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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/9/2010 5:46 PM (GMT -6)   
I had to call enivta today because I had to re order my vitamins and also because I had so many questions. I was told that there are other states where people can get this same treatment that I got. And also that my old treatment is much better now.
I was just their guinne pig...lol
There is a place in the North East, Kansas and others. I was also told about a better web site that they know have. I will forward that when I get it.
They are blazing their way forward and it seems that the FDA is supporting them. So this is good news.
I will find out more.
I was driving in the rain while I was talking to them. I had to re oder all of my vitamins today. Which I am going to stay on big time.
Good news came yesterday also. A women, Marie, same name, I met her on the forum when I was really sick. And we started e-mailing each other. Her mom was really sick. When I was leaving envita....that day. She asked me...ha, are you martha's vineyard...lol
I was like.....ha, yes...her mom is doing very well now. And she just e-mailed me to thank me. Her mom was scared to death and it was her first day at the clinic..and I was on my way out....and bouncing off of the walls.
It is great to hear good news. And odd to meet someone face to face that I met here on the forum...in another state in a clinic.
I also meet snake there...lol. He just called me the other day....
My new lyme family. Well heres to making that family grow larger and healthier soon.
I am so excited about all of this good news..I think that I am going to go back to college and be a Dr. Opps, that is almost a bad work on this forum...lol
 
 
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


jojeanle
Regular Member


Date Joined Dec 2006
Total Posts : 79
   Posted 2/10/2010 7:38 AM (GMT -6)   
MV, please let me know where they are doing it in the NE, Im in pa :)
 

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3484
   Posted 2/10/2010 9:26 AM (GMT -6)   
MV I called yesterday and they said the treatment cost is near $25,000 for 4-6 weeks of treatment and I bet that doesn't cover hotel stay would it? Who really can afford that? They don't bill insurance companies either they said. I live in Michigan, please advise where I can look into treatment on my side of the world. Also, my in condition with Lyme's is Ulcertive Colitis, did you have have any GI issues, where they cleared up with your treatment? Thanks for responding.
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron, very low yeast/sugar/wheat  No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, started Bicillin injection 1/12/10, once a week of injections. Feel much more energy on shot.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2010 12:58 PM (GMT -6)   
I will have to get the other info for you. They cannot tell you how much your treatment is when they have not seen you or all of your labs.
They get called all day long with peope asking how much. Wouldn't that be funny if I called a hospital ad told them that I was sick and that I had 35 diff. Dr.s and asked them...how much is it going to cost me before I come in????????????????
A lot of people on this forum are doing harm to themselfs with serious drugs. And everyone is very different.
We are not the same and will not get the same treatment. They are not a hotel. And you ask who can afford it?
If you break your arm and have no insurance it will cost you over 50,000.
If you spend one week in a hospital....your looking at 20,000, Just to sleep there.
Can you afford to stay sick?
I will get the other info. together for you. They have to see your test and he told me that they have a 120. fee to look at all of your blood work and to help you get the right tests and get them much cheaper through ignenex. They do have things to help people who's insurance will not cover alterantive medicine.
Funny, your insurance will pay for chemo and radiation all day long...but not pay for you to get a healhier immube system.
Getting pissed again.
I am going to get more information for you. Let me do my home work. I get asked this a lot. And I understand the problem. Big time.
But there are other places in the usa that have the same treatment...
So...where do you live?
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2010 1:02 PM (GMT -6)   
It would be helpful if you guys activated your e-mail access. so that I can forward info to you directly as I get it.
I have so many posts and the odd names posted gets confusing when I am talking to 10 people at a time.
Thats why everyone calls me Martha...lol
I am marie..
But MV is fine....
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3484
   Posted 2/10/2010 1:06 PM (GMT -6)   
Hi Marie,
 
I called Envita and some nurse will call me back and explain the treatment for Lyme's to me, cost and all that good stuff. I had the Igenix testing done, so that's a plus. I'll be interested to see how they answer my questions.
 
Thanks for help me.
 
