MEXICO???: Is it a good option for Chrinic Lyme treatment?

IS MEXICO GOOD OPTION FOR CHRONIC LYME TREATMENT?
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YES - 60.0%
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NO - 0.0%
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WHERE - 20.0%
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WHO - 0.0%
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WHAT - 20.0%

 
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spf
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/24/2009 9:58 PM (GMT -6)   
PLEASE: Is Mexico reasonable option? - and does anyone know where is good?: It's all a relatively cheap trip from CA....

I recall reading here appx a year ago about a memeber who was treated in mexico - seemingly successfully. I don't see him listed anymore as a memeber ( he was IamMICHAEL).

Does anyone know how it turned out: I had the 30 days of Rocephin in 10/07 (bitten2x: 1st in Upstate NY in 5/04, and again in Big Sur CA 1/06: Misdiagnosed as MS, "Bi-polar", lupus, fibro/chronic fatigue, yada,yada,yada...

Got better for a few mos after Rocephin, and then got the flu fron teenaged daughter - and I have never been "well" since.

All of the MDs here (near SF) are hamstrung by CDC/NIH protocols - so I can't get anything from them - even though I have insurance: I am now on SSDI with Medicare. My original HMO (aka The EVIL CA-based empire that kills as portrayed in Michael Moores movie "Sicko": THAT is the hospital I was IN - for a gall stone surgery: They took 3 weeks in the hospital to even get me into the 20 min lap "emergency" surgery"...

I never recovered, and after 6mos of me going back saying "I'm SICK and I don't know why?", they diagnosed me as a "psych nut-job" and that made me SSDI eligible - which was the ONLY good thing they ever did for me- but Secure Horizons just dumped me: "No more Medicare's under aged 65" - I am 50...

Been limping along in denial - trying to stay tested and unstressed, going out of my mind thinking "THIS is your life?", and fighting infection after infection: kidney, ear, bladder, flu, cold - it just never ends.

Final straw is: The Monday before Thanksgiving my daughter came home from school (already several confirmed cases of H1N1) with 103F fever: had Tamiflu: Stuck one in her mouth, one in mine: Called my ONE good MD - my OB/Gyn (personal friend from high school): He sais "TAMIFLU STAT!!!

My daughter recovered in about 2 1/2 weeks: I am STILL sick and it's Xmas eve: I've lost 20+lbs, and I've HAD it: Now I'm mad: I want treatment, and I WILL goto Mexico/Canada/EU - whatever. I HAVE to get better...

BTW: Already been to one "Fibro" guy who was a quack: Pharmacist (also friend) caught him prescribing a potentially dangerous combo of meds and called me and said "Ummm...I don't wanna dis your Fibro MD - but this guy is throwing darts at the wall...".

PLEASE: Is Mexico reasonable option? - and does anyone know where is good?: It's all a relatively cheap trip from CA.... confused confused

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 12/24/2009 11:52 PM (GMT -6)   
Not sure about Mexico but have you seen Dr.H in California he is an LLMD and I think there is one other guy in California.
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


spf
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/25/2009 4:26 AM (GMT -6)   
I actually HAD an appointment booked with Dr. H - and after all the bad stories I heard about him - from both the online board as well as other real medical folks - including my high school friend who is a REAL Ob/Gyn who knows the scoop - the place is a big $$$ scam...

He doles out LOTS of "feel-good" meds that keep you coming back for more - incl Provigil - which is basically the prescription clone of coke in it's effect (as in the up the nose kind): It'll make you FEEL great, but it doesn't make you well - and it makes you push yourself waaay to hard until you ultimately end up sicker as well as addicted to the feel-goodies...

(I used to be in the rock music biz in the 80s - so I have some acquaintance with the "feel-goodies" and how they can drastically shorten your life...)

The old HMO that misdiagnosed me: That BIG one in CA, the advertises "Thrive": (Yeah - just don't ever come in sick - or else we no speak English, and we mix up meds at the hospital: OOOPS! Sorry we killed 8 people in one ward on one shift 4 years ago...) had me so messed up on a cocktail of antidepressants - and the worst: Benzos:

OMG! Then they wouldn't help me get OFF of them. They said "Your a wacko: You NEED them". So I weaned myself off and it was AWFUL! It was like something on Dr. Drew - only I did it alone: It was 5 days of rocking back and forth like an autistic toddler chanting "One more minute, One more minute...".

