stomach issues

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AnneRoto
Regular Member


Date Joined Jul 2007
Total Posts : 267
   Posted 4/10/2010 5:34 PM (GMT -6)   
w
Who has gastrointestinal issues as their primary problem?  And what have you done about dealing with it?

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 4/10/2010 8:32 PM (GMT -6)   
I had severe gastrointestinal issues last summer after first being diagnosed with lyme. It started with Gerd and gradually moved through my entire intestinal tract. At one point I became totally blocked, bloated and was miserable. I had been prescribed Aciphex to help with the acid issue and when I was hospitalized they gave me some heavy duty laxatives. Lyme had paralized some of the muscles that are used initiate a bowel movement. It took about six weeks for me to totally recover. And then is was completely gone.... no more issues.

I haven't seen any recent posts here regarding gastrointestinal issues but I certainly had problems with it. Lyme has attacked nearly every system in my body, I even contracted lyme related iritis in my right eye. I had never experienced any medical issues and was in perfect health prior to getting lyme in June 2009.

Hope this helps.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 4/11/2010 4:03 PM (GMT -6)   
Yes, GI problems are my most significant issue from Lyme/coinfections. I have motility problems all the way throughout my gut, some nonspecific inflammation, small bowel blockage issues, problems with muscle coordination, and am unable to swallow liquids. My stomach periodically shuts down and I am unable to tolerate any food or drink during an episode. I am still on partial IV nutrition (TPN) because a major attack hit me in 2008 and it has been a big struggle to get my gut back to tolerating anything.

Here is a website with more info on how Lyme can mess up the gut:
http://thehumansideoflyme.net/viewarticle.php?aid=62
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3455
   Posted 4/12/2010 9:33 AM (GMT -6)   
My main problem is ulcertive colitis. I have bloody stool and diarraeh, never constipated always going. Long and skinny stools and always mush and smells to heck!  I have accidents all the time and always when I'm driving. I can't hold back my gas and when I go it's always with liquid mucus. I haven't had a dry poop in 5 years! It's terrible and I wish this on no one. It's dreadful. I'm on a lot of antibiotis, Bicillin shot, zithromax and I just tried Flagl and stopped it. I'm hoping to try Tini next. I just told my doc I can't afford to see him every month at a $160.00 out of pocket expense not covered by insurance. Is this high?
 
I have to take my anti inflammatories for my UC, time released mesmeline. I take oral Nystantin again, since Flagyl tore me up.
 
I have much more energy and feel better since taking antibiotics but isn't my gut getting better? I poop for over a hour straight in the morning, basically "dumping syndrom" when I go.
 
 
 
 
 
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics (for 10 days here and there), not much better. Supplements: No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, stopped those.Started Bicillin injection 1/12/10, once a week of injections.On Zithromax and Flagyl as well, about 2 year protocol to rid myself of bacteria Babesia, Chylmadia Phenomia and Borresliosis. Taking Oxy Aloe Flush and liquid vitamins, curcumin and CO Q10


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35706
   Posted 4/13/2010 3:25 PM (GMT -6)   
I also have some serious issues with my intestines. I deal with psuedo- blockages, sluggishness, and am pretty sure I have mal-absobtion issues as well. I have taken dicyclomine for almost 10 years now to help with the cramping. I eat a very high fiber diet, using a fiber powder frequently to be sure. I also have started 'making' my own Kefir, which has helped a lot.

This is one of my biggest concerns, as (in my humble opinion) if the intestines are not working very well, one cannot rid the body of a whole lot of waste & toxins.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/17/2010 1:27 PM (GMT -6)   
I was put on Super Aloe Vera Juice for my intestinal tract. I take it with my probiotic and 2 slippery elm caps.
So far thats not a problem I have.
Aloe is anti-viral, anti-inflammatory and antibacterial. Dont tast too bad either.
Just my 2 cents...

IndiaBeth
Regular Member


Date Joined Jul 2012
Total Posts : 38
   Posted 7/27/2013 7:40 PM (GMT -6)   
I also have stomach issues. That's why I logged in today. No matter what I eat it causes gas, bloating and often diarrhea. I had diarrhea for 3 years straight at one point. Then after abx I got better, but now all my symptoms are back.

