Lyme neuroborreliosis successful healing

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Bubu
New Member


Date Joined Mar 2010
Total Posts : 5
   Posted 3/5/2010 6:28 AM (GMT -6)   
I was treated with Chronic Lyme Neuroborreliosis for years. The symptoms were: pain in the limbs, numbness, nasal discharge, fatigue, lameness, depression, panic, headaches, sweating, trouble sleeping. The symptoms are similar to the Sclerosis Multiplex. There was many antibiotic (penicillins, macrolides) and alternative (silver colloide, infra sauna, hyperbar oxigen, rife maschine, DMSO) treatments tried for many years. This brought some improvement, but not definitive.

The next course of antibiotics cured it permanently:
Doxycycline 400 mg/day (2x200) for 30 days
after
Minocycline 400 mg/day (2x200) for 30 days
During the course beginning every two weeks for four consecutive days:
Metrondiazole 1000 mg/day (2x500) for 60 days
Residual symptoms may remain after antibiotic courses. Therefore, additional steroid treatment may be necessary.

Sorry for poor English.
rezsekz@gmail.hu fromHungary

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 3/5/2010 6:48 AM (GMT -6)   
Glad to have you on board. Thanks for sharing your protocol and what worked for you. I'm puzzled about why you take steroid treatment if you have Lyme disease? Steroids are the worst thing you can take when you have Lyme disease as it can compromise your immune system. Can you explain more about that?

How common is Lyme in Hungary and what are the attitudes of the doctors over there about Lyme disease? Do you have Lyme literate doctors (or specialists) that you go to or do you have to be treated by infectious disease doctors?

Gary

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 3/5/2010 12:50 PM (GMT -6)   
I was going to ask the same question, I dont understand the steroid use at all.  D

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/5/2010 12:58 PM (GMT -6)   
Steroids are commonly given to treat "Post Lyme Syndrome" in the USA because of the theory promoted by many non-LLMD's that symptoms that occur after the few weeks of antibiotics are from an autoimmune response and not the Lyme bacteria itself...
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/5/2010 7:44 PM (GMT -6)   
Hi Razzle, I just got little confused by what you say?? does this mean there is a legitimate reason for steroids or that the steroids are helping at that point or there is no other aternative. or do you mean .. they made that type of treatment and it was NOT good ??

what would the "autoimmune responce be like anyway? what type of stuff are they treating with steroid? like adrenal crash?

are they thinking of a blast of steroid or maintanace low dose?
hep c , lyme
Dad has lyme

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