How do you feel off abx?

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Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 4/3/2010 4:53 PM (GMT -6)   
Have been off all meds for 3 weeks due to stuff that would take too long to write. Hoping to figure it all out and start again soon.

The first 2 weeks off were better than I thought. Felt ok, not great but not too bad either. Now just starting to have twitches, burning feet/heels, crazy insomnia although I am SO tired.

After over a year of meds is this normal for it to start creeping back? Wondering if anyone has any insight?

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 4/3/2010 5:08 PM (GMT -6)   
After a year of a couple of different abx (Cipro, then switched to Ceftazadime), I still went downhill when I was tapered off the abx last year...and am struggling even now to return to where I was when on the abx, even though I've been on Doxy since January.

From what I understand, it is pretty common for symptoms to return when one goes off abx if treatment hasn't continued long enough... Have you talked with your LLMD about this?
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 4/3/2010 5:49 PM (GMT -6)   
Talking to doc this week. I have never been off meds this long. Guess just trying to cope with the magnitude of this disease. Meaning how long it takes to get well and will that ever happen. Hoping for more answers this week.
Razzle- has your crp ever been elevated?

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 4/4/2010 4:13 AM (GMT -6)   
Very rarely (possibly a lab error, that's how rarely...)...usually it is my ESR (Sed Rate) that's elevated.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

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