wifes condition

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markm
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 3/5/2010 11:48 AM (GMT -6)   
  My Question is my wife has been diagnosed with chronic lyme. We have a sympathetic GP who agreed to get my wife a picc line and she does the daily rosephen injections, I believe 200mg. However we can't afford an LLMD WAYYY to exspensive for common folk. She has been on the medication for 2 weeks and is experiencing severe stomach pain and diahrea if she eats is this to be expected? Our GP isnt really versed in LYME I am hoping to tap into the knowledge bank that you all have. I realize the seriousness of the condition but we are strapped as far as cash the meds cost alot, its either an LLMD and no meds or meds and NO LLMD. aNY ASSISTANCE WOULD BE GREATLY APPRECIATED.
 
Thx, and god bless.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/5/2010 12:56 PM (GMT -6)   
Is your wife taking a probiotic supplement? This is recommended to help counter the risk of C. Diff. bacteria in the large intestine (common symptom is diarrhea), and to help reduce the risk of yeast overgrowth in the body.

Also, your wife may need to do some detoxing to help get rid of the die-off toxins created when the antibiotics kill the Lyme bacteria. There are some suggestions in the thread at the top of the Lyme forum titled, "New to Lyme?.......Start here!"

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


markm
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 3/5/2010 1:23 PM (GMT -6)   
  She is taking PRO Biotics  thanks for your respose

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 3/5/2010 2:07 PM (GMT -6)   
How much probiotics is she taking daily? Is she taking them 2 hrs away from any abx?

Also, is she on any meds to protect her gallbladder while on the Rocephen? Many that have done IV Rocephen have lost their gallbladder.

I wonder if this is not an issue with the symptoms she is having.
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Lyme Forum


markm
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 3/5/2010 2:32 PM (GMT -6)   
1 gram twice a day for the pro biotic, actigal for the galblatter

bucci
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Date Joined May 2006
Total Posts : 1477
   Posted 3/5/2010 7:33 PM (GMT -6)   
markm.....how long has your wife had lyme?
has she been tested for other coinfections? how old is she?

does she have any other health conditions going on?

Have you read any books on lyme? there are some great one's out now and if you
new to the scene one book is Insights into lyme disease". It has 13 different doctors different talks on
trreating lyme. there is so much to learn and look out for and if your doctor hasn't read any of the latest
books it may not be the most advantage for your wife.

It is not as simple as some doctors think and if you haven't had a lot of experience with lyme patients ???

Do you have insurance?
hep c , lyme
Dad has lyme


markm
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 3/5/2010 8:20 PM (GMT -6)   
Don't know how long shes had it. We never remember a tick, we were told possibly 20-30 years. It was most likely dormant till 3 years ago when she had a reaction to a medication which put her into liver failure. Her immune system was so shot that we believe that is when the lyme disease became active. Her liver specialist actually tested her for LYME. She is 44 yrs young. We try and read what we can but there are so many opposing views on how to treat it becomes quite frustrating. At this time we know of no coinfections. We have Blue Cross Federal. I really appreciate the input she feels like no one understands what she is going through. We have been told so many times that there is no lyme disease in UT.

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 3/5/2010 11:14 PM (GMT -6)   
markm said...
We have been told so many times that there is no lyme disease in UT.


They say the same thing here in OK where I live too. In fact, you won't find too many places that will admit to having lyme disease. It's disgraceful the way this disease has been ignored and minimized.

By the way, since you chose not to activate your email icon, or don't know how, I have some information I'd like to share with you privately. If you are interested send me an email at dmw@brightok.net.

So sorry about your wife's suffering. I'm praying she's doing better.

Gary

markm
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 3/5/2010 11:37 PM (GMT -6)   
Bucci, I just ordered that book, Thx

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 3/5/2010 11:43 PM (GMT -6)   
Another excellent book to consider is "Beating Lyme Disease" by Dr. David Jernigan (second edition).

http://www.hansacenter.com/beating_lyme_disease.php

Gary

Mom to 3 kids
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 3/7/2010 7:17 PM (GMT -6)   
Mark...your are so sweet to care for your wife...God will be looking out for you for having such compassion...ive been suffering since...Nov.07 but just recently diagnosed with lyme in Sept.09 and babesia about 3 weeks ago...and suffering horrible horrible symptoms..over 100 debilating symptoms..many 24/7..and my husband has become so angry with me...he doenst even believe im ill at all..its hard not to have any support while going thru this ...hes said many times he would leave me if i complain about my so called symptoms anymore..hes verbally abuse me even in front of our son...its been a living nightmare going thru this horrible disease but to have to go thru it alone is almost more than i can deal with sometimes...hes cussed me and called me some of the most horrible things for about 2 years now..doesnt help me in anyway...i cry everyday...because its so hard..my 12 year old son hugs me and says mom it will be ok..i called and had a protective order against him for verbal abuse..and he was so angry...he has taken my name off of our checking and savings account..i have to ask him for money..he quit his job in Sept..because he was so angry with me...said it was because of me...but it wasnt...said everything is because of me...he called me a freak 2 nights ago in front of our son..my son has heard him call me horrible things..i would leave if i was able..just to get my son out of this but we have no where to go ...no one will take us in ..since im so sick..i had to send my 29 year old daughter with CP and in wheelchair to stay with grandmother(his mom) in kansas..cause i was no longer able to take care of her..and ive done mostly by my self since she was born...he wouldnt help me at all..i asked him to help me put her to bed and he slung her down hard..and she cried when he left and said mom i hate him....it was so hard for me to send her away but it was best thing for her..i miss her and so does my son...my husband would say things in front of her...like she needs to be in a home...he never helped me at all with her from the time she was born...but im sorry to tell you so much...just really have no one to talk too...i could tell you are a good person ...so say a little prayer for me when you can. so much more i could say..but thanks for listening i will pray for you and your wife..tell her i truly understand her pain and suffering...im 50 years old with 2 grandkids and 3 kids...and just about 21/2 years ago i could go all day..and now i cant hardly functions and days and nights are horrible with non relenting pain and suffering...

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/8/2010 10:56 PM (GMT -6)   
markhm

do you have a lyme doc in Utah?
how far north or south are you. It's funny but they say no lyme in arizona eithr
and people are walking in every week and wome very good docs are down here too
in Az if you need to see another doctor .
you can always email me if you are interested in heading down this way or any questions.

I think they should start support groups for family of lyme patients. (is there any?)
hep c , lyme
Dad has lyme

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