So I waited until the Medicare kicked in and got the 30 day Rocephin and got my brain function back (after my first MRI looked like classic MS lesions) - but now the body is just shot: Now it's like I have virtually NO immunity to infections - so it's one after another - and I am just DONE with making this thing my life!

I want my life and my body back. I want to go back to doing what I love to do (I'm a Pastry Chef). I am NOT ready to accept that at the age of 50 THIS is the rest of my life: 3-4 good days and then at least as many trying to recover from actually being normal for a few days.

The roller coaster breaks my heart: I JUST start to feel that MAYBE I'm over "it" and the SLAM! Back in bed again...

I want to fight this! I have a first cousin who had Hodgkins at 29, metastatic liver cancer at 39 (from the radiation for the Hodgkins), and she had a prognosis of 3-6mos tops: And she said "I JUST got engaged; I have a wedding planned in 8 mos with 300 people coming - and I am NOT going to die. I've done chemo before - I can take it again!"

Her mom (My aunt) is an RN - and she got her into THE top MD at Johns Hopkins, and she was the one-in-a-million who survived it - FIVE years later she says: "OK - I'm technically cured; I want a baby." They tell her "NO: Not with all the radiation - you can't!" Then they tell her that her younger sister can't be a surrogate because she's just turned 40 and they won't allow it...

So her husband takes her on a 3 wk cruise to console her, and 2 weeks in she gets seasick, which makes no sense because she grew up with boats: She calls her mom the RN, and Mom says "Lie down, feel right above your pelvic bone - is there a lump?" She says "Yes" My aunt say "Your PREGNANT!"...

She gets home runs to the doctor - and it's TWINS! They tell her "No way is this gonna work" They spend the whole pregnancy monitoring her, and telling her not to be disappointed if she loses them, or if they're abnormal - and then she goes full term and delivers a healthy boy and a girl: Both over 5lbs and healthy - at aged 46!

If SHE can do it, I can do it! BUT: If you have cancer they can treat you: If you have Lyme the NIH/CDC will NOT allow the REAL top hospitals to do the right thing - in the USA.

In Mexico or Canada: No prob: Routine thing: 3-6 weeks on an IV antibiotic cocktail of 5 different abx (NOT just Rocephin) outpatient while they monitor your kidneys and liver, and you're done. - At least the last I heard from the guy in here in 3/08...

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 12/25/2009 3:25 PM (GMT -6)   
what place in mexico are you thinking of? Sanovee $$$$
what are they doing there that you can't do here?
hep c , fibro,
Dad has lyme


spf
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/25/2009 5:53 PM (GMT -6)   
The guy I saw here in '08 went to a Mexican National Health Service hospital clinic in Puebla.

Yup - THEY have better - AND nationalized universal healthcare in Mexico - and if you go where the Mexicans go and you're not a citizen or a permanent resident, they do charge you - but it's VERY minimal...

BTW: You can also do this in Canada and in Europe and Britain: All you do is go there, and walk into any hospital ER and say you are sick, and you get the best health care they can give you - even if you're just "on vacation".

(NOTE) I saw on TV a story of another kid who got Hodgkins (cancer) in the US - and his parents were born in France, but the were US citizens: The put him on a plane to Paris, told him to take a cab to the hospital, and not only did they treat him inpatient for 6 mos. - they also kept him IN France on a very generous stipend for a whole year for "recovery time (I believe it was in the movie documentary "Sicko" by Michael Moore)

I digress: These are some of the notes I saved from that post in '08:

This is the standard prototcol in Mexico under their National Health System:Daily IV 3-6 weeks w. liver/kidney monitoring (From Lyme Health Board Forum)::
The medications are in Spanish:

Trixona 1 amp

Klamoxyl 1 amp

Lisonin 1 amp

Binotal 2 amp

Dicloxacilina 1 amp

FROM: "Michael" on 2/08
I am NOT advising anyone to take these medications, I am merely stating what I was treated with in Mexico.

Posted 2/10/2008 11:54 PM (GMT -6)
Just a reminder folks.

The standard of care followed in the US carries very little weight in Mexico...as well as many other parts of the world.

Our standard of care seems to have been spawned from a convoluted marriage between physicians, insurance companies, and medical malpractice attorneys.

No such beast occurs elsewhere on the planet.

Just a thought to ponder on.

Posted 2/11/2008 11:00 PM (GMT -6) Quote This Post
I went to Mexico to tie up the loose ends and finish up my treatment of Lyme Disease back in July 2007.

