Lyme Disease and Headaches

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CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 12/1/2009 1:42 AM (GMT -6)   
Anyone else have bad headaches since contracting Lyme Disease? I suffer with them really bad. It's not the "usual" headache, it is very intense and causes me to pretty much lay down for the day. Advil sometimes isn't enough. I usually get a really intense pressure/pain at the base of my skull, right above my shoulders....where my neck meets the bottom part of my skull.

I've tried so many things to ease them when I feel them coming on and nothing seems to work. Once they start, I'm done for the day. I'm assuming it's the inflammation that Lyme causes that brings these headaches on?

Does anyone else get these bad headaches? What do you do/take for them? Does changing ones diet help?

Any suggestions appreciated.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Co-Moderator Lyme Disease Forum


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 12/1/2009 7:50 AM (GMT -6)   
Do you see a chiropractor? I used to have headaches for months at a time, I went to every doctor, specialist, there was and then went to a chiropractor and that was the only thing that took it away.

Other things that may not be helping... are you drinking lots of water? staying away from sweetners & aspartame, carbs?

I used to suffer from migraines, I get violently ill with them. Headaches are worse than muscle pain for me. They knock me out. I know caffiene isn't good for lymies, but they tell you when you have a migraine to drink caffiene or take Excedrin with caffiene in it. The other thing that helps is apple cider vinegar.

Hope you get some relief soon.
“You must be the change you wish to see in the world.” -Gandhi

http://lymeactually.blogspot.com/


Traveler
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Date Joined May 2007
Total Posts : 13979
   Posted 12/1/2009 10:42 AM (GMT -6)   
Hi All!
I have a particular issue with headaches as well - they seem to come in all shapes, sizes, & colors!! Depending on what type, I have learnec a few things that can help - at least some of the time.

For the ones I can, I just try to get through the day. Sometimes for the moderate ones, ones that interfere when I need to think, sometimes advil will help, only I need to take them @ or near prescription strength.

For the more severe ones (usually at the base of my skull &/or just very sharp pains), sometimes ice wil help.

If I believe it is from a tension headache (which is the case more than we really know a lot of the time, since we Lymies don't do stress) I will use heat.

Understand though, these only work some of the time for me **roll eyes** - too many times nothing really helps but going to bed or sitting quietly (NOT easy for me!!).

Hope this helps some.
~Trav!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 12/1/2009 7:47 PM (GMT -6)   
I get terrible headaches too. Lately they've been focused on the base of my skull, or the left side of my head near my temple. Not much helps- for the mild ones advil sometimes works. I also get headaches that feel as if they're on the surface of my skull, instead of inside it.

Nicky

Willowrose
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Date Joined Oct 2009
Total Posts : 699
   Posted 12/1/2009 10:10 PM (GMT -6)   
Headaches. The ones I get at the base of my skull often involve neck and shoulder pain. Those are best relieved by a visit to the upper cervical chiropractor. I've also used alternating hot/cold compresses to get some relief. Accu-pressure can help. I've never tried accupuncture. No pain killer I've tried will make enough of a dent to bother with.

What I now think of as my Lyme headaches are sinus based. I'm working very hard to keep those from getting bad; they can reach migraine intensity. Using a netti pot or other sinus rinse product daily helps a lot. I also use a steamer. If I must resort to meds, sinus medication containing an expectorant and sudafed work best for me.

The surface of the skull headaches are probably the most intense headaches I get. I have thought they originate from TMJ. For those I see a physical therapist. He uses an electrical pulse machine to disrupt the nerve pain. Again, heat/cold alternating can help.

I'm not willing to take a narcotic pain reliever, and nothing else I've tried takes away the pain, so these are the things I've learned to do. Sometimes warm or hot water running on the headache spot feels good, too.

Finding out I had Lyme and coinfections at least gave me some hope that I will not suffer with all of these things forever. It will sure be nice to get rid of some of these painful conditions. Sometimes I think having a body isn't much fun at all.

