I am 39 am still waiting for my diagnosis. I have a spinal tap is on January 8th. Here is my history:
No issues EVER. about a year and 1/2 ago I starting feeling VERY fatigued with occasional heaviness in my legs. I was given a blood test and told nothing was wrong. the heaviness in my legs and extreme fatigue continued and I ignored it. They tested my thyroid and not much else.
The last week of this past July 2009 I started having mild tingling in my feet. I went back to my doctor who told me to take vitamins. Two weeks later I developed the bullseye mark of a lyme tick bite. I was immediately told to go on a six week course of antibiotics. Which I completed. The tingling never subsided or went away.
A neurologist was convinced the tingling was not Lyme related but was a nutritional deficiency. Tested my blood for everything under the sun. No deficiences. She did an EMG: no nerve abnornalities. Finally ordered a brain MRI (with contrast) just in November. Four lesions on my brain. Then a cervical spine MRI (with contrast) more lesions. Now I have the spinal tap on Jan. 8.
I still have the tingling in my feet (no numbness), extreme fatigue, some minor blurring in one eye, heaviness in my legs and occasionl tingling in my hands. I am now seeing an MS/Lyme specialist in NYC who insists the Lumbar puncture is necessary to rule out other issues and determine if its MS and not chronic Lyme. It seems everyone is leaning towards MS, but won't tell me so.
I live in constant fear of what this diagnosis will do to my life...any thoughts about the Lyme/MS issue?
Post Edited (Cheezhead) : 12/29/2009 7:58:56 AM (GMT-7)