I happened to tell one of the Mexican landscapers in my area of my ordeal with Lyme. He told me that a lot of the guys get sick working up here. They go back to Mexico ill and get treated there. He referred me to a doctor in his town in the state of Puebla, Mexico. The doctor that I went to treats many Mexicans who return from the USA sick with tick borne illnesses.

The treatment there is not as hindered as the treatment here. If the physician feels that aggressive treatment is needed, there is no fear of malpractice attorneys or insurance companies to stifle the practice of medicine. The physician is free to use his skills judicioiusly.

I must admit, though, that I was reluctant at first to have 5 antibiotics running into me at one time over a three hour period per day over the course of two weeks. But I did it anyway. I felt incredible and I was walking and touring hours for on end with no fatigue or joint pains.

Such antibiotic combinations are not uncommon there. That's when I realized that the standard of care is just a local standard...and not a universal one.

The standard of care used here in the USA for the treatment of Lyme was actually considered substandard by the doctor who treated me in Mexico. She couldn't understand why only one antibiotic was used intravenously to treat me over the course of two months for a disseminated blood borne illness. She said it was almost ludicrous because the germ just becomes resistant to the Rocephin after a while.

She is the one who suggested that I also get tested for Brucella and Typhoid (Salmonella)...and she was right. They were positive there in Mexico. And when I returned to the USA I had those titres repeated with Quest Lab and they came back IGG positive.

After being treated in Mexico, I'm now actually kind of appalled at our treatment of insect vector illnesses here in the USA. I do NOT think it is at all comprehensive. The family docs have no idea what it's all about...most of the ID docs are in a world of their own...and the LLMD's have been left to muddle through the whole mess trying to figure out what the hell is going on.

Yet no one (not even the LLMD's) ever mentions Typhoid or Brucellosis or Q fever....but yet they're out there...and a lot more common than we realize.

And in one hour after my consultation with this doctor in Mexico, she seemed to be able to put the big picture together better than anyone else I had seen in the USA (and believe me there is a long long long list of doctors that i went to for the treatment of Lyme). In my case, it seems as though the co-infections were a bit more exotic (yet caught here in the USA). And I needed that doctor in Mexico to finally blast the Lyme out of me and to also figure out what other parasites were feasting inside of me.

P.S. Typhoid fever and Typhus Fever are two different diseases. The first is from Salmonella and the second is from a rickettsia.


Michael
Med Hx: Lyme, Rocky Mountain Spotted Fever, Typhus Fever....July 2006. Brucellosis and Salmonella antibodies tested positive in 2007. Bartonella (??? or a non specific artifact) in peripheral smear in 2007.

Status: A lot better now...and almost back to baseline.

Posted 2/11/2008 11:11 PM (GMT -6) Quote This Post
Now that I know what I know....I urge all of you to discuss these other insect vector illnesses with your doctors.
These lesser known organisms may be impeding the treatment of your Lyme disease.
Michael
Med Hx: Lyme, Rocky Mountain Spotted Fever, Typhus Fever....July 2006. Brucellosis and Salmonella antibodies tested positive in 2007. Bartonella (??? or a non specific artifact) in peripheral smear in 2007.

Status: A lot better now...and almost back to baseline.
Post Edited (IamMichael) : 2/11/2008 10:18:29 PM (GMT-7)
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JRS0911
Regular Member

Date Joined Jul 2007
Total Posts : 383
Posted 2/12/2008 8:25 AM (GMT -6) Quote This Post
Very interesting... I just read an article recently about how many Americans are crossing the Texas/Mexico border for Dental treatment, because it's much cheaper there, and the work is just as good, if not better.

A NON-LLMD doctor of mine recently recommended that I be brought to a forein country for treatment. Me and my family laughed at the suggestion, until we realized this doctor was dead serious. He told us that another very sick patient in his practice who had a brain infection and Spect imaging similar to mine, was brought to one of these foreign places, and recieved excellent treatment....and is now walking again.

It's such a shame our doctors hands are tied, no matter how wonderful they are.

If I can ask.....What were your remaining symptoms, and what were the 5 IV antibiotics used?

Thanks!
-
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IamMichael
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Date Joined Nov 2006
Total Posts : 422
Posted 2/15/2008 5:31 PM (GMT -6) Quote This Post
The medications are in Spanish:

Trixona 1 amp

Klamoxyl 1 amp

Lisonin 1 amp

Binotal 2 amp

Dicloxacilina 1 amp


I am NOT advising anyone to take these medications, I am merely stating what I was treated with in Mexico.

