things gone bad

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lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/24/2010 1:05 AM (GMT -6)   
so things have gone bad now i went to the hospital last nite for my heart rate of 225 bpm and they tried to stop my heart 4 times to regulate it and nothing worked so they transferred me by ambulance to a huge hospital and now i am in the cardiac ward getting all kinds of test done i have seen 6 cardiologist so far a endocrinologist  an infectious disease doc who doesnt know what he is tlking bout and 3 nuerologist i am so scared they say im gonna be here a while i have had a MRI and and a echo and tomaro a spinal tap and many more test along the way does anyone have any advice for me things were going well for a while now they went way down the doc took me off all meds rite now says we are starting from scratch anyone know what i could do ???
sad 
LYMEADE

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/24/2010 1:42 AM (GMT -6)   
I don't know what else to tell you except to hang in there... Do you have an LLMD? If so, maybe you could get the LLMD to talk with some of your doctors...

Take care and I hope things get better for you quickly,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/24/2010 7:16 AM (GMT -6)   
lymeade.

how are you doing today?

what mediction were you on when this happened? antibiotics?
hep c , lyme
Dad has lyme


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 2/24/2010 7:55 AM (GMT -6)   
My daughter has had low blood pressure and a rapid heart rate for awhile. Seems it is all connected to her liver getting all screwed up from the antibiotics.

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 2/24/2010 8:03 AM (GMT -6)   
Lymeade, sorry to hear all you are going through. I do hope you have an LLMD because if you do he/she needs to be in the loop about this so he can advice your doctors. In the mean time, know that Rhonda and I are praying for you.
Please keep us posted!

Gary

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 2/24/2010 9:07 AM (GMT -6)   
I'm so sorry to hear things went so serious on you, Lymeade!
I wish for you to recover from this quickly.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 2/24/2010 2:05 PM (GMT -6)   
Rapid heart rate was one of my worst lyme symptoms and one of the scariest. I did all kinds of tests too, but in the end it was just caused by the lyme and got better with treatment. It was just something I had to "deal" with along with my other symptoms. I was given beta blockers to slow it down, but I never took them because I hated being on so many meds at the time. My heart eventually went back to beating normal after long term treatment.
 
I hope they find something that will help you.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/24/2010 2:51 PM (GMT -6)   
Lymeade,
I used to have heart attack proportions chest and heart pains. I did a stool test and found strongyloides and after taking that medication for it I never had another chest pain again. Before i was tested for lyme I had this special stool test done and becase of the parasites that came up is what made the doctor suspect lyme. These ticks carry parasites. some worse than others. but I never had another chest pain since I did that treatment back in early November.
It was so stupid too because I was scheaduled to have the special cardio blabble blallbe gram but by the time I got the appointment I was completel out of ain. so it was a joke even ging for the testing by then. but I even wonder what would have even showed up..so many tests NOTHING shows up. you could be turning purple right in front of theri faces and if the machine or blood work doesn't pick up anything it's like being a looser on a game show or something.
My life changed after doing that parasite treatment. I couldn'timagine even doing the lyme treatment I am doing now with those same chest pains. I was taking oxycodone for the pain and still would be gripping the steering wheel while driving in so much overwhelming pain.
you can email me if you want to know about thei parasite test
hep c , lyme
Dad has lyme


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/24/2010 2:58 PM (GMT -6)   
also my liver enzymes went in half from doing the antiparasite medicine.

I really think this gets overlooked for a lot of lyme patients
hep c , lyme
Dad has lyme


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/24/2010 3:01 PM (GMT -6)   
Lymeade,

I had and still have sometimes, the rapid heart rate. Mine goes high just like yours and sometimes, I cannot even count it. I usually feel weird in the head when this happens and feel like I'm going to pass out sometimes. Klonopin is the only thing that helps get it back down. Did they try that on you?

Lyme disease sometimes causes this and so does thyroid problems. Have you had your tyroid checked?

I hope everything turns out well and they find something to help you.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 2/24/2010 6:32 PM (GMT -6)   
bucci
What was the medicine regimine your were put on for the parasite?

How long were you on this med?
 


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/24/2010 10:18 PM (GMT -6)   
Harley, for strongyloides parasite I was put on IVERMICTIN 3 or 4 of the 3mg pills . they go by your weight. So you should only need one or tow of those doses.

I took one dose and the next day my whole chest opened up and i was able to do stuff like walk to the mail box and go for a walk. It was mind blowing. I felt good for about maybe 9 to 12 days and then felt like this little entity was coming back but still wasn't in huge gripping paon likebefore. Then I went to meet the lyme doctor for the first time and she gave me apresctiption to take it every day just ONE 3mg pill. She said "You are not done with it yet." I wasn't sure if it was because I was on prednisone or if it woud be that way for everyone. But an infectious disease doctor will say one or tow days of the larger dose knocks it out.

they tried to give me a whole horrible tasting naruropathe herbal concoction to whipe out eh strongyoides, diaomebiafragiallis and hook worm. But the naturopatth LLMD said.."YOu can't mess around ..you need the IVERMECTIN especially because of being on steroids. She also told me NOT to take the flagyl for the diaomebia fragellias because I would get too sick.

the medicine for the hookworm was called..MEBENDAZOLE..100mg chew and swallone one tab twice a day for 3 days.

also, Harley, I wouldn't trust any other lab for this other than METAMETRIX but the test is $395 but it told everything about every aspect of digenstion and pancreatic function even. maybe if you just ask to be tested for those 3 parasites it is cheaper . I think you can do that. i am not sure what other parasite is common with lyme.

I really believe my Mother had lyme and had this parasite also and was treated for years with high dose prednisone blasts and then maintiance and also steroid pumps.

I think the prednisone set the lyme off so bad she got leukemia. strongyloides is deadly if yuo are on corticosteroids and nobody ever checks for it when someone has asthma and they treat with all these pumps and eventually steroid pumps and it is a endless condition.

I went to an infectious disease doctor with my test results from metametrix and he said "With these naturopaths you have to follow the money. He totally poopooed the test and wanted me to take another stool test. (In meantime I had another doctor gave me the IVERMEVCTIN) but what happened with the Infectious diseas guy was weard when I went back a week later and NEVER DID HIS STOOL TEST , he whipped out his presccription pad and wrote for the ivermectin. I think he spoke to someone else about the test and they told him he better cover his ass and write for the ivermectin. It was so stupid. nobody know what they doing in white bread world.
hep c , lyme
Dad has lyme


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 2/24/2010 11:27 PM (GMT -6)   
Yikes! That sounds scary. I hope you have a doctor who knows about Lyme on your side, but I think it's important to investigate the other possibilities too. Just because you have Lyme doesn't mean something else can't be causing this- and maybe that something else is easier to fix than Lyme.

Keep us posted. I'll be thinking of you!

Nicky
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