IV Antibiotics?

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nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/24/2010 12:53 AM (GMT -6)   
I'm just wondering what's involved in IV abx after one gets the PICC line or port. I mean, do you usually go to a hospital or clinic everyday to get the abx, or can you have them administered at home? How long does a "dose" take? Are there side effects? How many weeks do you need to take the IV abx?

Any info would be appreciated....I'm still trying to figure this out.

Thanks,
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


1hunter
Regular Member


Date Joined Oct 2009
Total Posts : 70
   Posted 3/24/2010 5:14 AM (GMT -6)   
thanks for asking this question... i was going to ask the same thing.  but also when would a Dr. prescribe  IV antibotics instead of oral? Is it every day? Do you have to have a Picline or port? is it where people can see it?

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/24/2010 5:54 AM (GMT -6)   
I was on IV-Rocephin for 30 days. They inserted the picc line in the Radiology Department at my local hospital using flouroscopy exray type machine to guide the picc to the proper location. They use lanicane to numb you up first so there is no pain, just a little pressure.
They administered my first dose in the infusion center at the hospital.

A visiting nurse came to my house to instruct my wife and I how to administer the Rocephin and flush the picc line with saline and heperin. Each week they shipped a new batch of medication and supplies directly to my house. I would administer the Rocephin once each day at 6PM for me. The visiting nurse (Nancy) would come to the house once a week to clean and replace the dressing that holds the picc in place. You need to keep it dry, I would wrap serran-wrap around my arm to keep it dry when showering.

I did have a reaction to the Rocephin initially. Itchy armpits and hives. My doctor gave me an eppy pen and made me promise to never administer the medication without someone around. The hives seem to stop once my body adjusted to the medication.

IV-Rocephin for me was a huge improvement over Doxycyline which absolutely killed my stomach.

Good Luck
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 3/24/2010 6:40 AM (GMT -6)   
IV Rocephine made me feel the best and got me feeling better faster than any other oral abx.

When you go in to have the Picc line in which can be done in the hospital or at the clinic depending on how things are set up
with you doc. I was nervous about the unexpected and it helped so much to be giving a valium or something to calm your nerves.
You cannot be tense at all they only have a short period of time to get that line in once they start. The second time I had my Picc
they tried three time before they were successful. And they can only try in one place and then move to another.
Once the line is inserted they will take an x-ray to see if the line is placed in the correct place. (in to far or not enough)
My meds were giving to me at the LLMD office were they prepared the abx. I was giving a weeks supply of abx they came in a
lil ball with a balloon of med inside which is pressurized and everyday around the same time would administer my abx thru my
Picc line and weekly would go in to the docs office and get a dressing change and another weekly supply of meds.
Very important when getting a dressing change. The nurse will clean the area with Chloraprep or Alcohol. It will burn slightly,
DO NOT BLOW on it for that wound is open. Make sure the nurse lets it dry completely before applying dressing. You could get irritation
and or blisters. I was allergic to the chloraprep and got blisters and rash under my dressing.....VERY ITCHY! So if you know you can
handle the alcohol I would not even try the chloraprep. The Picc line can be unconfortable at times but I feel that if it inserted in a
good place you should not have a problem with comfort. There is a sleeve you can buy to cover the area while showering, I never got
one but wish I did. Cant remember who on here used them but you can get them offline and sometimes certain pharmacies.

Good Luck with your Picc line and on to better healing
 


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/24/2010 7:49 AM (GMT -6)   
Hey Nasa ..congratulations..so glad you are getting IV!!!
Mine was a breeze going in. In fact it was the easiest proceedure I had ever had done in the hospitol.

These people put piccs in all day long. I was amazed. I never felt it and then after you go get an xray so they can see exactly how well it was placed. It was very kool.

I am on IV Zethromax 3 times a week and I do the 3 hour bag of EDTA before but that is not what everyone does.

Don't know what meds you are getting ????

I will find out friday if I have to do anymore IV or I may go on pills now.

But my series lasted 8 weeks.

I hear great things about the richipro. My cousin did it for maybe 4 to 8 weeks? I can't remember but she has bee fine for
over 6 months.

good luck. Did you ask them about heavy metal chelation while you have that pic line in? I felt like it really helped me.
I did it 3 times.


Also I got the pic line that didn't even need flushing over the weekend. They used to have to get flushed everynight but I don't think mine even gets flushed unless I use it even more than 2 days. You will probably get the latest also.

so happy for you

xxxx
hep c , lyme
Dad has lyme


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 3/24/2010 5:06 PM (GMT -6)   
thanks for asking. I am also waiting on insurance approval for IV. However, dr. told me someone would come out to house to put line in? yikes. also, how long does it take to do the IV at a sitting?

