How many of you have had your Vitamin D level checked?

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KO-LD
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Date Joined Aug 2007
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   Posted 2/19/2010 3:21 PM (GMT -6)   
I was just wondering how many of you have had your vitamin D level checked.  Mine was low, but I had never had a doctor check it before, LLMD or anyone else.  I had to ask for the test.  With all the test I've had done I can't believe that no one checked it before.  I just had my husband have his checked, I had been supplementing him with 2,500 IU a day for about 4 months.  His level is even lower 13 (to be fair, I had been supplementing for over a year before I had mine checked so mine might have been as low as his).  The doctor put him on 50,000IU a day (Rx) for  1 month and then he has to have his level re-checked.  He would have never of known if I hadn't suggested having it checked.  KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


CajunGrl
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Date Joined Mar 2009
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   Posted 2/19/2010 4:04 PM (GMT -6)   
I had mine checked about two years ago by an internist when I went in to see him for fatigue. It was really low then and he prescribed me 50,000 IU back then. I just recently had it tested again....I had to ask my LLMD to do it and it was really low again. It was 13. Many people with Lyme have low Vitamin D.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


bucci
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Date Joined May 2006
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   Posted 2/19/2010 6:15 PM (GMT -6)   
if you go to the website bacteriality.com and look on the articles on the left side and read what they say about vitamin d very interesting.
hep c , lyme
Dad has lyme


mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 2/19/2010 8:48 PM (GMT -6)   
I had my vit D checked 1 year ago, they said it was to low. Have not rechecked it. I do notice I feel much better when the sun shines!
 I am a Zebra


GWB
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Date Joined Jul 2005
Total Posts : 571
   Posted 2/19/2010 8:51 PM (GMT -6)   
That website bacteriality.com is put out by the people who are behind the Marshall Protocol. The Marshall Protocol is pretty controversial and you need to be careful about what they say about vitamin D, among other things. I am conflicted about this as I know it's controversial but most doctors, including LLMDs, will tell you if you're low on D to take vitamin D3 (important D3). Vitamin D is really not a "vitamin" it's a steroid hormone and it can be toxic if you take too much of it.

Yesterday I was feeling sluggish and experiencing some bone pain and my arthritis flared up. I hadn't been on my D3 for a month since going to the Hansa Center. I called Dr J to discuss it with him and he suggested I go back on it for awhile and see if it helps. At 10:00 in the morning yesterday I took 2000 IU and forgot about it. about 2:00 in the afternoon I got a surge of energy and was feeling less bone and arthritis pain.

I hadn't given any thought to why all the sudden I felt better until later last night I remembered taking 2000 IU of vitamin D3. So, was it the D3 that gave me a surge of energy and caused me feel better or was it just a coincidence? I don't know. But we need to remember that each one of our bodies are different and what may be good for me, might not necessarily be good for you.

Personally, I think if you're low in vitamin D (you have to be tested to know), and if your doctor (especially your LLMD) recommends it, then I think it's wise to do as he/she says. However, I personally think taking 40,000-50,000IU daily is a bit too high as there's a risk of toxicity when you're taking that much. Again, it's a personal decision and only one that you and your doctor can make. But if you do take a high dosage of D3, I would suggest getting tested often to make sure your don't become toxic. Just my 2 cents.

Gary

pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 2/19/2010 8:56 PM (GMT -6)   
I had it tested. And mine came out horribly horribly low. the LLMD says, this is a record low level for what he has seen. To be precise, mine Vit D came to be 5. The range is supposed to be between (32-100).

So he put me on 5000UI that I bought from GNC, no idea if its D3 or some other stupid crap, I need to get it checked with my llmd if i am taking the right one. He asked me to buy it from OTC so that's what I did. But vit D intake daily has improved my general feeling. I am tired and sleepy by 5 everyday nevertheless and my knee bones hurt regardless, but I am told this is long term healing, it won't fix itself just overnight. So just gotta stick with your plans to get well.

bucci
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Date Joined May 2006
Total Posts : 1489
   Posted 2/19/2010 9:13 PM (GMT -6)   
oops..that's on the RIGHT side where the articles are on vit D...
hep c , lyme
Dad has lyme


Razzle
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Date Joined Aug 2007
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   Posted 2/19/2010 9:17 PM (GMT -6)   
My level was 17 last time I was checked, despite getting a daily IV dose...
 
50,000 IU of RX Vitamin D is D2. This must be converted by the body to D3, so it is not the best form to take.

I suspect an OTC Vit. D of 50,000 IU is also Vit D2...

