Hi, recently diagnosed and a couple of questions.

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lylaso
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 2/7/2010 10:00 PM (GMT -6)   
I'm very thankful I found this site. I've had a lot of strange symptoms over the last 6 weeks and thanks to a member here I went to visit an LLMD in the area. I was just diagnosed on Friday and started abx. I also tested positive for ANA, so I'm a little concerned something else might be happening not lyme related.

Quick list of symptoms:

lightheadedness comes and goes
nausea comes and goes
random burning sensations come and go
heart palpitations comes and goes
"vibrating" feelings comes and goes
knee burning sensation comes and goes
muscle twitching comes and goes

and this is the one I'm not sure about: "almost" charley horses. It's like my muscle tenses (calf and forearm) and right before it becomes painful it goes away. I can't find this symptom anywhere (it happens 3-4 times a day). So, could this be lyme related?

My second question is that my symptoms come and go...sometimes I feel completely normal, othertimes so nauseus (not from abx). I can't find nausea either as a major symptom of Lyme (or really anything else) There were so many things to discuss on my appointment on Friday that of course I didn't get to everything. I have a follow up appt in a month.

Thank you so much for sharing any experiences/knowledge.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 2/8/2010 3:28 PM (GMT -6)   
Hi lylaso,

Welcome to the forum! I'm glad you found it! It's a great place to learn a lot and share thoughts. A good way to start learning is to read the topic, at the top of the first page of the lyme forum, entitled "New to lyme, start here". It has a lot of useful info.

It seems as though lyme can cause an unlimited number of symptoms since it can be in any tissue of the body, thus causing all kinds of trouble. All the symptoms you mentioned are things that my daughter and I have experienced. We have lyme, but we also have many coinfections, so that makes things even more complicated. It is a good idea to keep track of all your symptoms so that you can inform you doctor. That way he/she will know best how to help you and understand what is going on. All are important clues.

If you can add in the help of a naturopath that will work co-operatively with your llmd, then you get the best of both worlds/styles of treatment. It is amazing how some symptoms can be eased with natural supplements or treatments. It can make the journey of recovery more tolerable.

Best wishes to you for a quick return to good health, bablymers mom

lylaso
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 2/8/2010 3:37 PM (GMT -6)   
Thank you for the reply bablymers. I'm just so overwhelmed with everything. I was completely fine 6 weeks ago and to go from that to all of these "voodoo doll" sensations...well... I'm sure you understand.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/8/2010 5:16 PM (GMT -6)   
Yes, nausea can most certainly be caused by Lyme. See V. T. Sherr's article, "Bell's Palsy of the Gut" and Other GI Manifestations of Lyme and Associated Diseases
http://www.thehumansideoflyme.net/viewarticle.php?aid=62

I just tried to go to the link for this article and it seems to be down right now, but I'm hoping it'll be back up soon.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


lylaso
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 2/9/2010 8:15 AM (GMT -6)   
Thanks for the article, very informative. I'm so glad I found you guys. Most people I explain my symptoms to laugh them off.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 2/9/2010 5:52 PM (GMT -6)   
One of my first symptoms was waves of nauseousness, almost like being pregnant again. But that was in very beginning 5 years ago and never really came back, just got every other symptoms there can be.
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