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/24/2010 5:45 PM (GMT -6)   
Thanks everyone! I'm still trying to find a doctor who can help me get the port or picc line.....my primary care doctor won't do it. She referred me to an infectious disease person who said they don't do Lyme and they sent me to another one who also won't do it. So I'm waiting to see my hepatologist, rheumy, and neurologist, hoping that one of THEM will be nice and help me get a port. 'Cause I don't want to have to fly up to Northern CA (where my LLMD is, I'm in SoCal) to get the port installed. shakehead

Bucci, I'm supposed to get tested soon for the heavy metal thing....they're sending me several kits in the mail and one of them is a hair test kit so it must be for heavy metal....?

Thanks again for your responses....if anyone wants to answer springsjean on how long does one IV dose take, I'm interested too! :-)
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com

Post Edited (nasalady) : 3/24/2010 6:25:39 PM (GMT-6)


betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/24/2010 6:48 PM (GMT -6)   
My dose took about 10-15 minutes per day tops. I injected it into the picc using prepackaged syringes. The syringes screw into the picc line leads.
I had two lines, one they drew blood from once a week and the second one I used for my Rocephin dose.

Line-1 Flush(saline) Flush(Hepprin)
Line-2 Flush(saline) Dose(Rocephin) Flush(saline) Flush(Hepprin)
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/24/2010 9:00 PM (GMT -6)   
Thanks betterhealth!
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 3/25/2010 7:49 AM (GMT -6)   
I have been told that they usually do not use a port for this kind of treatment. I asked and wanted one myself
because I knew how easy they were to take care of. Most ports are used for long term use of meds. Picc lines
are for shorter periods of administiring the meds.

I have never heard of a 2 line Picc. My nurse would take the blood sample every week I went in for dressing change
from the one line. Since my meds were in a pressurized ball it would take about 30 to 45 min a day to administer the
meds. Most all the nurses will go thru everything with you on how to take care of the meds on your own so you dont
have to have a nurse come to your house on a daily basis. That cuts some costs. And I would go to the clinic and get
a dressing change everyweek, along with blood work, and supply of another weeks worth of Rocephine.

Hope this helps
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/25/2010 9:32 AM (GMT -6)   
Thanks Harley!

I was talking to bucci yesterday, who confirmed that the picc line is a better option because it's easier to install and probably won't raise red flags with insurance companies as much as a port would. I'm starting to worry that the insurance company won't cover some of these things!
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 3/25/2010 11:22 AM (GMT -6)   

It really does depend on what your insurance says. When I had my P-Line put in, I went over to the Lyme Center, they did my first IV drip for me there, then I had to go to the office 3 times a week and the other 4 days I was given all the supplies (syringes, heprin, alcohol wipes, lines, and the frozen abx) I had to bring a cold type bag so I could keep it cold, it really was not a big deal cause I lived pretty close. I was a little nervous at first, which is only natural, but then you start to get the hang of it, and I would drip in the living room while watching TV. Hubby installed a hook that was attached to a speaker in the house where I could put my IV bag. But then I know some people from the office that had to go every day because of their insurance.

 

 
 
Hopegirl... 
 
Taking it one day at a time.... 


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 3/25/2010 11:27 AM (GMT -6)   
Oh and it does depend on what type of ABX you have, some people had this automatic drip thing and they would have to drip for a long time (2 hrs or so) but I had roceph so you can adjust the dripping time accordingly, they told me it should take around a half hour to 45 mins, at home I usually took around 20-25 mins, as I would let it drip a little faster, not saying that is right, but my body could tolerate it going in a little faster, but everyone takes to the meds differently. Best of luck to you all that are waiting!!
 
 
Hopegirl... 
 
Taking it one day at a time.... 


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/25/2010 11:48 AM (GMT -6)   
about the picc line vs port. definitely picc is easier to get . but also there is apicc line that is great that doesn't need flushing except for after you get the abx. but it doesn't need flushing over weekend when I am not getting treated. not all piccs are like that. some you have to flush every night
hep c , lyme
Dad has lyme


1hunter
Regular Member


Date Joined Oct 2009
Total Posts : 70
   Posted 3/25/2010 5:22 PM (GMT -6)   
where is the picc line located? can people see it? would it get in the way while working? I work at a factory... is there any other options?

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/25/2010 5:43 PM (GMT -6)   
Mine was located in my left arm, on the inner side of my bicep. The sleeve to protect it kept it mostly above my elbow. I wore long sleeve shirts to conceal it while at work. My left arm was pretty much useless when the picc line was in. They told me to not lift anything heavy or have my blood pressure taken with that arm. I would get a pain in my arm if I used it too much.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 3/26/2010 9:46 AM (GMT -6)   
Ditto on what BetterHealth said
 
 
Hopegirl... 
 
Taking it one day at a time.... 

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