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bucci
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Date Joined May 2006
Total Posts : 1477
   Posted 3/21/2010 9:22 PM (GMT -6)   
Gary, did Jerrigan say anything about lyme people having thick blood?

I told everyone this before .. I was put on heparin and it has helped my one sided headaches neck and face thing go down
and when I try to cut back on it i feel the preasure in my head starting up. He told me he wanted to increase my dose but I didn't for 2 reasons.
#1 it is very expensive if you buy it in the bottle and you draw up your own dose.

and for some weard reason the prefilled sticks of 50 dose is half the price of buying bottles and syringes.
So the refilled are only 50 and he wanted me to take 60.

I think it goes according to your weight.

the other reason is I think heparin makes your bones thin (or something like that)??

is anyone else out there on blood thinner. I felt like I was having mini seizures before I got on it.
my head was like a bowlling ball too heavy for my neck.
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/21/2010 9:32 PM (GMT -6)   
Heparin thins the bones? Yikes! I wonder if Vitamin D would help to counter-act the bone-thinning...

Ok, what about the proteolytic enzymes such as Nattokinase or Lumbrokinase - do they thin the bones too? I just got some Nattokinase to try, but need to be careful due to very low bone density...

Thanks,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/21/2010 10:54 PM (GMT -6)   
hi Razzle..how are you feeling? doesn't the natkanoeese help PULL the toxins out? is it used as a blood thinner.

I am doing shots 2x a day heparin? does taking calcium even help at this point or is that dangerous too. I read something
about people feeling more arthritic on calcium because they weren't digesting it or converting it or some thing weard so it was making joints hurt even more.
hep c , lyme
Dad has lyme


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/22/2010 1:56 AM (GMT -6)   
You are on steroids, so you need to be taking calcium (at least 2 hours apart from taking steroids or iron supplements, though). What form of calcium do you take? Tums is calcium carbonate, which is very poorly absorbed & metabolized. Calcium Citrate is a much easier form for the body to use. My favorite form of calcium is Calcium Hydroxyapatite, which is derived from the bones of cattle and contains most of the nutrients needed for healthy bones...Vitamin C taken at the same time as calcium helps with absorption and utilization of calcium as well.

The nattokinase I haven't tried yet...waiting to ask my LLND about it this week. But I have heard that it can help bust up Lyme biofilms and possibly also cysts...it also is a blood thinner.

Feeling better now than I was a few weeks ago (major leg pains from herxing from the Doxy)...my LLND will probably up my dose again...he's going slowly with me because of how sensitive my system seems to be. I'm currently alternating 100mg on one day and 200mg the next, then back to 100mg, etc. I hope he ups it to 200mg every day...I want to kick some more Lyme butt, LOL! February and April are usually my "bad" months, and I was herxing in Feb....so we'll see what April brings. It is nice to not have the hip-to-toe leg pains hitting me so often.

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 3/22/2010 7:41 AM (GMT -6)   
Hi All,
I was wondering if any of you knew of a calcium supplement that DOESN'T cause or encourage constipation? I have some serious issues with const. & for some reason the types of calcium that are usually offered really give me issues.

Two doses of calcium & my intestines just stop. Docs always tell me that I need a high fiber diet - I already have one I stick to, so that's no help. I also take fiber supplements, but none of that helps once I start taking calcium.

I really do need the calcium, as of about 5 years ago I was already in the beginning stages of osteoarthritis (osteopenia). I will be getting a bone density test next month to see where I stand at this point in time & expect to be told that I have to start on the calcium again.

Thank you in advance for your opinions,
Trav
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 3/22/2010 5:43 PM (GMT -6)   
Traveler,

Do you get any magnesium with your calcium? That usually helps to offset the constipating effects of calcium (at least, it works for me). Most find a 2:1 ratio of Calcium to Magnesium helpful. Also, if you take Vitamin C with your calcium, it should help with absorption and also may help to offset the constipating effects.

Make sure you are drinking plenty of fluids throughout the day, too, to help that fiber do its job.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/22/2010 9:09 PM (GMT -6)   
Hi Razzle.. ha ha so of course you know..I am not taking ANY calcium.

why? I have no idea? do I need it???? of course.....!!!

I am so dizzy about whats the good what's the bad I don't know if I'm up late or out early.

also you know I am on the NO magnesium plan right now for almost 8 weeks and that was
my best thing for constipation too.

I think because I "read" somewhere about the calcium not getting absorbed and making people feel arthritic?

so I definitely am seeing the doctor this week and getting the calcium thing straightened out.
is there a homeopathic calcium?

has any one tried TRYPHALA for constipation. I think it is starting to help me.
hep c , lyme
Dad has lyme

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