Herx or lyme getting worse?

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Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/11/2010 10:17 PM (GMT -6)   
Well the winter has been cruel to me.  I've get fevers every night, between 99.0 and 100.  Over the past several weeks after my chelation treatments for mercury(im literally off the charts), ive run 102 fevers the day after, 101 on the next day, 100 the day after until normal and then night fevers resume.   I feel like im constantly battling a head cold where i have fluid in my ears, headaches, extreme fatigue, and just a general sick feeling.  every so often ill have a day or two where im normal, but i go months without them. 
 
Over the past 4 weeks, ive started the salt/C protocol in conjunction.  Since then, my fevers have been a little higher at night..in the past 2 months prior i generally had 99.2(made me feel sick however, could always feel the chills, etc), to 99.5 -100 average.  Ive been much more depressed(probably because im a person who in the past was always out...now i crawl to work, and come home and do nothing.  My body went from very muscular and is now just losing tone and weight),  I get bad headaches, plus those cold symptoms.  
 
When i started chelation and some vitamin, diet changes with a new amazing doctor, etc, he ran my cd-57(december) and it was 22.  I was also in conjunction seeing my original llmd.   I got a new cd-57 4 weeks ago and it was 11.   I decided to dump my llmd and go with this guy who is also in hte ILADS and he treats every condition under the sun from GI(i have colitis/chrons also) to cancer, autism, lyme, heavy metals, etc etc.  I start seeing him to treat my lyme on monday. 
 
My question(finally) :).
 
Ive been sick all winter wondering if they are herx reactions or just me getting sicker.  The cd-57 seems to indicate getting sicker.  People who use cd-57 as indicators, have you noticed during extreme herxes that your cd-57 would lower even though you felt sicker?  What about other test results that may indicate lyme loads?  Or should they be improving?  Or maybe no one knows :).  Does anyone have higher fevers than usual with the herxes?   And who knows how accurate the cd57 is anyway. 
My gut is im getting worse.  I am barely functional most days.  Hoping the doc whos gonna treat me now can get me functional.  Anyone in NJ probably knows of him.  Anyone i tell that has heard of him say nothing but rave.  Central jersey. 
 
I detox by using epson salt baths 1-2 times per day.  Suprisingly, my joint pain has been gone since beginning of december.  Thats a miracle in of itself.  and my head has cleared up to the point where im almost real smart like i used to be again.  But thats about it.  :(
 
Sorry for rambling!
 
Vin
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Mercury level 99th percentile by hair - Chelation
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Trazodone 150mg|WellButrin|Zithromax,Malarone 
Off Pain killers and anti-anxiety(ie klonopin) 11/10/09. I'll never get better being on those drugs.  Immuno supressant.
 
 
 
 


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/11/2010 11:21 PM (GMT -6)   
Your not going to get better with what you are taking.
And the minute that you cut out the abx you are going to get worse..or they call it a re plase.
Whatever.
Look into treating your body better. Think of yourself as a new born baby.would you give all of that stuff above to a baby?
no....You need to feed your body and get your immune system strong. Stop drugging it with the abx.
Believe me...I went down the same path...and I got really really sick.
You don't want to go there.
I wish one Dr. of mine had told me to state with supplements and vit's, not a one..just more and more pills.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/11/2010 11:23 PM (GMT -6)   
Oh the fevers. I was 100-101 every day. Would wake up in a wet bed and damp Pjs' and a ring around my body.
It is freaky.
And it gets worse.....vertigo, blindness, dementia....
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 2/12/2010 6:59 AM (GMT -6)   
It is not up to one member to tell another that the protocol they are on will not make them better.

Many here have tried various methods for healing. Some worked and some did not. What works for one may not work for another.

We can and should give suggestions on what might help them feel better, or things they might wish to discuss with their Dr.
 


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/12/2010 7:24 AM (GMT -6)   
I just wanted to know if its a herx or getting worse and if cd57 numbers get lower during herxes of if they should be going up. The protocol i am on will stay until i get off the 6mp i am taking for the colitis(nasty immune suppressant) and the mercury is chelated from my body(mercury is a very strong immune suppressant too).

i most likely am going to come off the 6mp monday with my new doctor and we are going to subsitute a few other non-immune supressing options for the colitis. So tht should be a big victory. i was reading last night that 6mp directly lowers cd-57 NK cells. so that is a little more into the mystery.

Vin
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Mercury level 99th percentile by hair - Chelation
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Trazodone 150mg|WellButrin|Zithromax,Malarone 
Off Pain killers and anti-anxiety(ie klonopin) 11/10/09. I'll never get better being on those drugs.  Immuno supressant.
 
 
 
 


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 2/12/2010 7:58 AM (GMT -6)   
Sometimes it is so hard to tell.

My CD57 was 360 when I was my sickest! After 3+ years of treatment, I was a 240 about 6 months ago.

Alot of LLMD's do not use the CD57 as a guage anymore.
 


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 2/12/2010 8:20 AM (GMT -6)   
As I understand it, a herx should be temporary and if your treatment is working, you should be seeing a gradual improvement in at least some symptoms. It is so complicated with all of your issues, I really hope your new doctor will find you some relief. Sounds like a winner.
Good luck!

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/12/2010 8:38 AM (GMT -6)   
 
How are you feeling these days after 3 years of treatment?  March will be my 1 year anniversary. 
 
I can't imagine ill get better until i get the immune supressing garbage out of my system.   In the past ive always had an excellent immune system so i hope it can return with a vegance!
 
Vin

History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Mercury level 99th percentile by hair - Chelation
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Trazodone 150mg|WellButrin|Zithromax,Malarone 
Off Pain killers and anti-anxiety(ie klonopin) 11/10/09. I'll never get better being on those drugs.  Immuno supressant.
 
 
 
 


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/12/2010 8:40 AM (GMT -6)   
Achievinggrace,

Thanks for the kind words. I thought that too. But i just dont know really. I also wanted to know if any members had higher fevers during herxing. i suppose it makes sense to have them with all the toxicity of things dying. But just curious. Alot of days fevers and fatigue are my only symptoms. But they can be disabling.

Vin
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Mercury level 99th percentile by hair - Chelation
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Trazodone 150mg|WellButrin|Zithromax,Malarone 
Off Pain killers and anti-anxiety(ie klonopin) 11/10/09. I'll never get better being on those drugs.  Immuno supressant.
 
 
 
 

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