CD57 test question

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Tala3
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Date Joined Sep 2009
Total Posts : 233
   Posted 1/7/2010 5:52 PM (GMT -6)   
I got the results of my first CD57 test yesterday - it's about 90.  Sounds like this is good, but needs to go higher.  Wondering if it ever reverts backwards, or if it should just continue to get better with treatment?

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 1/7/2010 11:52 PM (GMT -6)   
My LLMD wanted mine in the 200-300's. 90 is still pretty low. I've read that some peoples CD57 may take a bit of a nose dive when they first start treatment but should eventually go up.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Tala3
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Date Joined Sep 2009
Total Posts : 233
   Posted 1/9/2010 9:05 AM (GMT -6)   
Well, she said some people's are way low, like in the 20's, so I'm making progress. I've been on meds for 6 months already, so it makes me wonder how much longer...I do still have lots of symptoms, but they aren't as bad as they had been. I was just wondering if the numbers go up and down during treatment, or if it just continues to go up as long as you continue treatment until you're either *cured* or without symptoms, anyway?

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 1/9/2010 1:54 PM (GMT -6)   
Yes, mine was 23 so it can get pretty low.

I've read that it can sometimes go down while on treatment but should eventually go back up. I think that LLMD's go by a patients symptoms as well as their CD57 number. It's great that you are doing better! That definitely shows that the treatment is working.

Did your LLMD mention what number(CD57) they'd like to see you at?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 1/9/2010 12:59:38 PM (GMT-7)


Tala3
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Date Joined Sep 2009
Total Posts : 233
   Posted 1/9/2010 10:05 PM (GMT -6)   
She said 200 or greater, but was happy with my progress so far.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 1/9/2010 10:30 PM (GMT -6)   
Tala,

That's awesome! I love hearing when someone is doing better and treatment is working.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


cupcakes
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Date Joined Feb 2010
Total Posts : 34
   Posted 2/11/2010 9:34 PM (GMT -6)   
My CD57 was 14 this summer, when I was diagnosed. The last tick bite I had was when I was 10 or 12, now I´m 21. I´ve been through 18 weeks of antibiotics. 12 weeks of IV ceftriaxone, followed by 6 weeks of oral clarithromycin. After all of that, my CD57 is now 47. So much higher, but I still have SUCH a long road ahead of me. Tomorrow I´ll start on another 8 week course of orals. Cross your fingers for me! I wish I could run around with all the energy of a normal 21 year old. Instead I feel like my grandfather until his death was far more full of life than me. I feel like a slowly fading flower that´s just fading away from the real world.

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/11/2010 10:37 PM (GMT -6)   
mines a wonderful 11. its gone lower with treatment.

have another thread on it it on main pain.

Vin
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Mercury level 99th percentile by hair - Chelation
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Trazodone 150mg|WellButrin|Zithromax,Malarone 
Off Pain killers and anti-anxiety(ie klonopin) 11/10/09. I'll never get better being on those drugs.  Immuno supressant.
 
 
 
 


cupcakes
Regular Member


Date Joined Feb 2010
Total Posts : 34
   Posted 2/11/2010 10:52 PM (GMT -6)   
Vin, you are the first person I´ve met to have anything lower than 14. Thanks for posting that, because now I feel like I should get my act together now and realize there are people out there in a far worse struggle than me. I´ll be crossing my fingers for you! Again thanks, I needed to hear that.

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/12/2010 7:30 AM (GMT -6)   
how do you feel cupcakes? i feel dreadful most of the times. do you get any good days?

Vin
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Mercury level 99th percentile by hair - Chelation
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Trazodone 150mg|WellButrin|Zithromax,Malarone 
Off Pain killers and anti-anxiety(ie klonopin) 11/10/09. I'll never get better being on those drugs.  Immuno supressant.
 
 
 
 

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