endometriosis questions about natural treatments:)

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alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 11/27/2009 2:33 PM (GMT -6)   
Hey everyone! I have some questions for anyone who knows about endometriosis. Aside from the medical "fixes" does anyone know of herbal treatments? And, I hear there are specific massages for this particular disease. Anyone ever had one, and did it work? Or, what kind of place would do these massages?
Actually, any help whatsoever would be helpful.
Thank you!

Post Edited (alone&scared) : 11/28/2009 10:13:18 PM (GMT-7)


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/29/2009 3:48 PM (GMT -6)   
A&S,

I'm interested to see what kind of responses you get to this, as endometriosis is also an issue for me. The only thing I'm doing right now, that probably you've already tried, is to have my hormone level monitored and to make sure estrogen and progesterone levels are balanced. I use natural plant-derived hormones, not prescription animal products.

Rose
I have Lyme; it doesn't have me.


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 11/30/2009 12:55 AM (GMT -6)   
I am supposed to start getting the DepoLupron shot (sp?). I really don't want to though. However, I can't continue to live with the problems I have with my cycles and moods, etc. I am totally out of whack. I would like to try something natural first. Hopefully, someone will have some answers:)

JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 11/30/2009 8:28 AM (GMT -6)   
A&S - I think I read somewhere in that link I sent you that yeast overgrowth may play a role in endometriosis. I'll try to find it.
“You must be the change you wish to see in the world.” -Gandhi

http://lymeactually.blogspot.com/


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 11/30/2009 9:38 AM (GMT -6)   
Sorry you aren't getting responses in the way of a natural therapy for endometriosis. I've been on Lupron three times, had three laproscopies -- they did help. I wanted to avoid having a hysterectomy and was waiting for natural menopause which came along as soon as I began treatment for Lyme Disease. Hope you get some relief soon.

alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 12/1/2009 1:49 AM (GMT -6)   
Thank you everyone. I know this isn't an endometriosis forum, so it kinda isn't in the right place to begin with:) But, I appreciate your responses. I have had 1 laproscopy and I felt better the very next day. But, they irritated my bladder while in there, so it felt like I had a UTI for almost 2 months. Now I can actually feel where it is growing back and it hurts. I really would just deal with the pain at this point. What's one more thing that hurts? But, my hormones are out of control and I can't stand it. Dangerously out of control.
When you had the depo lupron..did you gain weight? And did you have horrible side effects at all? I am just curious, because I am really nervous. Of course, my health insurance company still hasn't approved it, so I may not have to worry about it anyway. Anyway, this post will bump this topic up. Maybe we can all get some natural relief!
Oh, and thanks Jenn! It would be great if that improved too. I can't wait until I get my shipment of all that stuff to start it. But, I may have to wait until after December 10th. I am hostessing a table at my church's Christmas dinner and I can't miss it. I cannot stand detoxing and that is extreme detoxing, so I am sure I will be miserable...
God Bless you all! You are all so helpful and and sweet:)

JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 12/1/2009 6:54 AM (GMT -6)   
It will actually make you feel alot better after the 1st week though. I also forgot to tell you when you do any cleanse you have to drink a ton of water. And i do mean a ton! It helps flush all the toxins out. I was only sick the first 3 days, and once I had the die off on the 3rd day, I felt 100% on the 4th day. So if I were you I'd do it before your Christmas dinner. Unless of course at the dinner you want to eat sugar and carbs.. LOL I found that when I didn't stay away from those things while doing the cleanse it made my stomach upset... and had to use the bathroom. Makes ya stick to the good stuff!
“You must be the change you wish to see in the world.” -Gandhi

http://lymeactually.blogspot.com/


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 12/1/2009 6:19 PM (GMT -6)   
Please do a lot of research before you consent to taking Lupron. I know some people that had terrible side effects that never went away. They ended up with chronic pain, bone loss, even tooth loss. Lupron does not cure endo and does not even always reduce pain. My doc does not use Lupron in his practice because he says you are just replacing one set of awful symptoms for another and you are doing nothing to treat the underlying disease. If your hormones are out of control now, I'm not sure how Lupron will help. You'll probably have hot flashes, mood swings, weight gain, headaches, and other lovely symptoms.