Linda
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron, very low yeast/sugar/wheat  No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, started Bicillin injection 1/12/10, once a week of injections. Feel much more energy on shot.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2010 8:03 PM (GMT -6)   
I liked Vanessa she helped me. I know that you don't feel well. But I would go on hotwire.com and have a mom or BFF take you out there and see the place. Make a physical app. that will take 2 hours with a Dr. They have a ton of questions and take all of your test and medical info with you. Or fax it. Not sure.
And then get a tour of the place..and then..see how you feel about it.

It is an odd expierence having someone understand all that is wrong. I was very happy there.
Ask for Vanessa and tell her crazy Marie, just Marie..ha, I said hello. She was my angle when I was sick.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/10/2010 11:50 PM (GMT -6)   
AND just to let anyone know extended stay america has extended lodging just about everywhere and it is minimum 2 months for about $800 a month. they have minimum amounts of rooms (about 30) that they are allowed to do in each place so as people leave another comes available. Marie is right about the money. It was the hardest part for me because i had to ask
my family but this is what you do ......you help your family. and get the rest of the family checked out. My family is too rabbid with each other. i don't believe it's just me and my Dad. He doesn't even want to be bothered after being ignored and told it was all in his head. He is recovering from radiation from cancer in his mouth which is totally lyme induced.
He is 130 lbs. I can't believe all he has been through and I'm so pissed after loosing everything that I even have to BEG for the money but I am getting better and gonna rebuild my life.

I stopped paying $6000 a year for insurance 4 yrs ago when I finally got disability and medicare. And I'm so glad I'm not paying for it because it wouldn't b worth anymore than my medicare in this situation. So anyone who has insurance but it doesn't pay for this and that don't let that hold you back from getting well. The system just isn't designed for lyme.

You can always pay it back. Make this the biggest investment you ever made. YOU!! BET THE RANCH ON YOU. I have so much degeneration and infection if I wasn't getting all these IV i would have been in the mental hospitol by now. It is my second week and I feel like crap but nothing like i was on a pediatric dose of doxcycline. I need this detox support and all the glutithione and the EDTA. Today was EDTA and antibiotic day and I was feeling lousy in the chair at the clinic but i actually passed out and slept. That never happens for me. I'm so wired and fried. I got the lymph drain before I left and tonight I feel calmer than I felt in longest time. I did the coffee enema when I got home and finally for first time NOT CRYING and can actually roll my body over in bed with out feeling like I was in a bone crusher.

Don't NOT get help because insurance doesn't pay for everything. The herxing thing is too cruel and risky, we need help detoxing our bodies.

sweet dreams
Bucci
hep c , lyme
Dad has lyme


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/11/2010 7:46 AM (GMT -6)   
If Bucci can get her butt all the way out there then anyone can. She was so sick about 3 weeks ago...and I too was ready to kill her myself......lol But she drove over 22 hours! She will get a medal for that one...
She was way too scared to make the drastic move to get to az to try a new approach to her illness's. And she was too scared to stop doing the same thing over and over that she had been doing for years. Taking all of these darn pills, and tons of abx and not even able to take a kids dose of abx without tons of pain and getting sicker. But she would not make the leap.
It is hard as heck to be able to think and make the best decisions about all of these complex health issues when one cannot even walk or think clearly. She too had no money to pay for the treatment. I had to ask my x boyfriend for the money myself. He paid for everything just so that I would shut up already. And he thought that the treatment was absurd and stupid, cause his MD did not approve. Yet...they all saw me come home a new person....so there! No one believed in me when I went out there. No one pushed me to go. I had not known one single perosn who went to envita. No one took me out there. My family did not help me. But...hey....we have to take care of ourselves in life. And take care of our children and friends.
Normally most of us on here could have afforded 25,000 no problem. But after years of not being able to work and after years of being brain numb and in terrible pain, we don't have anymore money to spend on special Drs anymore. We have spent a ton already. Sick people who cannot work do not have insurance. But the families need to know, that if you do not do something to help the lymie in your family get a check on their immube system and central nervous system, then you are going to have them on your sofa for a long time...getting worse and worse. I don't think that nursing homes are cheap.
I am proud of you Bucci....your doing it! Just do it!
The fact that you can relax and sleep in the chair is a good thing. Your home now. I bet you are just relieved. Good for you! Take your vitamins and all of your supplements. If I find out that you are cutting corners in your treatment......lol
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.

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