Can lyme and babesia cause high cortisol level and constant adrenaline????Help!!!!!!!

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Mom to 3 kids
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 3/11/2010 11:06 AM (GMT -6)   
Getting no rest at all..this is miserable...can lyme and babesia cause high cortisol...and constant inability to rest or relax body even when im lying down..my body feels like its running...humming vibraitng..im in total misery i need help somehow..no docs are listening to me..dont know where to turn...i checked on the panic and anxiety formum here and mod said come to this forum...but ive posted here before..and also i dont think im on the right med for babesia...either...but i feel like the antiboitcs are making my symptoms worse....i dont mean just herxing...i think they are making ativan withdrawal symptoms worse

Razzle
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Date Joined Aug 2007
Total Posts : 4027
   Posted 3/11/2010 12:33 PM (GMT -6)   
High cortisol can be from chronic stress (which can be caused by chronic illness). Anxiety can also stimulate adrenalin. I don't know if Lyme or Babesia can do this, but suspect it can given that I know Lyme does mess with hormones and the Hypothalamus-Pituitary-Adrenal axis...

What meds are you on?
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


Mom to 3 kids
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 3/11/2010 2:48 PM (GMT -6)   
nothing right now..fixing to change to ceftin...cephalosporin

Cre
Regular Member


Date Joined Mar 2010
Total Posts : 25
   Posted 3/11/2010 5:44 PM (GMT -6)   
I know just what you are going through! So hard to deal with, I know. Some of my first Lyme symptoms, way back in my early 20s, were severe panic attacks to the point of being agoraphobic. I was in cog/behav therapy on and off for years. The really frustrating thing is that I was not really having true panic attacks in the psychiatric sense. My actual body was reacting to the Lyme infection, but the docs at the time never figured that out. I felt like I had battery acid in my blood, 24/7, and my system could not slow down. Every now and then, for no reason, my heart rate would shoot to 180 bpms. This went on for years. It was the Lyme working its way through my heart and into my central nervous system (gee . . . wonderful). I was told that it was just my "hypersensitivity system" and that I would have to learn how to control it all through CBT. I was also put on a super low dose of imipramine. It took me forever to get used to just 10 mgs when 150 mgs are typically used for depression. It made me speed at first. I was also given a very low dose of Ativan. It definitely helped.
 
That was almost 30 years ago. NOW I know more about what was happening to my body back then.  I am having a milder case of all of this as I am now perimenopausal -- Lyme sure likes to mess with already challenged hormonal situation. I am now on a fairly low dose of Xanax and it has been a life-saver. I've never had to increase the dosage but I sure do appreciate knowing that I have it when my body is speeding so rapidly that there is just no way that I can naturally turn down/off the switch. Camomile tea? Yeah, right. That would be like using a water pistol when you need a granade!
 
Also, I have not been able to tolerate anything speedy, like coffee/caffeine, since my early 20s when all of this scary panic/heart/electricity stuff began. I am totally used to not having anything like that now, so it does not bother me, I don't miss it.
 
Good luck in finding a way to calm it all down. I hope that the above helps some. 

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 3/11/2010 7:58 PM (GMT -6)   
Many people with Lyme have trouble sleeping. I have this problem too. My body also vibrates and hums all the time. It's very frustrating. From what I've read, our cortisol is usually affected. We tend to have lower cortisol during the day and higher at night. I guess that's why we can't sleep.

Also, did you wean off of the ativan? I'm not sure that it would cause vibrating and humming though. I think that's more your Lyme symptoms than anything.

What are you taking for babesia?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Traveler
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Date Joined May 2007
Total Posts : 13816
   Posted 3/11/2010 9:07 PM (GMT -6)   
HI Mom to 3,
I'm really sorry to hear how bad you are feeling right now. What about doing some small things to help?? I drink a cup of cammomile tea (I use Celestial Seasonings Sleepytime tea), lavender oil by my pillow, and about an hour of quiet time (no computer & no t.v.) before trying to sleep.

I use the detox bath that is spoken of on here to help with some of the "body buzzing". I also use heat to help sooth the part of me that is buzzing. If it is my legs that are the worst I use heat on my lower back, if it's my arms, the heat goes up to the base of my neck.

