I Am Adicted To My PICC Line

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pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 11/19/2009 8:45 AM (GMT -6)   
Okay, this is maybe for those of you out there who are thinking "I will NEVER do IV therapy." I was one of you. I was certain that I would get better quickly with oral antibiotics and herbs and supplements to detox and nourish my liver. I did acupuncture and inspirational tapes, and restorative yoga. I had conquered Lyme in the past, quite nicely with alternative therapies. I vowed that I would never have a PICC line in my arm.

Well one day, 9 months into oral antibiotics and holistic therapies (for Lyme, Babs and Bart), my best Lymie friend (an internet chick who has helped me navigate this illness more than any doctor/healer before), basically yelled at me, "P, this is not a life! You are living between the hours of 10 am and 2 pm."

She was right. It was that message that made me seek another opinion and get started on IV therapy. Was it hard? Yes. Was it worth it? Yes. Is it working? Yes. Maybe it is working too well.

I am seriously addicted to my IV. I enjoy the fact that when I infuse I can NOT do anything else and after it is done, if I am sleepy, people understand. I enjoyed being treated as a patient, instead of a malingerer, who couldn't seem to get better. I enjoy the sympathetic, kind looks I get from the airport screeners when they ask me to roll down the sock on my arm. They (the airport people) let me bring extra size liquids and always wish me love and good health. We Lymies don't get much of that.

I enjoy doing Lactated Ringer infusions early in the morning. They make me feel better and give me an excuse to sleep in, or if I do it later, an excuse to watch trashy television.

Can I do all of this without my IV? After my IV is out will I still get loving stares and some recognition that what we go through is hard? I don't know. All that I know is that for the first time (for over one year), I can add numbers, follow recipes, shopping lists and write medical blogs. I feel like retuning phone calls, having sex, and eating food. I can tolerate loud laughing (better) and don't get overwhelmed and teary when things go wrong. Keep posted as sooner or later it will be coming out!
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 11/19/2009 12:06 PM (GMT -6)   
pcpc,

Thank you for your honesty. Wow! It seems very understandable that you would feel this way, and if it is working, that you would fear the possibility of going back to how things were. Also only you know how much you are able to handle, and if this is giving you the rest you need to heal, you would not want to give it up until you are ready to move back into things. It is also a good time to assess what you want to really be spending your time on when you do feel well again.

I was only on IV for 1 month and hope it was enough. I take herbs and supplements to keep my immune system up, and thanks to your blog about the H1N1 vaccine, I did get it on Monday. The only thing available was the nasal spray, so I tried it and my body handled it! I was against the idea at all until reading your blog, and right now my immune system is strong, so felt that it was the right thing to do. Thank you also for your post about hormones, which is what led me to your blog about the vaccine. That is the only thing that I seem to still have issues with. Still looking for the right balance there.

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 11/21/2009 11:27 PM (GMT -6)   
I am experiencing the same thing!~! Wow

Can you share your pulsing technique with us again. I know you did
somewhere but I can not find it right now.

THANKS Much

Glad things are getting better.

I wish I had done IV so much sooner. I have a port and I am liking it too
for all the reasons you posted but mostly because I feel the medicine doing
its work. For the FIRST TIME>

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/22/2009 5:30 AM (GMT -6)   
I have so many PICCs, periphreals, etc.... that my family just says "eeewww, cover it up" - lol! And, "What are those bags doing in the refridgerator!"
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Flagyl, Hydrocodone, Glutiathione injections, Vitamin B compound, Invanz IV, LD theme song: http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
 


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/22/2009 3:11 PM (GMT -6)   
pcpc - great to hear how well you are doing!!! Is it within forum rules for you to include your blog address at the bottom of your posts? I copied it down when you included it in a post, but I've got so many pages of notes at this point that I can't find anything anymore.

Question in general - I'm wondering if IV treatments will be covered by insurance. The only person I know who is getting them was denied coverage by her insurance company even after over a year on oral meds without much improvement. That leaves me not holding out much hope that I will be covered, especially now at the beginning of my treatment. I'm trying to figure out if her experience was unusual.

Rose
I have Lyme; it doesn't have me.


KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 11/25/2009 4:32 PM (GMT -6)   
Hi There.
Would you give us an update on your progress. Your seeing Dr J right?
I was wondering and trying to figure out why he does M W F dosing. ANd would M T W be good too?

Hope all is well..
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