how to tell you are herx'ing?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 1/18/2010 9:19 PM (GMT -6)   
I am on doxy, and how do i tell if i am herxing? majority of my deblitating pain went away, i am able to walk, not sure if i can negotiate steps yet, but other than the pain going away, and twicthing that lasts 10-15 seconds all over my arms, legs, back, and occassional skin itching, some sleep sweats and disorder, i am not noticing anything. and yes, lots of pins poking me everywhere, sometimes even in scalp and neck.

is this med working? or i need to switch the antibiotics. the rhuematologist tells me this is the prescribed treatment nothing else is needed. ***?! he is like if the bacteria doesn't die, then we can do some synovial articulation and send for some pcr testing or give me an injection. what is he talking about?

i thought lyme patients should never take cortio steriod injections.

today i did lunch on wheat tho as i was feeling weak due to lack of food/carbs.

Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 1/18/2010 9:41 PM (GMT -6)   
pepphell,
A herx reaction differs from one individual to the next. Usually you will notice an increase in symptoms. Please do not take steroid injections, this will only make the infection worse. Your rhuemy is following IDSA guidelines, and seems to knows little about treating Lyme disease. How long have you been on doxy? If you have just started treatment you need to be patient, and give it time to work. Have you seem a LLMD yet?

Best wishes

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/19/2010 7:23 AM (GMT -6)   
pepphell,

It looks like you are doing good on Doxy. Be patient, you just started.

A herx is when all of your symptoms that you currently have get a lot worse. Most people can tell when they are herxing because all of their symptoms are exacerbated.

What dosage of Doxy are you on and for how long?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 1/19/2010 11:42 AM (GMT -6)   
i am doxy 200mg (100x2) a day. the doc won't give me higher, i asked but he said this is the right one to be on.
LLMD is the guy who i need to meet but his appt has still some time to go. not feeling too great today with the knee. :(

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/19/2010 2:33 PM (GMT -6)   
Yes, the dosage should be higher. When do you see the LLMD?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 1/19/2010 5:57 PM (GMT -6)   
I have had probably 10 steroid injections in my neck and knees and even took steroids for a month orally, nothing but relief happened to me, so I am kind of pro-steroids if you need them. It also sounds like he wants to get a fluid sample from your knee and send it out to be tested for the DNS of lyme bacteria. I would totally go for it.
If they dont find it in your knee it doesnt mean you dont have lyme.

good luck-
melissa
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 1/19/2010 6:02 PM (GMT -6)   
also meant to say that I think people do not herx as often as they think. Just because you may feel ba does not mean it is a herx. a herx only happens when the bacteria die off, usually when you start a new med, or at the max once a month when the bacteria replicaxtes usually around a month or so.

but I had my first hard herx days 3-10 of doxy at 300mg a day, I wanted to jump off my roof it was so bad. I think I have had 3 herxes the whole 2.5 years I have been sick.

just my non medical opinion
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


nowlymefree
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/19/2010 7:36 PM (GMT -6)   
Hi, Reading your question about the doxycycline brings back memories for when I was on antibiotics for two years. I had many herxzimer reactions and lots of nerve symptoms. Make a long story short the antibiotic treatment was two years late and did not cure me. But there is hope!  Do not take steriods! I have been cured as of 2006 by alternative means. I took a naturopathic remedy called lyme nosode for three years under the supervision of a naturopath in Conn. and maintained an 85% rawfood diet. Also I had my mercury fillings removed. The whole key is to alkalize your body with raw fruits and vegetables so the lyme bacteria can not survive and you can rebuild your immune system. Seek the supervision of a doctor who is alternative and lyme literate.
I thought I would post my story of how I got cured of Lyme Disease for those people who have chronic lyme and are losing hope. .. To let you know that one CAN get cured of chronic lyme. My ordeal lasted 8 years. I call it the nightmare of my life that started in the summer of 1998. I was not diagnosed till 2000 and then put on antibiotics. For two years I tried a different kind of antibiotic every 3-6 months hoping to get cured to no avail. The next step was to take intravenous antibiotics but my immune system was so weak by then, just the thought of it, I thought I'd die from the treatment.  I found an alternative MD who taught me how to build my immune system. He sent me to a holistic dentist and I  had all the mercury filling removed from my mouth. I then went on a raw food (VEgan) diet under my alternative doctors supervision and also had a few colonics. After six months, he told me he had done all he can to help me but I needed to see an alternative doctor who was more literate in treating Lyme patients. I went on a search and found a naturopath in Connecticutt. She was a 2 and 1/2 hour drive from my house, but I had a friend drive me up there from New York for I was in such bad shape I was afraid to drive. To make a long story short, I began the Lyme Nosode plus other naturopathic remedies and gradually got stronger till in 2006 I was symptom free and cured.  I remain on a 85% raw diet and have been cured since. My belief in God kept my faith that I someday would be healed. I work full time as a teacher and pianist and have lots of energy at the age of 59.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/19/2010 11:08 PM (GMT -6)   
Hi nowlymefree,

Welcome to the forum:) If you don't mind, could you take your story out of your signature and maybe post it on it's own in a new post? Per forum rules, members are only supposed to have 10 lines in their signature.

Thanks:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


OneWearyChick
Regular Member


Date Joined Jan 2010
Total Posts : 109
   Posted 1/20/2010 9:49 AM (GMT -6)   
pepphell said...
i am doxy 200mg (100x2) a day. the doc won't give me higher, i asked but he said this is the right one to be on.
LLMD is the guy who i need to meet but his appt has still some time to go. not feeling too great today with the knee. :(
Pepphell
 
I think you should stick with this dose and trust your doctor until he gives you a reason not to. I am on the same with my llmd - just because someone else does or does not do well on  a treatment you are trying, does not mean you will. Give it a try, a chance and a fair amount of time. Make sure you are using some detox methods to help you through the herxing (generally good to do anyway)
 
When do you follow up with your dr?
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 17, 2017 4:33 PM (GMT -6)
There are a total of 2,883,395 posts in 316,386 threads.
View Active Threads


Who's Online
This forum has 157510 registered members. Please welcome our newest member, Pain101.
447 Guest(s), 11 Registered Member(s) are currently online.  Details
Jake1977, Inderjit Singh Madahar, Dahlias, Serenity Now, JoJoLA, Almost a 10, Girlie, U B Tough, Lady19861, SueCAll, worryboi


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer