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Mom to 3 kids
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 3/18/2010 4:09 PM (GMT -6)   
still suffering severely..symptoms are horrific...no rest...the humming and vibrating is killing me..cant take it anymore...i feel i need something to relax my nervous system...but im afraid to take something cause i took the ativan a year ago and spent a year and half on and off it..so im so scared...my body isnt relaxing at all..its need some peace and rest...dont know what to do...been off the antiboitcs for about a week and still horribly sick on or offf them...doc gave me ceftin but pill was so large couldnt swallow...and he says i can go back on doxy ..just dont know what to do..so sick...cant take it much longer..the suffering is horrifc...fingers always ice cold..too..never any rest or peace...

GWB
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Date Joined Jul 2005
Total Posts : 570
   Posted 3/18/2010 4:14 PM (GMT -6)   
Can you get some Xanax to calm you down?

Gary

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 3/18/2010 4:56 PM (GMT -6)   
I have been on ativan for quite a while - it helps a lot. There is a natural product called GABA. It helps calm things down, though not as well as prescription meds.

I hope you find something that works. I know that horrible vibrating feeling.

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 3/18/2010 6:08 PM (GMT -6)   
Xanax would probably do the trick for your nervous system.....it really helps me...sometimes I take 2 tsp. of childrens benadryll with the xanax if it's really bad. I hope you feel better soon.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 3/18/2010 6:14 PM (GMT -6)   
Magnesium citrate has really been helping me out alot. I had the buzzing and vibrating really bad and it has almost disappeared since I started the magnesium. I have also been sleeping really well lately too. I take two 100mg right before bed and I am now sleeping sound again. I havent slept this good in about five years. If you decide to try it, give it at least a week to see a difference.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 3/18/2010 7:34 PM (GMT -6)   
I agree with CajunGrl about the Magnesium Citrate. It's a good relaxer of the muscles and it can also help you keep regular if you have problems in that area too. It's helped me tremendously when I had muscle cramps in my neck which were very painful. Give it a try and see if it helps.

Gary

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/18/2010 8:11 PM (GMT -6)   
I agree about magnesium. Try to get an injection of it if you can.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 3/18/2010 9:59 PM (GMT -6)   
I still don't get it about magnesium -- some say none for Lyme, yet others feel it helps. Any answers on this?

I will recommend xanax for those who feel they can use it w/o ending up w/ an addiciton problem. For me, right now, it helps a lot and when I am more well (?), then I will work on any addiction problem. My dose is not that high and having been on it for several years, I am still able to use various doses.

NOte that xanax does not relieve my buzzing, throbbing and burning. It does help anxiety that is physically painful and which includes muscle spasms affecting total body and which have recently started burning like crazy.

Everyone is different. But I immediately thought of xanax when you said you are not able to relax your nervous system. If you can tolerate it, xanax will help you with that.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/19/2010 3:51 AM (GMT -6)   
i sure would love to hear about the magnesium yes or no also.
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/19/2010 5:37 AM (GMT -6)   
The magnesium issue:

The body ceases to function without magnesium.  Magnesium is one of the critical electrolytes that the body needs for nerve and muscle (muscles include: heart, diaphragm/lungs, blood vessels, gastrointestinal tract, arms, legs, etc.) function. 
 
Also, there are over 300 magnesium-dependent enzymes in the body that do things like make energy for you to be able to get out of bed, etc., digest your food, cellular metabolism, etc., that are also of critical importance.  Some medications (such as Lyme treatments, pain meds, etc.) may not even work if some of these enzymes cannot do their jobs right...

My personal opinion is that magnesium is too important to not include in a daily diet or supplement routine.  Yes, some may go towards the Lyme, but if no magnesium is going into the body, then you get Lyme damage AND magnesium deficiency damage.  Avoiding magnesium isn't worth it in my opinion...


-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

Post Edited (Razzle) : 3/19/2010 5:41:23 AM (GMT-6)


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 3/19/2010 8:06 AM (GMT -6)   
When I was having a lot of trouble with nerve issues, my llmd said I should be taking B12. It helped a lot.

Hope you get some relief.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 3/19/2010 9:26 AM (GMT -6)   
Hang in there, Momto3. Start slow, but do start something to help you get through this period. It doesn't necessarily mean that you will have to stay on it forever. Maybe your body just needs a little help to get past this. I know that was how it was for me. I was just stuck in this rut of pain & anxiety & couldn't find my way out. I don't like having to take a bunch of pills for any reason, but know that I must. I have several 'scripts I have to take daily, and have come to understand that there will be times when I'll really need others to help with elevated pain levels, or anxiety, and depression.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/19/2010 12:48 PM (GMT -6)   
razzle, that sure makes sense what you explain about the magnesium. I am wondering if some doctors say no magnesium while being treated but after you start putting the magnesium back in the body?

I will ask my doctor next week. I have one more week to go of this 8 week thing but may be on doxcy pills after this.

I'll let you know. I am wondering if my problem with my left heel is from magnesium deficient.

Is the magnesium blood test very expensive?
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/19/2010 4:08 PM (GMT -6)   
Bucci,

I don't know how much the magnesium blood test is - insurance pays for most all my labwork and all I have to pay is the 20% coinsurance...

Yes, heel issues can be from nutritional deficiency...Vitamin B12 helps with bone spurs, magnesium and Vitamin C help with tendon issues, etc. How much Vitamin C are you getting?

I wouldn't avoid magnesium even during treatment...but that's my opinion. There are things one can take to break up the biofilms/cysts, such as grapefruit seed extract, proteolytic enzymes, heparin, etc., so I see no need to completely remove magnesium from one's diet/supplements.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/19/2010 5:47 PM (GMT -6)   
I agree with razzle. I have noticed huge differences with supplementing mag. Mag testing isnt that expensive. I believe i read that most people are deficient. I get my mag shots form infuserve america. they are pretty cheap but you do need a rx. For me it took a while before i noticed any huge differences in the internal buzzing. I should also say that I do take B12 shots as well.

I am overdue for both and i feel the difference,

If you take things like mag they should be taken away from your other meds as it can interact with things like abx.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 3/20/2010 9:34 AM (GMT -6)   
I have just been taking magnesium for a few weeks now. I was in a huge amount of pain. Since being on the magnesium, the pain has decreased tremendously. I am sleeping so much better too. Last night, I upped my dosage of magnesium and boy did it knock me out. It feels good to finally sleep and not wake up every hour during the night. I had trouble falling asleep too. The twitching, vibrating and buzzing have all gone away. I'm not saying that this is what will happen to everyone that takes it but it does help. My LLMD believes that most people with Lyme Disease needs magnesium, because most of us are deficient. I did a hair analysis a few years ago that shows I am deficient in magnesium.


**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/21/2010 12:12 AM (GMT -6)   
this all makes sense to me especially while I am now on a fentynol patch for pain. I sure would rather be taking magnesium but I have one moe week of this program so I will do what the doc says. He specifically pointed out to me that Fry Labs did a big discovery on this. anyone know about that.
I was told that they felt that people were relapsing and they figured out it was the magnesium but who knows how far down the telephone line that info was.
But my doc even said not to take even the epson sat baths. he wants me to get all my magnesium from food.

I am too constipated without it also.
hep c , lyme
Dad has lyme

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