Michael
Med Hx: Lyme, Rocky Mountain Spotted Fever, Typhus Fever....July 2006. Brucellosis and Salmonella antibodies tested positive in 2007. Bartonella (??? or a non specific artifact) in peripheral smear in 2007.

Status: A lot better now...and almost back to baseline.
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JELAINEP
Veteran Member

Date Joined Sep 2007
Total Posts : 670
Posted 2/15/2008 9:00 PM (GMT -6) Quote This Post

I've already posted how my day has went, under "It can get worse, why does this surprise me".

Mexico has better health care than the US? Maybe the news, Oprah, WHOEVER can use this as an angle to do a story on Lyme Disease, coinfections and the treatment we do (or do not) receive. Maybe Oprah's "Dr. Oz" can do a segment on it.

I've said it before and it's not bragging it's the friggin' truth:
I have the money, I have (probably) one of the best insurance policies money can buy, I receive disability (payheck!) insurance from my employer - so I have my own financial resource, I have transportation and I have a husband who is mostly retired and can take me to any appointment I need, AND I CAN'T GET "SERVICE" FROM THE US MEDICAL SYSTEM (refer back to my "it can get worse" post). In the US medical system, everyone forgets that the patient IS the customer, and we pay a high price for sh% tty service. What other business operates like this?

What more can I (we) do? Honostly, WHAT IS IT GOING TO TAKE?
Jennifer -

God never closes a door without opening a window - from which he pisses out of onto my life... - Quote from one of those sarcastic, little "inspirational" books.

"Well someone's got to keep all those doctors in beach houses and sports cars" - this one I made up myself.

"So long from the Sunshine State" - Gordon Solie (1950's wrestling announcer from Tampa).

SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w - if I EVER get a hearing!

exgringo
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/11/2010 4:39 PM (GMT -6)   
Hi this post is addressed to member SPF who was considering getting help in Mexico.
Did you pursue that at all? How about the abx protocol?

Also I wanted to mention that I have been living in Guatemala for the last 7 years and I can say
personally that diagnosis in Central America for infectious diseases is far superior to the states. In the cities of Guatemala, there are medical labs on just about every street corner. Also, the doctors are
much savvier when it comes to INFECTIOUS DISEASE in Central America. They are very used to
the idea of anti-biotic resistant parasites... whereas U.S. doctors don't seem to think that superbugs exist.
My only doubt is the familiarity with Lyme, since its typically a gringo sickness...

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 1/21/2010 5:28 AM (GMT -6)   
I have heard both positive and negative things about being treated in Mexico-----which is what I have also heard about almost any treatment in the USA. There is no "sure thing" that works for all individuals.

As far as the opinion that was given above, about Dr H in CA, I must respectfully disagree. Maybe the opinion is not about the Dr H in the bay area of CA, but about a different Dr H? My daughter and I are patients of Dr H in the bay area. So are my dear friend and her daughter. The good doc is credited with saving my friend's life and has been very helpful to all of us. We would not want his reputation to be tainted without cause. The negative opinion might discourage someone from seeking help from him. Lyme is a complicated illness and we are all different and respond differently to treatments. This is not a reflection on the treating physician. It is simply a fact of life. Out of respect for the doctors and their patients, I hope we can "privately email" each other if we have a negative opinion about a doc.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14746
   Posted 1/21/2010 12:09 PM (GMT -6)   
bablymers said...
I have heard both positive and negative things about being treated in Mexico-----which is what I have also heard about almost any treatment in the USA. There is no "sure thing" that works for all individuals.


I'm a pretty firm believer in what bablymers said. Everything is such a 'trail & error' way of figuring out what to do when one has LD.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 1/21/2010 12:46 PM (GMT -6)   
I'm still not hearing what is good clinic in mexico? it's a big country? what are they doing?
is this in tijuana? is iit $15,000 and suppsed to be a bargian?
hep c , lyme
Dad has lyme


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/21/2010 2:28 PM (GMT -6)   
bablymers said...
As far as the opinion that was given above, about Dr H in CA, I must respectfully disagree. Maybe the opinion is not about the Dr H in the bay area of CA, but about a different Dr H? My daughter and I are patients of Dr H in the bay area. So are my dear friend and her daughter. The good doc is credited with saving my friend's life and has been very helpful to all of us. We would not want his reputation to be tainted without cause. The negative opinion might discourage someone from seeking help from him. Lyme is a complicated illness and we are all different and respond differently to treatments. This is not a reflection on the treating physician. It is simply a fact of life. Out of respect for the doctors and their patients, I hope we can "privately email" each other if we have a negative opinion about a doc.