There are different Vit. D tests. According to the Marshall Protocol, one should have both the OH 25 Vit D and the OH 1,25 Vit D levels checked. The 1,25 D is the activated form, and if this form is high, then supplementing may not be a good idea.

My personal opinion is this: My Husband was told by 2 Endocrinologists that the body uses 4-6000 IU of Vit D3 daily. It does not make sense to me to avoid supplementing Vit D3 if one does not go outside in the sunshine daily (those on Doxycycline, most of us in the mainland USA, etc.). The RDA of 400IU/day is pitifully low. There are a wide variety of ways to supplement Vit D3, and one easy way is to get an enteric coated Fish Oil supplement, then you get both Vit D3 and Omega 3 Essential Fatty Acids. Be sure to check the label for Vit D content. And always check with your LLMD/LLND before changing/adding supplements...


-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 2/19/2010 9:24 PM (GMT -6)   
http://www.gnc.com/product/index.jsp?productId=3928383


That's what I am taking. and it says Vit D-3. And razzle you are right with the different kind of tests for Vitamin D. I had my 250H Vitamin D test done, and that came out to be 5. :(( And yeah North east coast doesn't even see much sunlight during winters + those on doxy have to AVOID sunlight.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 2/19/2010 10:03 PM (GMT -6)   
As long as you are being monitored by a doctor when on a high dose of vitamin D and getting your levels checked, the risk of toxicity is pretty rare. My Vitamin D levels were 13 and I've been taking 50,000 IU for a month now. My levels went up to 15 in a month. Of course, this is my experience, but that's why one should be monitored by their doctor.

Low Vitamin D can cause many horrible symptoms.
 
P.S.- I put "Vitamin C" but I meant to put Vitamin D. Sorry about that!


**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 2/20/2010 12:35:51 PM (GMT-7)


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 2/20/2010 1:53 PM (GMT -6)   
My Dr checks it from time to time and for a few months about a year ago mine was dangerously high. Had to stay away from the sun and windows and anything with D in it.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/20/2010 10:39 PM (GMT -6)   
Humm, Mine was low too and I been on it ,,on and off for 4 yrs. aactually I never took it steady. but afte my LLMD in seattle gave it to me I have been trying to take it regularly..
Maybe i do feel better when I take it?/ I do know if I take it late in the day I have hard time sleeping so I try to take in AM.

I didn't understand any of those articles on Vit D because it was just too much info. Is anyone on marshal protocol?

I was living in a little town in southern Arizona and the local doctor had almost everyone I knew on Vit D.

In Susan Summer book one of the doctors said you do not get vitamin D from sun unless you are in the sun and break out a small sweat. wonder if any truth to that?

But it not just lyme people coming up Vit D defecient.....
hep c , lyme
Dad has lyme


GWB
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Date Joined Jul 2005
Total Posts : 571
   Posted 2/20/2010 11:19 PM (GMT -6)   
bucci said...


In Susan Summer book one of the doctors said you do not get vitamin D from sun unless you are in the sun and break out a small sweat. wonder if any truth to that?



bucci, did the doctor in Susan Summer's book say where he believed we get vitamin D from if it's not from the sun????

Gary

0310macfreak
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/21/2010 11:50 AM (GMT -6)   
I had my V-D check and was <4. I took D2 3000iu a day and went up to 18, when retested by another doctor who put me on to 50000iu a week for 3 months and I only went up to 20 so I don't know what the best kind is to take. I am a vegetarian and do not want to take D3 since it is derived from animal, fish or sheep oil.

mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 2/21/2010 3:53 PM (GMT -6)   
I am going to sit in the sun for an hour every morning. If I dont forget. The sun will heal me!
 I am a Zebra


bucci
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Date Joined May 2006
Total Posts : 1489
   Posted 2/21/2010 5:18 PM (GMT -6)   
GWB, sorry on the Susan Summer book. I gave it away to someone on the beach after I read it last year. I can't remember what else that doctor said other than..don't put anything on your skin that you can't eat. ???

maybe this vitamin D thing is related to chem trails. I still don't understand what that is about and where all thos planes are taking off from? But I drove to Arizona from Seattle and saw the every day. I was in Hawaii and saw them. how many planes are up there doing what ever they are doing up there???
maybe the sun isn't getting thru the spraying stuff??? weard
hep c , lyme
Dad has lyme


mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 2/22/2010 11:18 AM (GMT -6)   
Could the low vit D levels be do to sunscreen???
 I am a Zebra


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/22/2010 11:21 AM (GMT -6)   
mother natures child, I've read that's one of the reasons it's on the rise. They recommend going 15 minutes without sunscreen and then putting it on to get your vitamin d. KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009

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