Do any of you have Bad Anxiety or Depression ?

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NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 12/4/2009 7:29 AM (GMT -6)   
When I Rife, I usually get these emotional Herx's. It's terrible, as I will Cry on day 2 and 3 post Rife like I just lost my family in a car wreck or something. When I get like this, it is so real, and I am in such despair. I even get thoughts about not wanting to live. I try and sleep it off and recover as the days pass until I Rife again.

The Anxiety is another monster. It was my first symptom in all of this. I worked in ICU's, ER's, Trauma, for years with none of this and then out of the blue, it was free floating Anxiety, which has just gotten worse over time. I wake up with it and find it hard to control all day even taking Klonopin and Xanax. The Xanax I just take as needed, but it just makes me a little sleepy, but doesn't relax me. I suspect the infection is causing this. It's not the typical anxiety one would have with Generalized Anxiety Disorder. It just sits in the middle of my chest, screws with my breathing, and at times my feet are going like restless legs.

I've tried both natural and prescription meds all to no avail. The SSRI meds make so sick and I can't tolerate even pediatric dosages.

If you have advice, great, but just looking to see if anyone else struggles with this along with your other symptoms.

Gary

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 12/4/2009 9:32 AM (GMT -6)   
Are you doing anything to detox after Rife? It makes a major difference. I have a portable infrared sauna I use plus I drink tons of water with lemon in it. Live Lyme does one thing to your body. All the dead stuff that was just killed needs to be flushed out.

NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 12/4/2009 11:15 AM (GMT -6)   
ttlittlestar,

Would a cheap tent from ebay be suffice ? Would it help with the cognitive neuro stuff. That has been one of my biggest problems. Pain I can take. Feeling like I'm losing my mind I can't.

Thanks in advance,

Gary

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 12/4/2009 2:23 PM (GMT -6)   
I got one of those portable silver ones off of ebay. Works great!

Ginnia
Regular Member


Date Joined Nov 2008
Total Posts : 48
   Posted 12/4/2009 4:00 PM (GMT -6)   
I had the absolute worst anxiety ever while my daughter was learning to drive. After she got her license it was still bad. I couldn't figure it out. Other kids went through the learning process and I didn't react that way. Only later, when I learned I had lyme did it make sense. I still worry a lot when someone is gone (all the ducks aren't in a row), but at least I know the reason and it's not as intense. I don't have advice about what to do about it. Knowing its source did help some. Blessings.

achievinggrace
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Date Joined Nov 2009
Total Posts : 3266
   Posted 12/4/2009 6:43 PM (GMT -6)   
As bad as the pain, physical symptoms and neurological problems are, it is the depression and anxiety that I find hardest to deal with. I can drag my sorry body around, or find other ways to do things but when my thoughts are on a bad track, when the anxiety just keeps mounting and makes me want to scream, that's what I find truly debilitating. I no one can see what is going on in your head.

It helps me to calm things down, do more of what I love and take care of myself. I also keep on reminding myself that it is the disease and the process of getting better that is causing the awful thinking -- it isn't really me. I found help with a supplement called SAM-e. Turned me around from suicidal ideation so fast I thought I would get some kind of psyche whiplash! It does help to talk to someone, too, though very hard.

You are not alone, and I hope you pass on through this phase soon.

NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 12/4/2009 8:17 PM (GMT -6)   

16. Do not post ... contact information ...and do not ask for personal information from others.  

Post Edited By Moderator (MMMNAVY) : 12/5/2009 8:14:49 AM (GMT-7)


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 12/4/2009 8:30 PM (GMT -6)   
I've had terrible anxiety and depression. From talking to other people here, I think it's very common with Lyme, especially if you have Bartonella. I don't know what Rife is (and don't use it, obviously), but I find my symptoms get a lot worse if I start a new antibiotic (from a Herxheimer or die-off reaction)

I heard of SAME-E, and someone also recommended 5-HTP to me. They didn't fix anything, but they did make it bearable. And detoxing is important as well. I also find talking to people (like everyone here) helps too.