I too am a patient of the Dr. H in the bay area....just started treatment. I must say that everything that I had heard about him on the Internet was very positive. He is not one of the "secret" Lyme doctors....Igenex Labs lists him as a consultant on their Webpage and he has a Webpage for his practice and does not hide the fact that he treats chronic Lyme patients. So he's right out there, making no apologies to anyone.

Dr. H is one of the top Lyme specialists in the country, from what I've been able to ascertain. The meds and supplements prescribed for me so far include vitamins, herbal support for my liver issues (milk thistle), probiotics and doxycycline. That's it. His staff has been professional, and the charges seem to be in line with those of other specialists; of course he doesn't take insurance.

I think the first poster who mentioned Dr. H in CA (spf) must be referring to a different Dr. H....NOT the Dr. H in Redwood City, CA
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


exgringo
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/23/2010 10:38 PM (GMT -6)   
Just to follow up regarding the drugs this doctor in Puebla Mexico was apparently prescribing for Lyme patients.

I translated the Mexican drug names to their North American versions, that is all.
I am in no way endorsing this protocol. This is for educational purposes only.

"Trixona" is available in the states as Ceftriaxone

"Klamoxyl" is Clindamycin

"Lisonin" is Lincosin/lincomycin

"Binotal" is Ampicillin

"Dicloxacilina" is Dicloxacillin/Dynapen (penicillin type)

mlg7
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/31/2012 1:34 PM (GMT -6)   
Where in Puebla Mexico?
 
What is the name of the hospital?

Post Edited (mlg7) : 1/31/2012 12:29:55 PM (GMT-7)


Zeusy
Regular Member


Date Joined Jan 2012
Total Posts : 237
   Posted 1/31/2012 6:14 PM (GMT -6)   
I was in Mexico recently, and parents still are there. They have seen doctors there several times and found them to be very good. They also found pamphlets about Lyme disease and how it can affect humans in vets offices.

I don't know the exact costs, but it is possible going to Mexico and paying to see a doctor/get treatment there might be cheaper than paying out of pocket in the US. BUt I don't know how Lyme-literate the doctors are...so if you can't afford an LLMD, I'd consider it, and I wouldn't totally throw it out the window either way, but if you CAN afford an LLMD, do your research before going to Mexico instead

Carlosmx
New Member


Date Joined Feb 2013
Total Posts : 1
   Posted 2/19/2013 7:07 PM (GMT -6)   
There are 3 types of spirochaetes:

1) Borrelia burgdorferi (Lyme disease or Borreliosis )
2) Leptospira (leptospirosis)
3) Treponema palladium (syphilis)

These diseases can cause the following symptoms:
Arthritis
Migraine
Facial Paralysis
Fibromyalgia
Lumbago
Carpal tunnel syndrome
Chronic Fatigue Syndrome

For many years , I have observed the type of consults that doctors give their patients with these symptoms, if they refer have constant headaches, then they are referred to a neurologist, for back pain to the orthopedic surgeon, for depression and insomnia to the psychiatrist..ect……
Patients come in for consult and within 15minutes they are given medication that only masks their symptoms. Patient’s health never recovers because the actual cause is never suspected.

We humans , and why not say, but also animals, have to suffer lifelong diseases especially in our old age?
The concept of the physician is that patient‘s genes are damaged, and need medication in order to “maintain” us while we age. We have seen that the medication prescribed has more health risks then actually curing the patient.

I learned a different concept, through the DARKFIELD MICROSCOPE, I have seen that a large percentage of patients have parasite BACTERIA in their blood. This of course is not known by your treating physician; a specific treatment is given and patients gradually improve.
If a patient comes in with a variety of symptoms, and asked about their family history, in which they find similar symptoms., doctors will often say that its hereditary. But we have almost always found these spirochetes in at least one or more family members, for we we conclude that is not hereditary but transmitted.
How is it transmitted? by birth, cohabitation, flea bites, mosquito, etc.. blood, drinking from the same glass, and who knows exactly how many other ways it is contaminated with the family member.
Not only have your symptoms disappear, but cure the diseases caused by spirochetes forever.

www.lymedisease.be

Dr.Lazo
Mexico Hospital, Tijuana, Mexico
in US (619)581-4081
in Mexico 52(664) 683-6363
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