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feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/15/2010 8:36 AM (GMT -6)   
Hello everyone, Im new to the forum but have been a lymes patient for approx. 2 years, had symptoms for 3 but like most everyone else thought it was some other infliction. I tested positive for lymes in Sept 2008 and immediately started bombarding my body with the prescribed antibiotics. My symptoms included tingling in the extremities, facial numbness, crawling skin, muscle aches and joint pain, forgetfulness and of course brain fog and loss of concentration. Getting out of bed was a chore. The antibiotics very quickly helped with the brain fogg and tingling in my extremities, so I felt without question that I was suffering from lymes. I stayed on the antibiotics for a year and six months, no drinking, stayed away from sugar (not easy, I have an addiction to chocolate chip cookies), exercised and ate healthy foods. There were good days and bad days. Over the last 4 months my doctor kept talking about IV treatments but kept prescribing antibiotics. Mind you I've been paying $175 a visit to a specialist who does not accept my insurance, fortunately I have a small co-pay for the medication, but that adds up over 18 months especially when taking multiple prescriptions. I know this story is very familiar to a lot of you so let me get to the point of my subject. Basically i got tired of the antibiotics, I felt I had reached a plateau, and decided I need to try something different, as I also feel doctors just keep prescribing meds to keep pharmaceutical companies happy. But thats a topic for another day. Anyway, in conversation with a neighbor who had suffered from lymes as well, she told me of an acupuncturist she was seeing who prescribed a natural remedy called Tic Tox. She is currently symptom free!! I researched the product on line and found it is produced by a company in France and Switzerland(Laboratoire Nutrival 4 rue Foch, 67450 Mundolsheim, http://soignez-vous.com/2007/02/15/lyme’s-disease-badly-diagnosed-and-badly-treated/). Apparently lymes is a terrible problem in France and in a lot of western Europe. I made an appointment discussed the medication and her own thoughts on lymes. I received an acupuncture treatment (which felt great) and a 1 month supply of Tic Tox. I stopped the antibiotics for 5 days before starting the Tic Tox. during those 5 days the symptoms came roaring back, upon starting the TicTox for the first 8 days, I felt awful, now into my 5th week, I can't remember when I've felt better. Still some facial numbness but most other symptoms are fading away. Diet is still very important, fruits, veggies no processed sugar. I recommend Blue Agave as a natural sweetener. Also plenty of Tea with Lemon and Ginger. And exercise to help with joint and muscle aches. Now let it be known that Tic Tox is not FDA approved, which is why I will not give the name of my Acupuncturist, I dont know how she gets it, but I am going to ask her as I have a visit this week, by the way she is French so an obvious connection. I may be way off with my next thought, but I don't think so, why is something so seemingly helpful so difficult to get and not FDA approved. Maybe the manufacturers of the antibiotics dont want to see it here in the states, loss of income on there part perhaps. Thats just an opinion. Anyway good luck to all, just wanted to get my story out there and will update you next week after my visit.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 4/15/2010 1:25 PM (GMT -6)   
Hi feelingbetter21,

Welcome to the forum! I am sorry you have suffered but I am happy to hear you are feeling better.

I have not heard of the product (Tic Tox) but I am always interested in natural products and how they may help. My family is very sensitive to many things and we are trying to use only natural products to treat the infections. I would like to get a sample of the product to take to my doctor. My doc has a way to test things to find out if they are compatible with one's body. Does the company send out samples? Can you ask your acupuncturist? How much does the product cost?

I Will look forward to your update next week.

Best wishes to you for continued success with treatment,

bablymers mom

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/15/2010 1:46 PM (GMT -6)   
Hi bablymers, thanks for the welcome. I paid $45 for a small bottle of Tic Tox of which I took 3 drops 3x a day for 2 weeks, then 5drops 3x a day for the last 2 1/2 weeks. I still have a little left, and I will be getting another bottle to continue treatment this weekend. When I first met with her I was to anxious to start the tic tox and didnt think to ask to any questions.
But now my since I'm feeling better I feel its important to get more info and try to help others in the process.
Be well and Ill post next week.
Best regards,
feelingbetter

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 4/15/2010 2:04 PM (GMT -6)   
Hi again! Thanks for the reply and info. I'll look forward to your post. By chance, does the bottle have an ingredient list on it? I went to the website, but I have not figured out how to navigate it yet!
Thanks again, bablymers mom

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/15/2010 2:34 PM (GMT -6)   
I had the same trouble, and the bottle is all in French, lol sorry, I'll try to get that from my acupuncturist as well.
And your welcome, :)

