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lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/19/2010 11:14 AM (GMT -6)   
So jus wanted to say thanks to everyone for their words of encouragement i went to the doctor and sat down and had a meaningful talk with him he is beginning to do lots more research on lyme seeing that i was getting so much worse he has ran test on my adrenal glands because my potassium keeps droppin to a deadly level so he has me on aldactone 50 mg  for that and my heart was racing so bad the other night i almost went into cardiac arrest they had to stop my heart 3 times to get it to finally regulate i have been diagnosed with irregular heart beat tachycardia myocarditis mitral valve regurgitation and dilated left atrium and my heart is throwin out svt so he had me on toprol 25 mg to start out with and if it doesnt help he will up the dose he also has started a nother 1 week treatment of rocephin 2 grams a day i hope this works and oh he also finnaly prescribed me somethin for pain he did a scope down my throat todat to check my stomach and its swollen prretty bad from al the ibprofen and potassium and he thinks there may be more to it than that so he took a biopsy hopefully things will start looking up for me and i want to thank you all for so much support ive only been on here for a week now and i have found hope and encouragement on here thank you so much you guys are awesome!!!!
yours truly
LYMEADE

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 2/19/2010 11:40 AM (GMT -6)   
Sorry to hear about all of the complications you're having and all the suffering you've been through. I'm praying for you. Keep us posted!

Gary

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/19/2010 12:22 PM (GMT -6)   
Wow, Lymeade,

You really been through the ringer. It is so frightening when you have all these crazy intense symptoms and you are
trying to stick out the program thinking everything is a HERX effect. Thank God they figured out what is going on and it really important that you give us the details like you did because it needs to be recorded really as another aspect of lyme and lyme treatment. So thanks for telling us. It must have been so intense for you all of this cardiac stuff.

You really do have to stay on top of your own twists and turns going through all this and it sounds like you got a handle on it.

Hope you have a great weekend and try to relax. Also I hope you did get the pain under control and are not suffering with that still.

Have you been checked for parasites like strongyloides?

lots of love
Bucci
hep c , lyme
Dad has lyme


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3454
   Posted 2/19/2010 1:38 PM (GMT -6)   
Hi There,
 
I always say, you don't know me and I don't know you, but there's someone we both know, GOD and if he brings you to a situation, he'll bring you through that situation. Hold tight, don't let go!
 
Feel better soon!
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron, very low yeast/sugar/wheat  No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, started Bicillin injection 1/12/10, once a week of injections. Feel much more energy on shot.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/19/2010 3:07 PM (GMT -6)   
lymeade,

I'm so sorry for everything you have been through and I am so glad that your doctor is looking further into everything for you. Please keep us updated on your situation and I hope they get it figured out soon.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/19/2010 3:37 PM (GMT -6)   
hi guys thanks for the replys i will surely keep you posted i go to the cardiologist in march i still have a long ways to go and im not feeling better yet but im gonna hold out the hope and the strentgh for all of you and especially my son he needs me im just glad that my doc is finally listening i wont get the test back for my adrenal glands till monday but i will let you guys know what happens i think this sight is what gave me the courage to stand up to my doc thank you guys soo very much
much love
LYMEADE

lovebug1
Regular Member


Date Joined Oct 2009
Total Posts : 30
   Posted 2/19/2010 4:00 PM (GMT -6)   
My heart has been going crazy too!!! My cardiologist started my on toprol too 25 mg, and i will start it tonight. Your story scared me and I went and took a potassium supplement. I think my potassium is ok though. For now.

I went to my endo and he ran thyroid stuff and said it was ok and also checked how much adrenaline was in my blood stream, but all seamed ok on his end. Just curious...

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/19/2010 4:58 PM (GMT -6)   
love bug and lyme..just curious ..what is your body temperature.under tongue?
hep c , lyme
Dad has lyme


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 2/19/2010 11:46 PM (GMT -6)   
Hi Lymeade

Glad to hear your doctor is listening, sorry to hear you're having problems with your heart. I hope things get sorted out for you!
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