Looking for a LLMD in Utah

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klynne
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 1/4/2010 11:02 PM (GMT -6)   
Hello,

I am looking for a LLMD in Utah. My story began a little over 4 weeks ago. My husband and I were sitting on the couch and suddenly my left hand and foot began to tingle. My health has always been good and very rarely do I go to the Dr. I knew something was wrong. By morning I was extremely light-headed and decided to go the Dr. He diagnosed me with a silent migraine.

The next few days okay but I still had the symptoms. By the end of the week my limbs were so heavy and weak, stiff neck and joint pain. The next morning I went to the ER as that is what the first DR had advised if my symptoms got worse. The ER Dr. did mention Lymes and asked if I had been to the North East recently. I knew nothing about Lymes so of course my husband and I told him that was not a possibility. They did 3 diff. CAT scans and sent me home telling me I had a virus.

Fortunately I have a bro-in-law who is an acupuncturist and I went to see him the following week. He told me the symptoms all sounded like Lymes. He put me on Vitamin B12, Magnesium, Folic Acid, Colloidal Silver and Liver Detox Herbs. I believe these really helped my symptoms-of course not cured but def. helped.

Lymes....what the heck is Lymes? I know I haven't been bit by a tick. So my research begins and I soon begin to fit the mold. I visit one more DR and ask him to test me for Lymes. He refused and point blank told me I do not have Lymes and to go get a second opinion. This is where I am really on to something. The stories I've read from online-the symptoms, it all is making more sense.

I figure I will give one more Dr a try. He again tells me Lymes is not found in Utah but he didn't have a problem testing me for it. I am prepared that the test will be negative-as that seems to be the case with most people. I get the test results back and find that my ELSA is positive and I have one band on the Western Blot. But of course they consider this negative. He agrees to put me on Doxy and I am so thankful. But again he tells me it's easy to cure and is putting me on it for just 14 days. I am doing 100 mg 2 a day and who knows if that is enough?

I just feel for all of you who have put up with this longer than a month. I honestly can't imagine putting up with the pain, having doctor after doctor tell me there is nothing wrong and dealing with the emotions for months or even years.
I never ever ever would have guessed that I would be infected. I hope that I can try and educate people about this and prevent anyone from having to suffer longer than they have to.

SO this is where I need to find someone to help me further. I think I have been herxing because I've been burning all over, increased joint pain and flu like symptoms. I am so grateful however, that I have been able to get to the bottom of this within a month and I look forward to making a full recovery.

Bless you all and any help is much appreciated!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/5/2010 2:10 AM (GMT -6)   
Hi Klynne!

Welcome to the forum! I'm sorry you have to deal with Lyme disease, but we're all so glad you found us! We are a nice little group of laid back, very compassionate and understanding people.

First, I need to let you know that 200mg of Doxycycline is probably not enough, as you may already know. Also, the length of time to take antibiotics for a new infection is at least six weeks. Here is information on antibiotic dosing, including Doxy, and a great site to read:

Dosage

Increasingly, clinicians recommend that certain drugs used for Lyme disease be given at higher daily doses: for example, 3,000–6,000 mg of amoxicillin, 300–400 mg doxycycline, and 500–600 mg of azithromycin. Some clinicians prescribe antibiotics using blood levels to guide higher doses. Close monitoring of complete blood counts and chemistries are also required with this approach.


Here is the ILADS site I got the information from. Please read this site as it has very important information and will educate you about Lyme disease.

www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

Here is some information on avoiding side effects from Doxycycline:

 
[url] http://www.ehow.com/how_2165217_avoid-doxycycline-side-effects.html [/url]

Here is a link to find a doctor from The Lyme Disease Association: Make sure that the doctor you choose is an ILADS(International Lyme and Associated Diseases Society) Doctor.

www.lymediseaseassociation.org/

And last but not least.....even more information and ways to help you find a good LLMD(Lyme Literate Medical Doctor):

Welcome to the forum! We're so glad that you found us:)

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Ticker at:
ko_@bellsouth.net

If you'd like more doctor suggestions, you can email stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You will want to find an ILADS(International Lyme And Associated Diseases Society) doctor. The
ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/

For great info and links, please read the topic at the top of the first page of this forum titled, "New To Lyme?......Start Here!" It will help you get started learning about lyme.


**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 1/5/2010 1:18:41 AM (GMT-7)

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