If your entire body is driving you up a wall with the buzzing, try starting with heat on your low back to sooth your legs first.

It is incredibly important to get as much rest as you can, even if you can't actually sleep, just lay still so that your body can get a little rest.

Hope you find some relief soon,
~Trav
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4027
   Posted 3/11/2010 9:19 PM (GMT -6)   
Some think that treating Lyme without treating coinfections (such as Babesia) enables the coinfections to surge forward while the Lyme is getting beaten back...thus no relief from the treatment for Lyme. Also agree yeast could be contributing. If I were you, I'd try to get something for the Babesia and yeast also...
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


great expectations
Regular Member


Date Joined Feb 2010
Total Posts : 53
   Posted 3/11/2010 10:47 PM (GMT -6)   

Hi

In a previous post it was mentioned that lyme patients often have low cortisol in the day and high at night...this can be an early sign of adrenal insufficiency.  I can only speak from my experience...I have lyme, co-infections, hypothyroid and Addison Disease.  Sleeping problems, hypoglycemia, and adrenaline rushes were some of my early symptoms of Adrenal failure. 

My cortisol levels would drop too low and then my blood sugar would fall too low...when the body does not have the ability to produce the cortisol it needs to keep the blood sugar from continuing to plummet it reverts to its' emergency backup...adrenaline.  So I would wake up at night sweating, heart racing, wide awake because I had had an adrenaline rush to bring the blood sugar back up.  At this point if I tested the blood sugar it would be high because of the adrenaline, but would not stay stable.  It would begin to drop because the cortisol is what stabilizes the blood sugar.
 
Many low cortisol symptoms can be the same as lyme...muscle aches, joint pain, brain fog, nausea, feeling irritable, depressed, etc. 
 
The only way to know for sure if adrenal insufficiency is a problem is to run tests on cortisol and aldosterone levels, ACTH, DHEA-S, and the ACTH stim test is the gold standard for diagnosing adrenal problems.
 
Unfortunately, my experience has been that many, many drs. do not acknowledge adrenal insuficiency, especially if you don't have the hyperpigmentation (darkening of the skin).  If the adrenal problems are caused by lyme and infections the hyperpigmentation often does not develop because of the more rapid onset. 
 
All of this is to say that low cortisol could be contributing to your problems, but you will need to find a doctor who will listen to you and run the right tests to know for sure. 
 
Hope this is helpful.
Feel better soon :-) 

KO-LD
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Date Joined Aug 2007
Total Posts : 887
   Posted 3/15/2010 12:17 PM (GMT -6)   
I agree with CajunGrl, I had a saliva test done and it showed that my Cortisol was low in the am and early pm and high at night when I am trying to sleep.  The doc not a LLMD but one that I am seeing for Bio-identical HRT, put me on Hydrocortisone.  It makes my stomach upset if I don't have enough to eat.  I am sleeping better,  more soundly and am able to go back to sleep when I wake up to go to the bathroom.
KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


Meeker1128
New Member


Date Joined Dec 2012
Total Posts : 10
   Posted 2/19/2013 5:56 PM (GMT -6)   
I recently found out I have babesia. I suffer from anxiety and I had a serious issue with my blood sugar the other weekend. I was hiking in the backcountry and alsmost had to get evacuated out. Barely made it out on my own two feet. I believe my blood sugar dropped super low. I am not that knowledgable on this yet but I think my adrenal glands are trashed. They regulate anxiety (fight or flight reaction) as well as blood sugar (cortisol). I don't know if adrenal glands can be fixed or if once they are trashed its something you just live with. Any info would be welcome on this subject.

Julie61012
Regular Member


Date Joined Dec 2012
Total Posts : 33
   Posted 2/20/2013 10:50 PM (GMT -6)   
I have one last point to- which is that if you are supporting your adrenals, and not supporting your thyroid you can get these type of symptoms. And the same goes in reverse. Before I knew I had Lyme I was taking thyroid meds - but not adrenal support, and my adrneals were going nuts! Once I supported both, things got much better. Now I find that I just have to keep my stress down, and my diet as perfect as possible, and my adrenals are much better.
 
Healing thoughts to all.
 
Julie
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