What I want to know is... what happens in the stomach to cause this?

I am lactose intolerant and I get that - it is an enzyme that my body can't process so I need to buy dairy that has lactose added to it. So what is causing this gut wrenching pain and gas?

Kodak- I will add aloe to my diet. That sounds great.
35yrs. Female. Diagnosed with Lyme '09.

Healing98
Veteran Member


Date Joined Jul 2013
Total Posts : 1214
   Posted 7/27/2013 8:31 PM (GMT -6)   
I too suffer from stomach issues. One of the early symptoms that I had after being bitten was stomach pains. The doctor put me on Omeprazole (40mg x 1d) and also gave me an endoscopy. The endoscopy came back positive for some sort of bacteria, which the GI doctor said that it was probably H. Pylori. At this point Lyme was not even in the radar. Looking back, I think that what they found was Lyme and not H. Pylori. The lab could not confirm what it was because they said that the Omeprazole probably killed the bacteria. The endoscopy also found that I had gastritis and an inflamed esophagus. It has been a year now and I am still on the Omeprazole.

As for symptoms, I have regular bowel movements. The feces is a light yellow or greenish (too much information?) and it is supposed to be brownish. My GI says that it is because the low acid in my stomach doesn't allow my body to fully absorb all the nutrients from the food. I went from 189lbs to 161lbs in a matter of weeks, looked like a skeleton and was very pale. I eventually gained some weight back to where I am at 169lbs now.

I do expel lots of gas but that is a side effect of the Omeprazole. I also suffer from stomach cramps and chest pains. I can not eat fried foods, nuts, soy, dairy, gluten, sugar, citrus, tomatoes, ketchup, onions, spices, black pepper, or garlic. I cannot drink alcohol, caffeine, soda pop, lemonade, coffee or tea with caffeine in it. When I eat any of the above I cramp real bad, get the worst chest pains, palpiatations, rapid heart beat and the anxiety kicks in for at least a day. In the beginning, I went to the ER three times because I was sure that I was having a heart attack. That's how bad the chest pains were. Every time they did an EKG and said I was fine. The said it was anxiety and was prescribed Valium and Xanax. I eventually learned to ignored the chest pains and to not panic.

I tried Aloe Vera juice and got palpitations and anxiety real bad after the first drink. I never took it again. I did OK with DGL (licorice) but eventually I stopped taking it. I also started to take probiotics but after I learned to eat properly I stopped them too. Now that I am on antibiotics I guess I will have to get back on them. They are kind of expensive.

TICKLEDPINK
Veteran Member


Date Joined Jul 2012
Total Posts : 914
   Posted 7/28/2013 2:49 AM (GMT -6)   
Hi Again,

I had terrible problems when I was on Doxy,I went down to 94 lbs,I'm normally slim but that was ridiculous!

Continual diarrhea and nausea made my life a misery until Denise aka Deejavu recommended Green Vibrance,it worked wonders smilewinkgrin

It is expensive but worth it,in my opinion,google it and you'll see what's in the stuff.

It tastes disgusting,but as I always say,I would drink putrified camel dung if it helped.

Tickled

Post Edited (TICKLEDPINK) : 7/28/2013 3:17:28 AM (GMT-6)


Garden Peace
Forum Moderator


Date Joined Sep 2012
Total Posts : 4191
   Posted 7/28/2013 1:10 PM (GMT -6)   
We have digestive problems, but my daughter is the worst. She recently started taking a chinese herbal product that is helping her. Shen Ling Bai Zhu San, ginseng and altractylodes formula. It's one I'd suggest you talk to a doctor about before taking it, one trained in oriental medicine. It's from KPC Products Inc. Our doctor put her on it.

I just take digestive enzymes and they help with the bloating and gas. I also drink Kombucha, a little at a time, for the probiotics and enzymes.

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1486
   Posted 7/29/2013 3:45 PM (GMT -6)   
I spent most of the last year with GI problems as my primary concern - a lot of pain, constipation, unbearable gas and bloating...I was just miserable all the time. The one thing I know helped was really good probiotics, and lots of them, and also going off antibiotics. I got to a point where my doctor and I agreed that I just couldn't make any progress while my digestive system was shut down, so antibiotics were doing more harm than good for me at that point.

