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bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/2/2010 4:51 PM (GMT -6)   
Hello! Sorry I been so out of touch.

My last post I was on my way to doing the center in Kansas but that plan changed and I am in the Arizona spot in
Mesa. I got my picc line today and will be getting antibiotics and other supportive type treatment.
It may take 6 to 8 weeks depending on how I react to everything.

Little tired right now but will keep you posted on everything. A lot of the same type treatments are here like what Gary
went through too. I feel very hopeful and now have the support of my family which is everything. It is so hard to do this
when no one understands what is going on and how it really takes the life out of you.

lots of love to you all...if it wasn't for this forum I would have never gotten the help. I walked into this place and they didn't even have to look at my blood work and they knew what was going on and then they checked out so much stuff, read all my lyme reports and took 10 more tubes of blood and another 3 day stool test. They take insurance also but it won't cover all of the stuff. If it wasn't for my brother I wouldn't be able to get past week ONE.

bucci
hep c , lyme
Dad has lyme


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/2/2010 5:24 PM (GMT -6)   
Bucci, I'm so glad to hear that you're getting treatment in AZ!! AND that your family is supportive of you!! I'm excited for you and looking forward to hearing more.....sending prayers and hugs your way!
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel
Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP,
Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 2/2/2010 10:07 PM (GMT -6)   
Hi bucci! Just wanted to say I'm really glad that you finally made a decision to get treatment for yourself. I know you were struggling between going to the clinic in AZ and the Hansa Center. It's great that your family is being supportive. I know how important that was for you to have their support. Glad to know that you are feeling hopeful. Keep yourself feeling hopeful as that will play an important role in your recovery. Take it one day at a time. Rhonda and I will be lifting you up in our prayers daily. Please do keep us posted as often you are able. Looking forward to reading about your progress!

Gary

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/3/2010 2:16 AM (GMT -6)   
bucci,

I am so very happy for you. Please keep in touch with me so I know how you're doing. I did get your emails but I didn't have time to respond. I do read them though so keep sending me your updates. I'm curious as to what they will do to get you feeling better since you do have liver problems.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 2/3/2010 11:47 AM (GMT -6)   
Bucci,

Glad you are getting good treatment. Do keep us posted.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/3/2010 10:01 PM (GMT -6)   
Hey Gang,
I'm a little tired but wanted to let youz all know I am ding OK. First day they put me on a drip of I think hydrogen peroxide just to get thiings moving or maybe to ditch the EBV. they also have the machine from Germany to diagnose EVERYTHING
and ORGAN . The Dr. was awsome and spent 2 hours drawing diagrams of cells and showing me why antibiotics alone cant bust open the ?????( I wish I had a tape recorder) anyway, he was very sick and you can see he really is dedicated to getting to the virus . I think a lot of the things are like where Gary and Rhonda went but they had me on ABX today. ZYX
and before they gave me that they gave me a bag of ETDA for 3 hours. (I think this is the method for getting the cells to open up so the antibiotics can penetrate.
They set up arrangement for me to go to hospitol on Tuesday and i walked in like nothing and got it done.
Also they did the lymph drainage wand and I had cranial sacral today.
They said they are going slow because so much degeneration and hep c and the most upsetting thing to them was really that I am on prednisone.
Very Kool place.... $2500 a week and that is with medicre. They take insurance. They gave me a stainless steel coffee enema bucket . something I never seen in my 16 yrs of doing coffee enemas so I really got a thrill out of that and will be bragging about it to all my coffee enema buddies back in NY.

What else..I had a fever when I got there this morning so you know stuff is kicking up. GOOD!

they have the foot thing there too and I been talking to people who are LOOKIN PRETTY GOOD that said they couldn't walk when they got there.

will keep you posted. my biggest problem right now is finding a cheaper place to stay. My brother is saving my life with all this right now. I already spent everything to get this far over last 20 yrs.

xxxxx
bucci
hep c , lyme
Dad has lyme


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/3/2010 10:10 PM (GMT -6)   
bucci,

That is awesome! When you have time, please send me all of the information through email, of where you are at with their number if you don't mind. No rush beecause I know you are tired and not feeling well. Thanks!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/3/2010 10:26 PM (GMT -6)   
Also,,I keep reading about all the gallbladder problms and like cajun liver enzymes. I think I will be a good berometor for all of us as far as liver/gall goes because of the hep c. I would have never taken antibiotics if Ididn't have these people doing all these other treatments because of my liver. that was why I was running to Hansa after dying from only 50mg 2x a day of doxcy pills. I quit by the 8th day running for antidepressants that after I took I couldn't finish a word and my face was twitching. I really LOST IT and BAD. Not like my everyday crying thing. It was horrible. I wanted to be committed but didn't know how. I knew I was to wimpy for it then.

So I am supposed to be done here in 8 weeks. This seems so bizzare after hearing of years of antibiotics?? I think it is so much about the die off causing more problems?but have no clue.
I am gonna be in the clinic from 9 to 5 Mon to Friday. That is a lot of intense detoxing like what Gary did. I think that lymph drainage thing is key becasue they run it over your stomach and gallbladder liver and neck.

all I do know for sure is the more we all keep reporting in about EVERY THING no matter how little the symptom is; good bad or weard, the sooner we're gonna end the guessing game torture scene.

At least my origional LLMD doctor admitted she could not treat me and knew her limits. And that is all she does is lyme , tic borne and fibro and chronic. nothing else. But she knew I needed IV and major herx support. She told me the psychological effects were too dangerous and even then only trusted ONE LLSHRINK for meds who wasn't available for anothr month. I spent $200 on different psych meds that I had a reg doc right for me and I couldn't take the smallest dose. My brain and nervous system was misfiring so bad off that little bit of doxcy and that was only one week of it.

If it wasn't for our forum for me to cling to for my life's breathe and especially Razzle taking all my emails 5 times a day
I would have never made it out of that hotel room in seattle.

My sister finally understood what was going on with lyme treatment because of this forum.. She didn't know what to do
with me all way across the country in a black hole for 7 weeks.

I am looking forward to having some more interesting stuff to tell all you by end of week.

ONLY is Love,

Bucci
hep c , lyme
Dad has lyme


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 2/3/2010 10:43 PM (GMT -6)   
Thank you for your updates and info. We wish you all the best with your treatments.
Blessings to you, the bablymers family

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/4/2010 1:03 AM (GMT -6)   
Good - so glad they are giving you the works. Sounds like you picked a good place to go for treatment.

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/4/2010 2:00 AM (GMT -6)   
Razzle,

I'm so glad you were there for her. I felt really bad that I could not respond. Thank you so very much.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/5/2010 12:24 AM (GMT -6)   
Thanks so much for letting us know how you're doing!!

Good luck bucci! Sending prayers and ((((hugs))))....
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com

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