symptom - pain in legs?

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ashleyf3
Regular Member


Date Joined Sep 2006
Total Posts : 364
   Posted 12/24/2009 10:18 AM (GMT -6)   
We are currently trying to find a pediatric LLMD somewhere close enough to go to as the doc who diagnosed my daughter said she needs IV treatment, but b/c she is a child she cannot treat her and has only given her 21 days of Doxy. She has tons of neuro type symptoms and other, but right now she has a new symptom and wanted to see if you have ever heard of this (as the four of us in this house with Lyme has never had it quite like this). She is having "leg pain" that is not just the knees but the entire leg that she describes from the hip down to her ankles - as a combination of cramping/burning/stabbing that is worse when she walks and if it is touched. Motrin did nothing and heat didn't do very much. She is quite miserable so I was wondering if this was Lyme related too - there doesn't appear to be any swelling like when her knee/leg was affected before. She said this pain feels different then when it was just her knee.

Just wondered if anyone had had anything like this. I pray you all have a Merry Christmas and Happy and HEALTHY New Year!

Blessings,
Leah

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 12/24/2009 4:32 PM (GMT -6)   
Could be Lyme-related. Have you tried an epsom salt soak in warm (not too hot) water? It may help if there is nerve and/or muscle pain.

I've had leg pains for years. It mimics Sciatica, but the focus of the pain wanders between joints (hips, knees, ankles, even into my feet abd/or lower back sometimes). And it usually will start on one side or another, or on both sides & settle on one side, then switch to the other side the next day. It is a radiating, deep achy, sore feeling that can't be pinpointed to nerve, muscle or joint - it is all-inclusive. Heat usually helps mine, but I also get really sensitive to touch sometimes too.

I hope this helps - take care & happy holidays,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 12/25/2009 12:48 PM (GMT -6)   
Yes, I get this too. I was taking Cymbalta and I realize now that it helped SO MUCH. I am currently detoxing because I want to get pregnant. It sounds like she may have some neuropathy involved. - - -That poor little girl. Maybe look into something for neuropathy.

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 12/25/2009 8:51 PM (GMT -6)   
I have alot of deep aching in my legs also, my doctor says it's called mononeuritis multiplex (nerve damage), mine is caused from LD.  The only thing that helps me is my infarred sauna. The heat is very soothing.  

mustangfiveohhh
New Member


Date Joined Dec 2009
Total Posts : 7
   Posted 12/28/2009 1:37 AM (GMT -6)   
I don't know if this will help but we can hope....
I get severe leg and arm pain especially during "die-off" (Jarisch-Herxheimer reaction) which is the feeling we get wen the "critters" die because they little darlings leave a poison behind to further plague us. Aside from the flu-like symptoms I get a feeling of acid under my skin, a terrible burning. I recently discovered, on a whim, that drinking warm water with fresh (not warmed) lemon juice in it helps within 15-20 minutes. I was amazed!
I hate to tell you how many narcotics I had taken to relieve this with no effect and yet this simple, good-for-you drink worked. If this is what she is experiencing give it a try. Though lemon juice is an acid it changes in our systems immediately turning our "climate" alkaline, hence the relief.
My Lyme doctor also told me that when I use the Epsom salts baths to put a cup of soda in with the cup of Epsom salts. It worked much more effectively.
My heart goes out to you and yours,
MG

scorpions96
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/11/2010 7:27 PM (GMT -6)   
MOMMY I LOVE YOU!!!!! THANKS FOR TRYING TO HELP ME! YOU DO SO MUCH TO HELP WHEN YOUR SYMPTOMS ARE JUST AS BAD AS MINE! I LOVE YOU!!


-Ashley(ashleyf3's daughter)

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 1/13/2010 8:48 AM (GMT -6)   
MOMMY I LOVE YOU!!!!! THANKS FOR TRYING TO HELP ME! YOU DO SO MUCH TO HELP WHEN YOUR SYMPTOMS ARE JUST AS BAD AS MINE! I LOVE YOU!!


-Ashley(ashleyf3's daughter)

That just broke my heart and made me cry. It is hard enough to deal with Lymes disease and every thing else that comes along with it, but to see your baby girl suffer is just the worst pain of all. I pray for you and your family to heal and recover quickly. Why were ticks ever born anyway they serve no purpose but to destroy peoples lives. God bless you and your family and I pray your baby girl has a 100% full recovery and she will, we have to believe she will she is young and her body will heal, it just has to. Hang in there baby girl better days are coming.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 1/13/2010 8:48 AM (GMT -6)   
MOMMY I LOVE YOU!!!!! THANKS FOR TRYING TO HELP ME! YOU DO SO MUCH TO HELP WHEN YOUR SYMPTOMS ARE JUST AS BAD AS MINE! I LOVE YOU!!


-Ashley(ashleyf3's daughter)

That just broke my heart and made me cry. It is hard enough to deal with Lymes disease and every thing else that comes along with it, but to see your baby girl suffer is just the worst pain of all. I pray for you and your family to heal and recover quickly. Why were ticks ever born anyway they serve no purpose but to destroy peoples lives. God bless you and your family and I pray your baby girl has a 100% full recovery and she will, we have to believe she will she is young and her body will heal, it just has to. Hang in there baby girl better days are coming.

pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 1/13/2010 9:06 AM (GMT -6)   
I am having pain in my right leg from hip down to the knees (actually all of my lower back is hurting). And i have mild pain in my right ankle too. Suffering massive muscle twiches, knee is inflammed like anything, have been limping for past 20 days, can't go up or down the steps.  Feeling moderate pain on left thigh and knee joint as well these days. Is streching excercise supposed to help, I am just focusing on that (given the condition of right knee, not much of a strech is possible).  And pain is all throughout, can't pin point exactly where its comign and where its going - actually its not going away, just staying. What a pain, in literal sense. 
 
going on doxy, supposed to help according to the doc. I want to kill this disease right now and get back to my normal self.
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