Sacroiliitis anyone?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 3/27/2010 6:01 PM (GMT -6)   
Anyone diagnosed with Sacroiliitis?
KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 3/27/2010 7:08 PM (GMT -6)   
Hi KO: I just went to my doc last week with severe low back pain. She started with pap smear etc and I see her again in a few weeks. I just googled this condition and I even have the elevated temp and eye problems I was blaming on the Lyme. Does this condition come along with Lyme or something completely different. Did they take an x-ray for diagnosis?  I have had such pain and stiffness I have a hard time getting out of a chair. What are your symptoms? I am afraid that steroids is the treatment normally, am I right?   Thanks  Dowa

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 3/27/2010 9:18 PM (GMT -6)   
Hi Dowa,
That's what I was trying to figure out (if it has to do with Lyme or not).  I also have eye problems mostly pain in my right eye that comes and goes.  My biggest problem was joint pain in my hips.  I would get so stiff if I sat in a car or in a chair for any length of time.  I have been having a real hard time sleeping on my left side, I have pain in my right hip, but not as bad.  It has gotten progressively worse over the years.  The Rheumy I saw about 3 years ago wanted to do a bone scan to "rule out scary things"  he acted like there wasn't anything wrong, when I explained that I was very active in sports etc and went to where I couldn't even take a walk after dinner without severe pain in my hips.   I started to go to this doctor for bioidentical hormones and although he didn't come out and say he doesn't believe in chronic lyme I don't think he does.  He gave me what he called accupuncture with homopathic injections.   It wasnt't what I remember accupuncture looking like, it looked more like just a syringe that you give a shot with.  I didn't have him write it down, but I have to say that for the first time in a very long time I could sleep on my side without pain, without waking up all night and it was wonderful.  I am going to Florida on Monday and I hope it last the whole time I am there!  It sounds like the effects are suppose to last awhile.  Take Care, KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 3/27/2010 10:17 PM (GMT -6)   
Hey KO,

Are you still on the hydrocortisone? How is it working for you?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 3/28/2010 10:21 AM (GMT -6)   
HI CG,
Yes I'm still on the Hydrocortisone.  I am only taking it in the AM not 8am and noon.  I can't tolerate it if my stomach doesn't have enough food in it.  I haven't noticed any big difference in how I feel, I don't know if it's because I'm not taking 2 doses a day or not.
KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 3/28/2010 1:39 PM (GMT -6)   
When I first started taking 10mg in the AM and 10mg in the evening, I noticed a HUGE difference. I was up and about, doing things I hadn't done in over a year. Well, I started weaning off to just 10mg a day and all my symptoms were returning. My doctor put me back on 10mg twice a day again and I am starting to feel a little better. I wish I hadn't gone down at all now. I am noticing too that I am now having more good days than bad. I don't know what the steroids are doing but they are doing something. I don't want to be on them long term though.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 3/28/2010 1:41 PM (GMT -6)   
Oh, and I had more energy too which was a BIG change for me. Since I went down and am now trying to get it all in my system again, I've been fatigued again. I am almost positive that it is helping my adrenals from all the energy I had on the larger dose. Hopefully, my body gets back that way again. It was nice while it lasted for sure.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 3/31/2010 10:10 AM (GMT -6)   
Can you guys share why you're taking hydrocortisone?

PS - I have been dx'd with sacroiliitis before.

Take good care!

Cara
*Oral Abx Combo Tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '05; Essential Tremor ’02; Fibromyalgia ’00; Osteoarthritis; Depression; IBS; Interstitial Cystitis


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 3/31/2010 1:27 PM (GMT -6)   
Most on here that are taking the HC do so for Adrenal Fatigue.
 Co-Moderator
Lyme Forum


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 3/31/2010 10:24 PM (GMT -6)   
Oh OK, thanks. Adrenal fatigue is something my GP (BC, Canada) would never bring up.

I'm sure my adrenals are as fatigued as I am!
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 22, 2017 8:44 PM (GMT -6)
There are a total of 2,885,859 posts in 316,659 threads.
View Active Threads


Who's Online
This forum has 157748 registered members. Please welcome our newest member, gagsa345454545.
408 Guest(s), 13 Registered Member(s) are currently online.  Details
Africa99, PeteZa, gagsa345454545, Hoagie, suzieq521, The Dude Abides, mpost, NewspaperLover, OptimisTick, mareish, fighter87, SDGDH, GaryDouglas


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer