Treatment finally working!?!?

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need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 143
   Posted 3/2/2010 12:19 PM (GMT -6)   
I just came back from my LLMD. I've been on my (6th???) treatment protocol since being diagnosed 3 years ago. He says my antibody levels are rising, which is a sign the treatment is working! I feel like crap at the moment, but I haven't felt this hopeful for being cured in a long time.


Bartonella
Azithromycin 600 mg/day
Mycobutin 500 md/day

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 3/2/2010 1:46 PM (GMT -6)   
Good news, hope you start to feel better, though. Hope really gives you a boost

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 3/2/2010 7:36 PM (GMT -6)   
Which antibodies are rising?
 
I have also seen good results w/ Zith/Rif, though it took a while.
 


Traveler
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Date Joined May 2007
Total Posts : 35853
   Posted 3/3/2010 4:09 PM (GMT -6)   
CONGRATS!!!!! I do hope you feel some relief soon!! Great news!! Thanks for sharing!! :)
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 143
   Posted 3/4/2010 10:09 AM (GMT -6)   
Re: antibodies: my LLMD uses a new test that measures bartonella antibodies. They also culture the blood. My antibodies rose after treatment started. These tests are not approved yet, of course.

Here is the list of antibodies tested. Have no idea what this means!
Bvb 1, Bvb II, BvB III, B henselae, B koehlerai, B volans

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 3/4/2010 3:13 PM (GMT -6)   
We see the same doc!

Bvb= Bartonella vinsonii berkhoffii (types I,II,III)

I have not been retested since testing positive, but I have BvB I and II.
 


need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 143
   Posted 3/5/2010 10:33 AM (GMT -6)   
Kitty: Dr M in Rockville?

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 3/5/2010 10:39 AM (GMT -6)   
Yes
 


need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 143
   Posted 3/6/2010 7:55 AM (GMT -6)   
Would love to correspond offline about your treatment/experience there. If you want to, e-mail me at
twahler@hotmail.com

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/7/2010 5:45 PM (GMT -6)   
what lab does those antibody tests?
hep c , lyme
Dad has lyme


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/7/2010 5:46 PM (GMT -6)   
need some z... is the zythromax for the bartonella?
hep c , lyme
Dad has lyme


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/7/2010 6:24 PM (GMT -6)   
need some z...if this is your 6th treatment protocol what do you mean by that? Are you with the same doctor all this time? are they treating 6 diferent coinfections? Is this how they treat lyme with one protocol after another? or do they change because one is not working? or because of side effects. How long have you been being treated?
hep c , lyme
Dad has lyme

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