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bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/15/2010 2:14 PM (GMT -7)   
Hi Gang,
i just wanted to open a thread about thick quaqulated blood with my new found experience.

My doctor just started me on heparin over the weekend and already I am seeing the difference.
I just had a lymph treatment and they have been working on my lower legs just above the ankle
because I couldn't walk on my left foot.

After being on the blood thinner for just 3 days I got up this morning and actually stood up on my feet and
went up and down the stairs.

It's hard to believe that I was never given the test for quagulation by any other doctor before and it was the first
thing that my doctor did now. the test was 6 tubes of blood and it took over a week to come back and on paper it
reads out as only one area that was off but when looking at my blood when drawing it you could see like puffy clouds.

so the doctor put me on the heparin and I am feeling less preasure in my head also.

Just wanted to put that out there that lyme is very common with thick quaqulated blood. Maybe someone can explain better
than I am here of how it works and effects us.
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4151
   Posted 2/15/2010 3:49 PM (GMT -7)   
Inflammation thickens the blood....makes the red blood cells want to stick together.

Then there are oddities such as myself, who has sticky red blood cells, an intermittantly elevated Lupus Anticoagulant (Anti-Phospholipid Antibody seen in some autoimmune disorders and sometimes "idiopathically"), and a bleeding disorder (Factor VIII deficiency, but it's not Von Willebrand's/Hemophilia)... I blame the Lyme/coinfections for all of this...don't know what else to blame it all on (nobody else in my family has bleeding issues).
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 2/15/2010 5:51 PM (GMT -7)   
Bucci: So glad you are seeing improvement so soon. What is the name of the test to ask for with hypercoagulation? Are you seeing an LLMD or do other docs such as Rheumatologists do this test as well? I am almost certain that I have the same problem.  Thanks   D

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/15/2010 8:48 PM (GMT -7)   
DOWA, I think that IS the name of the test..hyperquagulation test??I'm getting a PPT?? test tomorrow. I will find out the right name now.

I'm afraid to say who my Doc is anymore on this site but I really like him a lot. It not cheep but I feel I in right place.
I saw a rhumatologist 2 months ago and she told me I had fibromyalgia and needed antidepressants.

But the thick blood thing can cause a stroke. I feel less preasure in my head and eyes too now from the heparin.

Hi Razzle!!! It nice and sunny here anytime you wanna come to visit. I hope you are doing great. maybe you know the name of these tests??
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4151
   Posted 2/16/2010 8:28 AM (GMT -7)   
I think you'll find better info from this link than what I can tell you about this off the top of my head:

http://www.labtestsonline.org/understanding/conditions/hypercoagulable_disorders.html

Here are all the tests listed out:
http://www.labtestsonline.org/understanding/conditions/hypercoagulable_disorders-6.html

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 142
   Posted 2/16/2010 9:07 AM (GMT -7)   
It's strange that you write this. The last time I had a blood draw, the blood from my left arm was too thick to draw... but they got some from my right arm. This happened twice that day as I had two blood draws from two different technicians. Why would the blood be thicker on one side than another???

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 571
   Posted 2/16/2010 9:49 AM (GMT -7)   
One of the doctor's at the Hansa Center told me to always have blood drawn from the right arm. Sorry, I can't remember what the reason is for that.

Gary

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/16/2010 5:14 PM (GMT -7)   
I think I heard that before too GWB?

I always only use my right arm anyway. and that is side my pic is on.

but you know my left leg is always way more swollen than the right leg??
hep c , lyme
Dad has lyme


lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/20/2010 2:28 AM (GMT -7)   
i know how you feel about the thick blood i already had thick blood due to a blood clotting disorder called factor 5 now its even worse and the lovenox shots hurt cause they have to be given in the stomach

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/20/2010 12:10 PM (GMT -7)   
When I do the heparin shots in belly with tiny insulin needle
It very painful and black n blue marks from every shot.
But my head feel so much less pressure and flogged up.

And the swelling is going down in bottom at left leg.
hep c , lyme
Dad has lyme


Hockey Mom
New Member


Date Joined Feb 2010
Total Posts : 9
   Posted 2/20/2010 1:48 PM (GMT -7)   
Bucci - can you describe to me the pressure you feel on your head? I always have pressure - I call it skull pressure because it's not a headache - sometimes it's worse on the top of my head, sometimes on my forehead and sometimes the back of my head. Bending forward brings on the pain very quickly.

I had a Lumbar Puncture on Nov 23rd to test my spinal fluid for a whole lot of things. I was warned by the Neurologist that I would experience headaches for about 48 hours. I felt the exact opposite. I got horribly nauseated during the removal of the fluid but the second he removed the needle I felt such an incredible sensation - pressure was almost completely gone and for 2 weeks I felt better in my head than I had since Nov 2005 when this symptom started. So I have assumed that the pressure on my head is because of spinal fluid build up rather than thick blood. I'd never heard of this before and want to know more.

Thanks!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4151
   Posted 2/21/2010 9:24 AM (GMT -7)   
Hocky Mom,

If I were you, I'd be describing this pressure and your response to the lumbar puncture to the Neurologist. There is a condition called Pseudotumor Cerebri (a buildup of cerebro-spinal fluid in the brain), also called Idiopathic Intracranial Hypertension, that has some striking similarities to your description above...and it can lead to vision loss if not treated. Interestingly, this condition has been reported as possibly caused by Lyme Disease, and also theorized to possibly be connected with hypercoagulation. See http://emedicine.medscape.com/article/1143167-overview for more info...

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


Hockey Mom
New Member


Date Joined Feb 2010
Total Posts : 9
   Posted 2/21/2010 7:35 PM (GMT -7)   
Interesting stuff Razzle - thank you! It's the first time I've seen something that describes the pain in my head and the constant ringing in my ears. I certainly fit the group most afflicted as well - woman, child bearing age, obese. Only eye issues are that I now need glasses - not uncommon at my age.

Thanks again - I'm going to ask my Neurologist about this.

Korissa
Regular Member


Date Joined Oct 2006
Total Posts : 286
   Posted 2/21/2010 7:46 PM (GMT -7)   
My blood used to be very thick and black when drawn. This is my second time on abx and this time LLMD gave me serrapeptase to take along with probiotic.

I know serrapeptase is an anti-inflammatory and should be reducing pain. I haven't noticed that yet. But I've noticed my blood is now bright red and thin. I'm wondering if it's the reason.

Anyone else taken serrapeptase?

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/22/2010 2:23 AM (GMT -7)   
I am doing shots of heparin.
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4151
   Posted 2/22/2010 6:09 AM (GMT -7)   
What dose of heparin are you taking? Just curious how the shots compare to what I'm using to lock my PICC line with...

Thanks & take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

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