a claim to your insurance after you get the receipt and information to see if they will pay for it.

Here is the Igenex information. I don't think you have to fast but you can call them and ask.

Igenex Information:

You can order the Western Blot and Co-infections tests through Igenex. If you go to their site, there's information there that list what tests to order.

www.Igenex.com

Here is their contact information:

IGeneX, Inc.
795 San Antonio Rd
Palo Alto, CA 94303

800.832.3200
650.424.1191
650.424.1196 Fax
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/17/2009 4:12 PM (GMT -6)   
Band 23 is BB specific. I remember you posting that you only had 23 on IGM right? I'm nit sure how a Lyme doctor will interpret that because it usually comes with 41 too BUT that doesn't really mean much. That's why you need to see a Lyme specialist.

Here is a breakdown of the WB bands:

Western Blot Bands description:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 11/18/2009 11:52 AM (GMT -6)   
Igenics was able to identify that I had Ehrlichiosis when the local lab did not. I understand some Infectious Disease Doctors do not think highly of Igenics, I haven't heard a reason why. For me the price was worth it because I was then given the right treatment.

As I understand it, Chlamydia is very common and even more common among Lyme sufferers. The source I read said that it is not clear whether having one makes you more susceptible to the other.

Hope you find some answers
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