Rose
I have Lyme; it doesn't have me.


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 12/2/2009 12:51 AM (GMT -6)   
A chiropractor is probably who I need to see. I used to get free adjustments but I worked for a chiropractor. I don't think my insurance pays much for adjustments either. It was like so much a month and I'd have to come out of pocket with a lot of it. I'm too sick now to get out and see one. Blah!!

My headaches are just like all of yours. I'm going to try some of your suggestions and see if it helps.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3787
   Posted 12/2/2009 7:04 AM (GMT -6)   
Hi CG,
 
It's possible that the headaches are caused from an overload of ammonia in your body..   Ammonia causes more havoc than anyone could ever guess..   I don't know for sure if that's the problem but it just may be possible..
 
What helped me was taking Dr. Jernigan's Neuro-Antitox CNS/PNS formula..   If you decided to use alternative medicine then you have nothing to lose by trying that product to see if it helps you...
 
Denise


It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 13979
   Posted 12/3/2009 12:38 AM (GMT -6)   
Rose,
you might try rubbing a little peppermint oil on the joint of the jaw. That can really help me sometimes!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 12/3/2009 12:45 AM (GMT -6)   
Thanks, Traveler. I've put that on the back of my neck sometimes, but never thought to put it on my jaw joint.

Rose
I have Lyme; it doesn't have me.


WestCoastBabe
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 12/3/2009 2:28 PM (GMT -6)   

CanjunGrl,

Again, I haven't been diagnosed with Lyme (my little disclosure), but I do get these headaches.  I've tried many prescription and OTC meds but I've found nothing works as good as 2-4 Excedrin Migraine and lying down with an ice pack at the base of my skull and another over my eyes.  It has to be Excedrin Migraine; there is something about the caffenine and asprin combination.

WCB


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/3/2009 8:07 PM (GMT -6)   
WCB,

I've been wanting to try Excedrin. I will look it up to see what ingredients are in it. I can't take anything with acetaminophen in it.

Thanks:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


WestCoastBabe
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 12/4/2009 4:03 PM (GMT -6)   
Canjungrl,
Just to stress, for me, it has to be Excedrin Migraine - not regular excedrin, not tension HA, etc. There's something about the combination of the caffenine dose and the asprin together. I suppose, if you can't take caffine it'd would be worth trying the regular excedrin.

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 12/4/2009 6:49 PM (GMT -6)   
my worst headaches are at the base of my skull. When I get them if I turn my head my neck crunches. I have one of those pads you can put in the fridge. Don't think it makes them better but the change in temp makes me feel ok. Hope this helps. Those headaches got worse for me when I started mepron to treat possible babs.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/4/2009 8:46 PM (GMT -6)   
WCB,

Okay thanks!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 12/5/2009 1:04 PM (GMT -6)   
I have a lot of pain at the base of my skull - my shoulder muscles always seem 'easily aggrevated' - I get stabbing headaches  - I am getting to the 'end of my tether' with all this pain - I think I have tried just about every 'therapy' going - do you folks think I should go back on antibiotics - LLMD said I should go to my doc. and get 'inflammatory' response checked or something like that?!  I am running out of the energy needed to find something to stop all this b........! pain.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 13979
   Posted 12/7/2009 11:07 PM (GMT -6)   
Hi Glorybelle,
I know what you mean. I seem to have those same easily aggravated muscles in my upper back, shoulders & neck. Not much really helps when they really get going,

although I have found that if I don't wait until too late - I can get some decent relief by using an ice pack first to get the swelling down, then immediately onto heat to get those muscles to relax a bit.

Pain meds don't touch that pain. =( So I figure there's not much reason to scream for pain meds, huh?
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


TimQ
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/21/2013 10:19 PM (GMT -6)   
Tiger Balm on the temples always works for me. Doesn't fix the dizziness, but always helps with the headaches and almost immediately.
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