Did my Igenics testing yesteday $1,000 worth!

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3482
   Posted 11/24/2009 10:23 AM (GMT -6)   
I don't know if my NP knew what to draw for, so he drew for more extensive Western Blot Test for Lyme's and another test that has the FISH and co infection test in it. Of course I had to pay out of pocket, hopefully my insurance will reimbuse me. I hope these test will show more information or different info from my other WB test that showed two bands reactive 23, and 41 and a past infection of chlamydophila pneumoniae. My test says if you have 5 of more bands of the 10 specific bands are considered positive for the anitbody to B. Burgdorferi, but I only have one and the other band falls under Lyme Disease AB (IGM)  and it says under this catorgory, if you have 2 or more of the specific 3 bands are considered positive for antibody B. Bugdorferi. so I only have one of each, I can't wait for a LLMD to tell me what's going on and for my test results for Igenics to come in. What's the turn around time does anyone know? My symptoms are all gut related and today was a terrible, pooped my pants while driving. You can laugh b/c I do, but it's the worst feeling of hopelessness ever! The pain is so intense and terrible. I read a good article someone posted her about bells palsy of the gut or Lyme gut relation. Thank you for whoever posted that, I'm not crazy, I know there're more than ulcertivie colitis going on. My GI just want to lump me in that group and show anti inflammatories down my mouth or immunosurppressants. I need answers and I need help!
GOD's love to us all. Happy Thanksgiving.
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 11/24/2009 1:18 PM (GMT -6)   
Hi miracles,
You should recieve your IgeneX results back in about five days. Most of my symptoms are also GI related. I had the same reactive bands as you on my IgeneX test. I was also positive for Ehrlichiosis on the co-infection test. I am still trying to find the right combination of drug and foods to heal my GI tract. Sorry to hear about your accident driving......not funny, but I admit I chuckled :) Best wishes to you

http://www.ilads.org/lyme_research/lyme_publications14.html

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3482
   Posted 11/24/2009 1:23 PM (GMT -6)   
I know if I stay away from yeast, (that's reactive for me as well as onion, chocolate, rice, beef and milk) my gut is ok. On day 3 when I start to feel good, I cram in sugar or bread b/c it's been so long. I tried Spelt bread, that kills my gut bad! I can't have rice. so millet maybe for me, but there's no health food store for over 50 miles from me. It's terrible. I also have a candida, yeast infection, I'm guessing in my gut. It showed up in my stool test. Good I will start asking for my results the end of next week. I go to the Lymes doc in two weeks, we'll see what he says. thanks, Linda
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/24/2009 2:16 PM (GMT -6)   
therearemiracles,

Yay! I'm glad you finally got everything done. My test results took about two weeks to come in so i just wanted you to know in case it takes longer. You have a lot of bloodwork to decifer so it may take longer for your doctor to get back to you.

Make sure you get copies of everything so that you can bring it with you to your LLMD's appointment. Also, you may want to bring recent bloodwork and other tests that were done like MRI's, etc. This will give your LLMD a better picture. Bring all of your medications and supplements that you take too or just list them all on a paper. Write down everything you want to ask your doctor because you may forget once you're in with him. If you can, ask if you can record your first visit with him. There is a lot of information to remember and having it recorded helps a lot.

Good luck with everything!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3482
   Posted 11/24/2009 2:18 PM (GMT -6)   
Thank you soo much for the support. I pray that it say one way or another from all these test if I have it or not. He'll be my 16th doctor in almost 5 years and over $30,000 in costs to get an answer.
 
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 11/24/2009 6:21 PM (GMT -6)   
Hi therearemiracles,
 
Wow, I also went doctor hopping for 5 years looking to get diagnosed and also spent over $1,000 for my IgeneX tests... I think it took about 2 weeks to get my results back because they tested me for most everything..   During those 5 years my blood was sent to Labcorp, Quest, and other labs and they were always negative so I did much questioning as to why until I found out that these "run of the mill labs" use rats blood instead of human blood and not the strains that humans have but rat strains, uggggg!  That is why IgeneX is the most accurate lab we have. 
 
I remember how impatient I was waiting for my test results!    Just hang in there and let us know what they say, okay?
 
You will find your answers!
Denise


It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 

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