I have found that changing my diet has helped my endo pain and evened out my hormones, not a lot but enough to notice. I've reduced my carbs and cut my junk food intake by a lot. There is a book called "Endometriosis: A Key to Healing Through Nutrition" by Dian Shepperson Mills is supposed to be very helpful. A few of my endo friends swear by it.

The only natural remedy that I have heard really positive things about is Pycnogenol. There have been some studies on it that have shown it helps some women. It is rather expensive and some less expensive brands don't work as well.

"Pycnogenol is a natural plant extract originating from the bark of the maritime pine that grows along the coast of southwest France and is found to contain a unique combination of procyanidins, bioflavonoids and organic acids, which offer extensive natural health benefits. The extract has been widely studied for the past 35 years and has more than 220 published studies and review articles ensuring safety and efficacy as an ingredient."

A really knowledgeable surgeon is your best option. Unfortunately, many docs claim to be experts but don't remove all the endo causing you to need more surgery. The Endometriosis Research Center is a good resource for finding info on this disease and helping you choose the best treatment for yourself.

Good luck. ( I wish we had an endo forum here!)

alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 12/1/2009 8:35 PM (GMT -6)   
Thank you so much girls!
I already eat less than 20grams of carbs per day and no junk food at all. And, I am slowly getting my whole diet to be organic. I really haven't noticed any difference though:(
I will look up the depo lupron effects online. My insurance finally approved it, so I'm supposed to get it tomorrow. But, I don't need any addition chronic pain, weight gain, hot flashes, headaches or tooth loss! My goodness no! Thank you for telling me that!
We do need an endo forum:)

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 12/1/2009 8:55 PM (GMT -6)   
I wonder how many interested people it would take for them to start an endo forum.

about surgery; I'd be careful. If you had several months of bladder pain after a laproscopy, it may be worse if you actually have surgery. IC (bladder inflammation and pain without an infection) can be a result of abdominal surgery. It doesn't mean anyone hit your bladder, it just happens. After my hysterectomy, I had 6 months of terrible bladder pain. Recovering from the surgery was nothing compared to the agony of having such intense pain in my bladder. Endometriosis is still a problem for me, causes pain, has caused adhesions that cause pain, but now that the IC pain is finally under control nothing short of a life/death situation could get me to consent to abdominal surgery again. And even then I'd have to think about it. I also think we're at a disadvantage because Lyme can cause IC, too. Having two risk factors seems ill advised to me if there is any way to avoid it. That's just my opinion.

I copied down what Dagger said. The book sounds like a great resource; can't wait to read it. The Pycnogenol sounds interesting, too. I hope you find a solution that works for you.

Rose
I have Lyme; it doesn't have me.


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 12/2/2009 2:13 AM (GMT -6)   
My sister has IC. After she explained it to me, I don't doubt for 1 second that I have it too. My Gyno doesn't treat it though, so I would have to go to a urologist and just haven't gotten around to it yet. I know that is just awful, but I am too sick, busy, exhausted and whatnot to bother.
My bladder pain is definitely worse than the surgery recover as well. It is super irritating. I am not having any more surgery if i can help it. I want to exhaust all possible options first. I hope you find help as well Rose!

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 12/2/2009 5:42 AM (GMT -6)   
Hi A&S,
 
I didn't even know what endometriosis was until I saw your post!  Duh!  Anyway, I did a quick google search for natural treatments and so far I found this.   Yeah, I became curious, what else is new?  LOL!
 
 
 
 
 
I finally hit menopause (yeah!) and I have been using a natural cream called Emerita Pro-Gest Natural Progesterone Cream (bought it from Amazon) but I forget to apply it twice a day so I can't say anything about this product just yet...
 
Hope this helps,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


beechcrawler
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/30/2013 12:01 AM (GMT -6)   
Hi ladies,

I saw your posts last week, but had to wait for registration before I could provide my input. I work for someone who has had endometreosis but survived it with natural treatments and holistic remedies. She has a lot of insight that she could share. Let me know if you wanna connect with her, I may be able to get you a complimentary consult!

I see a lot of support forums for endo (many with horrific stories of medical trauma), but not too many discussions on natural healing. That's why I'm glad this forum existed!

-TC
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