It's incredibly tough to deal with the anxiety and depression that comes with Lyme, and I have yet to find someone who hasn't had to deal with it. Hopefully it helps to know that other people feel the same way.

Best of luck,

Nicky

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 12/4/2009 9:10 PM (GMT -6)   
Treating bartonella causes my depression and anxiety to increase. I saw something on PPS about using SamE and 5HTP and St Johns Wort to help with brain disorders that cause depression etc. I bought the book which has not come yet. I have used SamE but did not see any results. St Johns Wort does seem to help. The speaker on the program, a psychiatrist, said people need to determine exactly what type of mental emotional problem they have to determine what will work best for them.

I started a new abx treatment and feel pretty bad much of the time. Things are worsened by events such as one of my cat's getting sick and being put to sleep. I also had a stranger lying to me that had me going around in circles for days wondering what was real and what wasn't until I felt literally mentally ill. Evidently she has been abandoning her horse on people's property. The horse is now here and I am very worried about what to do and what will happen to it. I need to take some action but that just causes tremendous stress. I lock into problems and cannot let go of the worry. I also have such a hard time remembering anything that I feel compelled to keep searching for the solution, afraid of forgetting and being hit by it again. The disease itself causes this feeling, knowing that I am the only person that will take care of me and I can hardly function mentally sometimes.

What help me most is painting as it is very meditative. But I have not painted for a couple of months and during that time I have gotten worse. I signed up for lessons and went to my first one this morning. I actually learned something which was very uplifting. I spend so much time on the internet trying to find the needle in the hay stack that is the cure for me that I forget to see or feel or hear anything else. I am completely locked into finding the answer to this overwhelming problem. That is a big part of my depression and anxiety but I believe most of it is just what bartonealla does to people. It destroy your ability to feel joy, to find fun, to be happy.

NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 12/4/2009 9:16 PM (GMT -6)   
I just bought one of those Far Infrared Saunas off ebay for $150 delivered. Should have it next week.

If I can, I will try and get to the Vitamin shoppe and get some Sam-e over the weekend. I need something to calm me down.

I don't look for answers anymore. I've researched this disease to it's end.

If I ever get well, I will throw my computer out the window. I was a computer science major early on in college and loved computers since being a kid. Lyme has taken that away from me now too.

Gary

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 12/4/2009 9:27 PM (GMT -6)   
Is the infrared sauna something that helps detox? Is that because it causes sweating, or does the infrared light do someting beneficial too? I am scheduled to start RIFE in January, and want to be prepared. I'll add my name to the list of people with anxiety and depression. Sigh.

Rose
I have Lyme; it doesn't have me.


NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 12/4/2009 9:50 PM (GMT -6)   
It's like getting direct heat from being in the sun. It makes you sweat out the toxins. Many have recommended this to me recently and every person I have gotten messages from say IR Sauna helps with their Herx's tremendously.

Look at the tents on ebay. Just type in Infra Red Sauna and you will see them. They are not that much money and work as good as the high price units, so I've been told.

Gary
Diagnosed 12/4/08... Symptoms began 10/06 With Nausea, Stiff Neck, Headache, Blurred Vision, Terrible Anxiety.
[p]
Misdiagnosed with Anxiety Disorder, Failed over 26 Prescription Psych meds to help with Anxiety.
[p]
Developed Tachycardia, Daily Shortness of Breath, Chronic Fatigue, Muscle Pain and Weakness, Tremor Hands, Shaky all over, Eye Pain
[p]
Over 40 ER visits, 7 Psychiatrists, 5 Psychologists
[p]
Current treatment Rife


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 12/5/2009 8:19 AM (GMT -6)   
achievinggrace,

