symptom check please help!!

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Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 1/9/2010 5:31 PM (GMT -6)   
Haven't been on in a while. My doctor switched my meds up on December 11th.  I'm on bicillin injections once a week, topamax twice a day, valtrax 3x daily and 21 days of levaquin.  I stopped levaquin, pulsed in 7 days flagyl, stopped flagyl yesterday and added actos.  Since this switch I've had increased brain fog and other very weird brain sensations.  I have tighntess in my head, more buzzing, tingling, vibrating in my head than before. Another new symptom for me is that I have difficulty chewing.  This started the week of Christmas. I also sometimes feel like my face is sort of numb and numbness in my abdomen.  I now have numbness that comes and goes in both hands as well as speech difficulties (not word search, more slurring since end of October).  Since end of November, I've had a chronic dry cough.  I just had another mri of head and neck which came out fine.
My symptoms since the beginning have been neurological.  I have vibratory sensations in my head, mouth, down legs, constant muscle twitching.  I've had all neurological testing imaginable.  I am being treated treated now for some elevated heavy metal testing and believe it or not elevated gladiminium from an mri w/contrast done a year ago!
Anyone else share these symptoms and any input?  I do epsom baths regularly and did try coffee enemas and was unsuccessful. I will try enema again.  My doctor is aware of all of this and just thinks that we've are really attacking the lyme finally.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 1/10/2010 12:25 AM (GMT -6)   
Hi Kelly,

I have many of the same symptoms you have. My LLMD told me that most of my neurological symptoms came from Bartonella. Were you tested for that?

It seems like you are doing all the right things. I was going to tell you to detox, but you're already doing that and your doctor already knows about this. The only other thing I can think of is maybe investing in a portable sauna.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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