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momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 1/3/2010 10:23 AM (GMT -6)   
I was diagnosed with Lyme this past June. SInce then I have been on 100mg Doxy twice daily.  While I don't believe the dose is high enough to kill the Lyme, it has caused my symptoms to settle down. My worst symptom is arthritis in my knees. I have them injected every few months and that enables me to walk. Without the injections, I cannot put weight on my legs at all.
 
My orthopaedist wants me to see an LLMD to make sure it is Lyme I have and to get it treated. He is afraid the arthritis will continue to destroy my knees if I don't. He can't give me many more injections and I am too young for knee replacement. I will be wheelchair bound.
 
My MD wants me to see a Rhuematologist to rule out other arthritic conditions. The rheumatologist told me over the phone he will not discuss or treat lyme. The ortho thought it best to rule the lyme out first then. What I don't need is meds to cover the arthritis if the desease that is causing it is still there.
 
Here is my dilema... I am feeling ok right now. I am functional. I work full time. I am afraid that if my treatment is changed, I will get worse before getting better.
I am scheduled to see an llmd on Tue(Dr. H in redwood city). I am afraid to take the chance of feeling so lousy that I can't go to work or take care of my children.
 
How does one make such a decision?

Thanks
momtomonsters

Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 1/3/2010 12:27 PM (GMT -6)   
momtomonsters,
This is the dilemma we all have to face with Lyme disease, and other co-infections. For most of us we do get worse before getting better. However individuals handle treatment differently. Some including myself have been able to continue working full time, while others have such severe symptoms they can not continue to work while going through treatment. Unfortunately you will not know until you start treatment.

It is good to see you are going to see a LLMD. The most important thing you can do is see someone who specializes in tick borne infections to be sure to eradicate any infection you may have before it could become a chronic condition.

best wishes

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 1/3/2010 1:25 PM (GMT -6)   
Hi momtomonsters,
 
When I was sick with lyme, I was told I would have permanent damage to my knees too and I actually lost the use of my legs (couldn't walk without crutches) because they were so weak and darn, both my legs hurt so much! 
 
Anyway, I detoxed like crazy and my legs and knees are just fine and that was years ago.  I still continue to detox just for general health reasons as I believe we live in a toxic world.
 
Are you doing any type of detoxing?
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 1/3/2010 1:54 PM (GMT -6)   
No I am not doing any kind of detox. What is suggested?
 
I am taking Etodolac for the arthritis and it seems to help.
 
Momtomonsters

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 1/3/2010 4:08 PM (GMT -6)   
Hi, if you click on the first thread on the top of this forum it says: 
 
New to Lyme ~ Start Here and you will find detoxing instructions.
 
Hope that helps,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 1/4/2010 10:10 AM (GMT -6)   
Untreated or inadequately treated Lyme will cause more problems in the long-run. By more, I mean throughout every part of your body and brain; joints, organs, nerves, memory, cognitive function, everything. The possible loss of productivity at this point is small compared to the long term loss of life quality and physical and mental ability. Hate to be scary, but this is scary stuff.

You can be treated, get better, and leave all this behind you. Good luck!
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