I sent you an email.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 12/5/2009 11:41 AM (GMT -6)   
Just wanted to add -- for the benefit of all others who are experiencing the depression and anxiety. When I believe I was first infected, they hit so hard I had to quit a job. I was suicidal, even tho not REALLY suicidal. The thought invaded my mind against my own will. The anxiety was physically painful and the depression was at times unbearable. It did not really pass, tho seemed to subside somewhat. Then, while on Amox, it returned w/ a vengeance. I knew it was physically caused, I could tell. But nobody understood, NOBODY. (except the kind members of this forum). AGain, it was unbearable and it was nothing I could mentally get a handle on to attempt to get better. The depths are so low that you cannot even try to adjust your mind/attitude.
 
The anxiety gripped my entire body and it would be one, big clenched muscle.  A horrible black hole. A living nightmare, literally.

I am greatly improved since my 3 months of Abx, 2 of which were 3500 mg Amox per day. So it could have been major herxing then, as I feel much better now. I wonder if I am possibly cured? Occasionally, I get the buzzing feelings and some new hot flashing, so I wonder if it is only hiding. So I guess I'll be a part of this human experiment and we'll see.  I hope it is because my body has taken over this battle and is fighting.

Just want to let others know to HANG ON tight. Hopefully you will not always feel this way. Hopefully it will pass soon. I believe that knowing it is due to an infection in your body helps. Otherwise you would believe that you were losing your mind when you really aren't.  Otherwise you would want to die when you really don't.

Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Post Edited (+Lyme) : 12/5/2009 10:51:05 AM (GMT-7)


nefferdun
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Date Joined Feb 2008
Total Posts : 900
   Posted 12/5/2009 1:30 PM (GMT -6)   
Thanks +Lyme, I am glad to know that treatment is working for you and you are so much better.  Doesn't amoxy just treat lyme?  I connect hot flashes and anxiety to bartonella.  If you can have them with lyme too, maybe that is part of my problem as I am ignoring the lyme right now, only treating bart.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 12/5/2009 11:27 PM (GMT -6)   
Neffer, I just don't know the answer to your questions. My understanding is that Amox only treats Lyme. I did test positive for babs, and my tests for bart and the others were negative altho we knew these tests were not very reliable. I have not yet received any treatment for either babs or bartonella, even tho I tested positive for one and have the symptoms of the other.

What I am hoping is that the strong Amox treatments , even tho they do not take care of babs or bart, have helped my body and its natural defense skills, as well as my immune system. And so maybe, just maybe, my body has been strengthened enough to fight the babs and bart.

HOpe, just Hope....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/6/2009 8:57 AM (GMT -6)   
I've had depression on and off almost my whole life, but I've had BAD Anxiety and Bad Depression since dx'ed with LD in June 2001.
 
I'm on 300mg Wellbutrin, 50mg Paxil, and 5mg Xanax daily.... and I have tremors in my left hand.... that some blame on the Wellbutrin and others say I'm not on enough Paxil, go figure.


Never doubt that a small group of thoughtful, committed citizens can change the world... it's the only thing that ever has.-Margaret Meade

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 12/6/2009 12:31 PM (GMT -6)   
You know, Jelainep,  I have a lot of questions about depression, too.  I have experienced it on and off since  appx 1978.  I have these questions because altho I was a fairly (not severely) anxious child -- mostly just a worry wart --  I was never a 'down'  child or type of person. I would never have expected I would suffer from depression.  And agreed, the Lyme depression was the very worst and was completely different than any other depression I had experienced.
 
My questions have to do w/ depression and illnesses like fibromyalgia and chronic fatigue syndrome, possibly chronic Lyme.  I do not know a lot about those illnesses.  But the couple of people that I have known who are sick w/ these, it seems that some kind of virus and/or depression was a part of their past medical history.  This (depession) would have been close to 40 yrs ago and was probably never diagnosed.  I just knew these women were always in bed and did not drive. (one was my ex-mother-in-law)  No one ever knew why they were always in bed and it was never discussed.  Then, later in life they received diagnoses of CFS and fibromyalgia.
 
