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bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 12/31/2009 7:34 AM (GMT -6)   
Hi Gang,
My doctor just called. Positive lyme and 2 coinfections.
Guess it time to officially introduce myself. I have been watching
this forum for the past few weeks while waiting for diagnosis.
Also, my Dad has lyme, was treated briefly about 30 yrs ago and
then they stopped treatment. We are from Long Island, NY and our
favorite beaches were the Fire Islands.
I have been sick for as long as I can remember and in 1996 was diagnosed
with Hep C so EVERYTHING has been blamed on that.
When I started making uncontrolable faces while hanging on to the shopping
cart every time I went to the supermarket I knew I had a brain virus but
still couldn't get anywhere with doctors.
I finally came to the conclusion that I had an inherited condition from my Dad
but not even thinking that he has lyme and maybe I do too.
It has been so many years of him deteriorating mentally and physically plus
drinking, we all in our ignorance lost track of the lyme factor.
He became so angry with the doctors when they told him he didn't need any more
antibiotics and it was all in his head. He became impossible to help.
Now he has just finished radiation for cancer in his mouth.

I'm going to doctor today to discuss my treatment and hoping I can encourage my
Dad to get to a real lyme doctor.

I look in on a lot of different forums because I am so all over the place with the
depression, pain , fibroishness and hep c . This forum has been most helpful to me
in a very sobering kind of way. Something about how the focus is maintained I guess.

Anyway, I am most grateful to finally have a diagnosis and a doctor and this forum.

Much love to you all and Best New Year Ever!!!!

Bucci
hep c , lyme
Dad has lyme


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 12/31/2009 7:45 AM (GMT -6)   
Hi Bucci,
 
I'm so happy for you that you finally know what you are dealing with.   Funny, I am from Long Island too, grew up here and still live here but plan on moving soon.   I also have been to most of the beaches here including Fire Island, played in the woods as a little girl, walked through marshes, you name it!  I was a real tomboy! 
 
The only advice I can give to you is to start reading books about chronic lyme.  I became better using alternative medicine and have been in remission for 4 years now.  My brain was affected, darn, my entire body was affected from lyme, there was a long period where I lost the use of my legs and had to use crutches or I would fall straight down.
 
The book that helped me the most was Dr. Jernigan's "Beating Lyme Disease Using Alternative Medicine" and I believe you have nothing to lose by reading it...  You know what they say:  knowledge is power...
 
Good luck to you and your Dad!
Denise


It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 12/31/2009 8:01 AM (GMT -6)   
HOLY COW! Deejavu !!! so you are OKAY now? I am going to naturopath in Seattle today. You didn't do antibiotics?
what else you know about naltrexone. I didn't understand the part about which pharmacy. I'm getting that book today.
humm, any other home girls out there from Long Island.??
hep c , lyme
Dad has lyme


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 12/31/2009 8:19 AM (GMT -6)   
Hi Bucci,
 
Yes, I am totally fine now and have been for quite a long time!  After I was tested by IgeneX and found out I also had ehrlichiosis my doctor in Plainview gave me 6 months of Doxy (but I took it for about 8 months because I was not getting better).   At that time I thought antibiotics were the only answer but this doctor didn't want to give me any more antibiotics so I started learning about alternative medicine and that's what got me better.   
 
Oh, don't buy the original book as Dr. J. came out with a 2nd revised edition which has so much more information:
 
 
Okay, amazon says it's not unavailable right now so you can buy it here:
 
http://www.hansacenter.com/shop.php (the soft cover is $11.00 less compared to the hardcover).
 
Oh, I don't know anything about naltrexone since I never took that.   Also, if I remember correctly, Dr. Jernigan has a list of doctors that follow his protocol all over the U.S. but I need time to find that list.  I believe it's on his website.
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 12/31/2009 8:35 AM (GMT -6)   
Deejavu, you are giving me deejavu. I am from Farmingdale by the College. I went to St. Killians and then to Half Hollow Hills High school. I'm ordering that book now. thanks
hep c , lyme
Dad has lyme


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 12/31/2009 12:48 PM (GMT -6)   
The best part about a positive diagnosis is now you know what you have been fighting all along and can finally start to do something about it!
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