ACTION NEEDED! IDSA Violated Voting Requirements of AG Settlement Agreement

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KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/4/2010 11:39 AM (GMT -6)   

IDSA Violated Voting Requirements of AG Settlement Agreement

During an antitrust investigation of the IDSA guidelines development process for the 2006 Lyme disease treatment guidelines, AG Blumenthal's office uncovered significant procedural deficiencies, including conflicts of interests of the panel members. A settlement was reached and the IDSA is breaching it.

The IDSA is manipulating the voting process to favor NO change in the guidelines. The AG has sent the IDSA a letter requesting that they redo the vote in compliance with the agreement.

Action Needed - If You Live in CT
If you live in CT, please email and thank Richard Blumenthal for investigating the IDSA and for enforcing the settlement agreement. Our health is at risk and we thank him for trying to protect it. Your letter might read: "I want to thank you for investigating the IDSA and for enforcing the settlement agreement. Patients with Lyme rely on your broad-shoulders!" Your subject line should read: "IDSA Lyme Disease Guidelines."

Contact CT Attorney General Blumenthal.
attorney.general@po.state.ct.us

Action Needed - If You Live Outside CT
If you live outside of CT, call your own state Attorney General (AG). Let your state AG's office know that the IDSA is trying to go around the rules set in AG Blumenthal's settlement agreement.

For contact information on your Attorney General, click on your state on the left hand menu in the link below.

http://www.naag.org/current-attorneys-general.php

Ask your AG's office to show public support for AG Blumenthal's enforcement of the Settlement Agreement. The IDSA is a powerful group that mainstream medicine looks to for recommendations. Let your AG know that this agreement developed by the CT AG is important to your health.

Sample Phone Blurb
I am calling today because an injustice is being done to Lyme patients throughout the country, and you are in a position to rectify this wrong. The IDSA was found to have conflicts of interest with its 2006 Lyme disease guidelines. Now we find that the IDSA is manipulating the voting process to favor no change in the guidelines in violation of the antitrust Settlement Agreement.

The AG has sent the IDSA a letter requesting that IDSA redo the vote in compliance with the agreement. Please show your public support for enforcement of the antitrust settlement agreement and contact CT AG Richard Blumenthal to help keep the IDSA honest and non-biased in their pursuit of Lyme disease guidelines.

For more information and to download a pdf to send to your Attorney General's office, please visit www.lymepolicywonk.org.

Our health is at risk and the IDSA is playing games with it!


01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/4/2010 1:31 PM (GMT -6)   
This really pisses me off!
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/4/2010 1:44 PM (GMT -6)   
Me too!  I'm hoping that everyone on here reads this and has the same reaction!  We all need to write, email or call and voice our displeasure.
KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 2/5/2010 3:26 PM (GMT -6)   
Thank you for the post. I have found my Ag will call on Monday and I hope you don't mind I was planning on sending an email to all my family and friends. I did cut and copy your post and added a few personal things. I have not send it and if it bothers you let me know and I won't share the info you provided.
 
Thanks for rallying us all up and getting us the info!
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 2/5/2010 8:58 PM (GMT -6)   
Martha's Vineyard said...
This really pisses me off!


Me also....it should almost be expected however. Did we really believe the IDSA would admit they were wrong? The only way I could see true change, is if we all would work together "all us Lymies" and march on the CDC, IDSA, & DC. I know I'm dreaming big.

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/5/2010 10:06 PM (GMT -6)   
Beth,
I don't mind at all, please send it to everyone you think would be interested in helping.
KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 2/5/2010 10:17 PM (GMT -6)   

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/6/2010 1:15 AM (GMT -6)   
LOL, Jelainep!

They (the IDSA) obviously have something to hide if they want to rig the voting results... I would think this would provide more evidence of the crooked nature of the guidelines that were under review...

Just my $.02...
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

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