Anyway, somehow, all of these things -- depression, chronic Lyme, , CFS, fibro, MS, and others are somehow tied up together.  Maybe not always, but so many times it seems that a depression preceded these illnesses.  I do believe that people may experience profound sadnesses in their lives, but a clinical depression does not always seem to be caused by any particular thing or experience.
 
So I am wondering if this predisposition to depression originates w/ something very physical, like an unknown virus or unknown immune disorder.  And that it sometimes progresses, leaving someone susceptible to chronic lyme.  And that is maybe why some people are cured and some never are.  Maybe 2 weeks abx cures many people, but not those of us w/ certain predispostions or susceptibilities or pre-existing conditions.
 
This would explain the amount of ingnorance in the medical field. They don't know enough about the origins and triggers of clinical depression.  It would require enormous amounts of studies over many years to discover the links between all these.  The sufferers/patients seem to know some things are connected, but the Drs sure don't.  Seems that figuring out which came first, the chicken or the egg, is something at which the medical profession most often fails.
 
Maybe that is why so many ID Drs think we're suffering from mental problems and not an infection.  (because we are suffering from mental problems!)
 
I think we need a lot more answers about clinical depression.  How it originates and where it has come from.  Maybe that would answer a lot of our questions. 
 
We've discussed this many times before -- There are many who are misdiagnosed w/ MS, ALS, CFS, etc when they really have lyme which is treatable.  But I also believe that many times these people do have these illnesses and they were caused by Lyme.  It would also be very interesting to spend some time on those other boards and try to learn how many of these people previously suffered from some unknown virus or depression.
 
Still,  please note that my first diagnosis of clinical depression was preceded by an undiagnosed illness of some sort that was very suspiciously preceded by a known tick bite.  It was an extremely engorged tick and the illness came exactly one week later.  So maybe Lyme is the root of all of it.  I wonder if we'll ever figure it all out!


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Post Edited (+Lyme) : 12/6/2009 11:34:55 AM (GMT-7)


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/7/2009 7:37 AM (GMT -6)   
I really don't know about a predisposition to depression feeding into Lyme. In the cases of Lyme that I've read about, the depression comes on later.... when you're chronically ill, being told "it's all in your head", worried about insurance, your family, etc..... ANYONE would be extremely depressed and have anxiety.

In my case, I had been married just 18 months, just moved into a brand new condo, had a new car, had a great job, had been to Europe twice, had an art studio in the condo, etc., etc., etc. My life was TERRIFIC! I wasn't depressed, I was HAPPIER than I had ever been.... I was as well adjusted, physically, medically, spiritually as I had ever been.... things I had only dreamed about were coming true.

And then one morning I wake up with Lyme disease AND extrememe depression AND a severly swollen left knee. In less than 2 weeks my life was ripped out from underneath me. I couldn't walk straight because of hip pain. I was seeing 5 of everything. I kept falling down the stairs. I got carpal tunnel in both hands. I couldn't remember much. Looking at the light emmitting from a computer made me nauseous. Nothing has been the same since, and that was over 10 years ago. It took 14 months to get diagnosed. I'm one who tested positive and was told it was a false positive, etc., etc. My depression and anxiety haven't changedd must since then. I'm mostly depressed. I try to "participate" and "enjoy" things, but I can't remember the last time I had a good laugh.
Never doubt that a small group of thoughtful, committed citizens can change the world... it's the only thing that ever has.-Margaret Meade

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/7/2009 5:27 PM (GMT -6)   
Soooooooo........... 3 people with Lyme disease walk into a bar.

1. The first one can't drink because they're on Flagyl
2. The second one can't drink because they're on Tindemax
3. The third one is underage

I kow.... not too funny, but I tried
Never doubt that a small group of thoughtful, committed citizens can change the world... it's the only thing that ever has.-Margaret Meade
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