My doctor also put me on an herbal formula of wormwood, cloves, and black walnut for parasites - I can't be sure if I ever had parasites or not (she didn't even bother doing a test because they're not particularly accurate, supposedly), and digestive enzymes. Basically I had to stop doing damage to my digestive system, and then repair the damage that had been done to it, whether from junky foods (my diet hadn't been fantastic at the time either), antibiotics, or possible parasites (parasites will deplete your body of digestive enzymes).

You may also want to look into food allergies. For some reason - it may have been triggered by a surgery, for me - I just started having food sensitivities I hadn't had before. For me, gluten, rice, and dairy were the worst offenders. I cut them out completely for a while, and now that I've healed my gut a significant amount I'm able to reintroduce them without too much trouble. It might be helpful to keep a food diary to see if you can find any connections between symptoms and food intake.

Also, herbal teas helped take the edge off a lot of symptoms - ginger for nausea, chamomile for pain, rosemary for gas and bloating, and then I think fennel for aiding in digestion.

kayla33
Regular Member


Date Joined Jul 2013
Total Posts : 86
   Posted 8/5/2013 9:24 AM (GMT -6)   
Aloe Vera drinks taste okay. Some brands I buy are disgusting, others are nice.

Coconut water tastes good. Can try that too.

I would be getting bowel and gut testing done. Bacteria, worms, other parasites. Leaky gut. etc. All worth knowing what's in there.

Food sensitivity blood panel as well.
/
Newly registered contributer/member, but long time lurker/reader.
Full time researcher and freelance writer. Author.

melgraham
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/10/2014 3:28 AM (GMT -6)   
I have a 12 year old daughter that has been suffering with abdominal pain, headaches, nausea, dizziness, reflux and other minor issues for the past twelve months. No one can diagnose her, other to say that she has certain symptoms and they dont know why. She is now lactose intollerant and gets gastric mucosa in her neck. I am looking into lyme disease but my gp dont agree I dont think as he thinks its all in her head. My naturopath stated that the digestive system doesnt affect people with lyme disease, so here I am wanting more information.
Please help.

At witts end mother.

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1486
   Posted 1/10/2014 11:35 AM (GMT -6)   
Personally for me once digestive issues became prominent it's meant I have to make that my number one focus - everything else has to take a backseat for me.

Diet is really important, but it's so frustrating because often it seems there's no rhyme or reason to what causes GI problems. Things improve when I avoid dairy, rice, beans, and a lot of raw stuff. Lots of probiotics and probiotic foods - also making sure that I don't take my probiotics along with any drugs or supplements that might make them ineffective (just realized I've been taking probiotics with oil of oregano which is not a good combination!).

Bone broth/stock is supposed to be really good for GI health too - I'm planning on adding that into my diet soon. Aloe helps. Avoiding alcohol and stress help. Hormonal changes seem to trigger worse symptoms, so anything to get hormones in check helps me. Also taking an herbal supplement to kill/protect against potential intestinal parasites - never quite figured out if I had them or not in the first place. Sugar is a big one too! Also it helps to keep in mind that there's usually a bit of a delay in when things you do/eat affect your GI system - it's usually about a day or 2 for me.

All of this seems to have gotten the unbelievable bloating and cramping under control for the most part, now acid reflux has become my main issue which is tricky because the acid blockers don't seem to help enough, and long term they're not great for your digestive system because lowering your stomach acid allows for bacterial overgrowth...

Hope some of that babbling was helpful, sorry for being so all over the place!

multifacetedme
Veteran Member


Date Joined Jan 2016
Total Posts : 1574
   Posted 8/15/2016 8:17 PM (GMT -6)   
so grateful for these old threads... relevant for current challenges.
Felt like I was dying in Dec-15, got guidance here, began questing Jan 16 changing diet, lifestyle, Buhner protocol, Zhang protocol. Elisa/Western Blot through one lab negative. IGEN-X IGM ++ band 41, ind band 31 IGg, ind band 41. Herx: cats claw, bactrim, colloidal silver, allicin. responding to treatment. symptom reduction 60%
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