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I've been a mess since Feb. 5...
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Date Joined Oct 2009
Total Posts : 30
Posted 2/19/2010 3:36 PM (GMT -6)
Thought I had a heart attack night of Feb. 5, called ambulance went to the hospital. HBP and high heart rate. Ran tests, had a high d-dimer, 778. D-dimer checks for blood clots. Had a ct scan of head and chest. no clots. sent home. Told I had my first panic attack, likely from the high/low blood pressure.
Feb. 7, back to the er, drove this time, same symptoms, HBP and high heart rate. Ran tests again, D-dimer elevated to 1008. Kept looking for that clot, ultrasound my legs. No clot. Go home.
Went to primary care Feb. 10, next panic attack in office, freaked everyone out, back to Er in ambulance. All tests ok, d-dimer not ran again though, but "cleared" on the clots. Was told d-dimer could also reflect severe infection or trauma.
No one knows the problem. Went to endocrinologist, cleared. Called infectious disease guy who thinks I don;t have lyme because I had a neg Elisa but a positive western blot. Convinced him to give me amoxicillin- of course not enough, 500 3x a day - for the lyme I don;t have.
Cardiologist gave me a beta blocker to "bandaid" the HBP and high heart rate. No one knows cause. Those that are not infectious disease guys say this must be lyme, you didn't get rid of it in Nov.. Infectious disease guy says these symptoms are not lyme related. Lyme usually slows a heart down he says. So I'm in a downward circle with no one to help me. Hoping the "beta blocker bandaid" gets me through March 1.
I made my first LLMD appointment for Mar 1, but feel like I'll die by then..
Reminder, had a weird looking bullseye in Oct (saw a small bug and flicked him of me- not attached, doc told me it was cellulitis and was given an itch creme. By 2nd week of November had palpits, went to urgent care, where they ran the western blot, that came back positive, with 2 bands, new infection. Have had 2 neg Elisa tests.
Sorry for the choppy writing, very tired, took 2 weeks to have the will to write.
Any thoughts.. please tell me I'm not crazy this is Lyme.
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Date Joined Nov 2009
Total Posts : 3266
Posted 2/19/2010 4:32 PM (GMT -6)
I had several cardiac "incidents" before I was treated for Lyme disease. The tests revealed nothing. Since being treated I have not had another.
I hope your llmd can get you on the right track. Hold on! Try to stay stress-free and get lots of rest.
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Date Joined May 2006
Total Posts : 1477
Posted 2/19/2010 4:53 PM (GMT -6)
All My intense cardiac inscidences STOPPED after being treated for strongyloides parasite with IVERMECTIN.
Strongyloides is very common parasite with lymes. no one ever finds it cause they are not looking for it.
My stool test from METAMETRIX labs $395.00 came up with diaameobia fragellias which is treated withg flagyl and I haven't treated yet because my doctor told me to wait because of my liver.
HOOK WORM which I took some other pharmacy medicine (same as they give for pin worms)
and the big one for the chest pain which is LUNGS being attacked by this parasite and then the unbearable squeezing in my left side.
Also these parasites were causng my pancreas to be like jammed up into esophogal area and that was causing so much preasure on my heart area.
I had to go for visceral manipultaiton for a few weeks and have my pancreas , lung ,liver gall bladder worked on.
i was in agony and complete state of like panic attacks. i also was on so many pain killers and STILL could not stop that
again..the DAY AFTER I TOOK THE ONE DOSE OF IVERMECTIN FOR STRONGYLOIDES...my entire chest
opened up. I was singing , I didn't recoginize my self without that GRIPPING paing.
I was able to walk to the mail box and stand up without always having to lay down.
I really think this gets overlooked for a lot of lyme patients. Theparasites in the stool test was what led my doctors to send me to a LYME specialist and then she put me on the strongyloides medicine for a month. one pill a day. ususlly the treatment is one or 2 days with 3 or 4 pills to blast it out but with lyme she made me stay on for a month.
I could see why too because within 12 days of taking my first dose I could feel this ENTITY back in my chest. so if you have lyme it doesn't go away to stay so fast. Also because I am on prednisone it definitely wouldn't.
You can email me if you want to know more. otherwise I know what it is like to be in and out of cardiac intensive care with NOTHING wrong
lots of love
hep c , lyme
Dad has lyme
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