Welcome to the forum! I am sorry you are having trouble finding things. I have neuro Lyme, so I know how difficult it can be. Let me know if you need help:)
As for the CFS diagnosis, you may still have it. Lyme causes CFS and Fibro in some of us. I have both.
Most of us that have Lyme, also have or once had Ebstein Barr, CMV, HHV6, Cytomegalovirus and a few others. Lyme Disease suppresses our immune system thus causing us to pick up these viruses that we wouldn't normally pick up with a healthy immune system.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**lymediseasethroughmyeyes.blogspot.com/
Co-Moderator Lyme Disease Forum