the show "The Doctors" and yet another disappointment

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JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 1/13/2010 3:40 PM (GMT -6)   
I watched "The Doctors" today only because they were going to discuss the 5 most 'emerging infectios diseases':  Here is my Email to them:
 
THE 5 EMERGING INFECTIOUS DISEASES AND NO-NONE-NADA - MESSAGE about LYME DISEASE.
AFTER 10 YEARS OF BATTLING THIS DISEASE WITH, PSYCHIATRISTS, PSYCHOLOGISTS, INFECTIOUS DISEASE DOCTORS, ORTHOPAEDIC DOCTORS, RHEUMATOLOGISTS, THE MEDICARE SYSTEM, MY INSURANCE COMPANY, I AM STILL MOSTLY HOME BOUND.  I WAS 35 WHEN THIS STARTED, I TURNED 45 THIS PAST NOVEMBER.
YES I HAVE A POSITIVE LD TEST (THE RIDICULOUS CDC TESTING) AND MANAGED TO JUMP THROUGH ALL OF THE HOOPS IN ORDER TO RECEIVE MEDICARE BENEFITS YEARS AFTER TESTING POSITIVE.  I CURRENTLY HAVE A PICC LINE IN FOR THE 2ND TIME (MAYBE THE 3RD - I CAN'T REMEMBER-NO MEMORY IS ONE OF THE SYMPTOMS)IN 10 YEARS AND AM STILL WAITING TO GET BETTER.  THIS DISEASE RIPPED MY LIFE OUT FROM UNDERNEATH ME ALMOST OVERNIGHT.  YET AS IS ALWAYS THE CASE, LYME DISEASE WAS NOT MENTIONED IN YOUR TOP 5 EMERGING INFECTIOUS DISEASES.
I AM MAD AS HELL AND I WANT ANSWERS.  DO YOU HAVE ANY?
WHAT IS IT GOING TO TAKE?  DO I HAVE TO TAKE A MEGAPHONE AND YELL FROM THE ROOF TOP OF MY HOUSE UNTIL A TV CREW SHOWS UP... AND THOSE WITH LD SHOW UP (THOSE THAT CAN-WITH NO ENERGY AND THE VERY FEW THAT HAVE RECOVERED?).
PLEASE PLEASE PLEASE HELP THE HUNDREDS OF THOUSANDS OF PEOPLE LIVING WITH CHRONIC LYME DISEASE.... HELP THE FAMILIES OF THOSE THAT HAVE DIED.... HELP THOSE THAT ARE THE WALKING DEAD.
 

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 1/13/2010 3:42 PM (GMT -6)   
FYI -
The 5 "emerging diseases" were HIV/AIDS, MRSA, ABX RESISTANT TB, H1N1, and 'the ENVIRONMENT". One doctor mentioned mosquitoes and ticks.................... This has really chapped my @RSS.
A small group of committed citizens can change the world-it's the only thing that ever has.-M. Meade


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 1/13/2010 4:28 PM (GMT -6)   
Hey JELAINEP,
We should just rename this disease and call it the "Rodney Dangerfield disease"......NO RESPECT......from doctors, insurance company's, governments, families, you name it NO ONE except for us who have to live with it respects this disease. Well besides a few LLMD's

For those of you who are too young to know, or never heard of Rodney Dangerfield, he was a comedian who was famous for his no respect phrases.

vicparis
Regular Member


Date Joined Jul 2009
Total Posts : 113
   Posted 1/13/2010 4:49 PM (GMT -6)   
Maybe they're all just hoping we'll forget we're sick.
 
Victoria

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 1/13/2010 5:26 PM (GMT -6)   
Somebody needs to send "the doctors" the research supporting chronic Lyme. They won't respond favorably to emotional appeals without evidence backing it up.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 1/13/2010 5:40 PM (GMT -6)   
HIV/AIDS should never make the list as an emerging disease.

So preventable you have to go out and ask for it.
The greatness of a nation is judged by the way it treats its animals.
 
Mahatma Gandhi 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 1/15/2010 2:46 PM (GMT -6)   
Razzle said...
Somebody needs to send "the doctors" the research supporting chronic Lyme. They won't respond favorably to emotional appeals without evidence backing it up.

I would think they would have a staff of interns that could at least "google" the words Lyme disease.

A small group of committed citizens can change the world-it's the only thing that ever has.-M. Meade


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 1/15/2010 2:57 PM (GMT -6)   
I get the feeling that the LYME thing is already the "DON'T TOUCH THIS!" disease.

don't talk about it.
don't question it.

It's the "hands off" or you will be blackballed or be in the quack zone.

It' the government. If the truth were told about Lyme the real estate in specific areas would crash.
there is big money in pharmacutical world selling all kinds of drugs for all the misdiagnosis. They are making too much money on fibromyalgia drugs now and they don't even know what causes fibro. I think they know it's lyme.
I think in secret they are working on the lyme thing in the labs but won't admitt it there is too much $$ in the misdiagnosing.
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 1/15/2010 4:38 PM (GMT -6)   
If they google "Lyme" they'll only really pay attention to the "official" websites (such as the CDC's website) that claim Lyme is hard to get, easy to treat/cure. They need to have the evidence of chronic Lyme put under their noses or they'll never be truely educated about this condition.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (used topically & nasally), probiotics, Liver support herbs, Ailanthus, homeopathy.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 1/15/2010 10:37 PM (GMT -6)   
The cover-up is by a few doctors & govt. This means then that the educational institutions that train the doctors teach that Lyme is "hard to catch, easy to cure" and thus most MD's don't know the truth because of how they are taught in med school. And yes, even with evidence right in front of them (such as yourself) sometimes they are so bought into their medical training that they can't see what the truth is in front of their nose.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (used topically & nasally), probiotics, Liver support herbs, Ailanthus, homeopathy.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/16/2010 6:30 AM (GMT -6)   
bucci.

You said: "real estate in specific areas would crash"

Wow! I never thought of it that way.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Ginnia
Regular Member


Date Joined Nov 2008
Total Posts : 48
   Posted 1/16/2010 7:28 PM (GMT -6)   
I'm taking the prayer approach. Every time I think about my doctor, I pray that she learns all there is to know about lyme disease whether she wants to or not. I pray that information just keep pouring in on her.
Blessings,
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