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/19/2010 10:56 AM (GMT -6)   
Okay gang, heres what I was able to get from my Acupuncturist. Tic Tox is an all natural product, the makers are very reluctant to give up the ingredients as they do not have a patent. You cannot patent an all natural product. Obviously by giving away the formula they open there door to competitors. She was able to at least gain the fact that Cats Claw is one of the ingredients. My Acupuncturist has treated about 300 clients with Tic Tox and all are showing very positive results. She even supplied some to a patient who's dog was suffering from lymes, and the dog responded just as well. One patient did however see an increase in her blood pressure, but she had been treated for a heart condition which was related to lymes. A change in her diet has since improved her condition and she is back on Tic Tox. My acupuncturist has given me her permission to post her name on this forum. If any of you live near Dutchess County NY (Town of Millbrook), I think it would benefit you to look her up. Her name is Theresa Balagna, she is wonderful! As of now the only way to get the product is to call the facility where it is produced, its obviously an overseas call, you can find there number on there website. The number is located on the homepage, the site itself is under construction and not navigable. And unfortunately you'll need someone who can speak French. Now the company has asked Theresa to be a distributor, but as a healing professional she is reluctant to do this, 1) because she does not want to profit from any sales of the product, she sells it to her patients at her cost ($45). 2) She feels it important to have a dialogue with anyone taking the Tic Tox to follow up with symptoms or any possible side effects, which at this point appear to be none, at least from her 300 patients shes treated, myself included. I find this admirable. If I may suggest to anyone who wants to try this product, please know your body. By this I mean be aware of any kind of side effect you might encounter. You may want to mention this treatment to your doctor, but quite honestly I didnt, I feel most doctors treating lyme are all about profit. Mine moved into a grand new office space and never followed up with me after I abruptly stopped seeing him after my last visit over 2 months ago. I was paying 175 a month, which I had to make an office visit every month for them to refill my antibiotics prescription. Excuse me but I digress, I just wouldn't want to see someone become a distributor and try making a profit off of others suffering, which happens far to often in this world. If any of you has any other questions please reply and I'll answer the best I can and even communicate with Theresa to try an get an answer. May success come to all of you on your journey to beating this awful infliction.
Be well, best regards,
Scott

lylaso
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 4/19/2010 1:03 PM (GMT -6)   
Scott, Thanks for this information. While looking up info on this product I had to remember the 5 years of French I took in school. There are a lot of French forums on lyme disease...it's like a parallel universe.

Has the accupuncture worked for any of your symtpoms?

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/19/2010 2:43 PM (GMT -6)   
Hey Lyl, ya its a little crazy. When I first went looking for info I came across the same thing, used google to translate the forums, but the translation is slightly off, gave me headaches reading some of it, lol. The acupuncture I think is helpful, only had 3 sessions, I believe the tic tox is the main contributor to my recovery. But while on the table I do get alot of facial activity once the needles are applied, then a nice warmth settles in and I feel as if Im floating on a cloud, that alone is worth the trip. Felt the most activity on my first visit, I stopped the abx's after that visit per Theresa, about 5 hours later I developed a headache which continued for almost 2 days, but nothing since, and have felt pretty darn good.... hope this helps. I'm very excited about this and just want to see people get better.
Be well
Scott

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 4/20/2010 2:24 AM (GMT -6)   
Hi feelingbetter21,

Thanks for the update. I won't take anything that does not state the ingredients in full, plus I like to know how the ingredients are handled/processed. I don't speak French, so that makes it even harder to find out the info I would need. I would think that side effects would actually be common because it seems like many "lymies" have a high risk of sensitivities even to natural ingredients. Cats claw can be powerful and is not without side effects for some people.

I am so happy that you are getting better and that others in Theresa's practice are too. I wish you continued success for a full recovery. Let us know how you are doing from time to time, OK! I hope that these success stories can be shared with the ILADS community and maybe used for research studies. That way it could eventually make it's way into the practices of many llmds and naturopaths-----with more known about the product.

Best wishes, bablymers mom

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/20/2010 6:59 AM (GMT -6)   
Good Morning all, First for bablymers I can certainly understand your reluctance to try something without knowing the ingredients. I gladly did and am thankful for it and fortunately have not come across any harmful side effects thus far.
I will be glad to send you a small sample of whats left of my first bottle if you'd like. Second to Junkyard, this is hardly a scam, none of you people know me for beans, I understand that, but I was just as sick if not sicker than most, and fortunately came across something that has helped me tremendously. "Our doubts are traitors and cause us to miss the good we oft might win by fearing to attempt". I had 2 sister laws battle through lymes and several nieghbors, fortunately one talked to me about Theresa, I decided to be the guinea pig for the others. I can only be truthful and hope to help others. Good luck to you.
Scott

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 4/20/2010 10:02 AM (GMT -6)   
Junkyard-

The Mods are people that VOLUNTEER our time and effort here. We may hold down full time jobs, be as sick or sicker than members on this board and have other obligations as well that we need to tend to.

Just because something is foreign or not known to others does not make it a scam.

There is no link for the product nor do we see any implication of direct profit to the member posting.

We allow people to post of all types of products/treatments that have helped each poster in their journey to get well.

It is up to each and everyone of us to do a well thought out investigation before we try any new product or for that matter even a LLMD. Just because one worked for you, does not mean it will work for someone else.
 Co-Moderator
Lyme Forum


feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/21/2010 7:13 AM (GMT -6)   
Okay there Junk, I can understand your uneducated rant toward someone who's never posted on this site before. But did you really read my posts thoroughly? I'm not hawking anything. All my posts are an attempt to help people. As far as the credibility issue, I've been treated for "Lyme" for 2 years and symptomatic for 3, you've been sick for 7 month's. I had 2 sister-in-laws who battled it 2 years prior both going thru 6 months of IV treatment. I never considered a forum before because I receive plenty of support from friends and family. It was only after a dinner party, where I spoke to another "Lyme" sufferer, that I decided to bring my story to here, because she had mentioned several forums she was aware of. If this is the kind of pessimistic attitude that greets people who only wish to make quality of life better for those who are inflicted with this horrible disease, then I want no part of it. To those of you who responded with kindness, Thank you and good luck in your journey.
Scott

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/21/2010 1:32 PM (GMT -6)   
JunkYardWilly,

Feelingbetter did not break any rule. We are all adults and have to make our own decisions in life. In my opinion, I would not buy any natural supplement/herb that didn't list all of their ingredients because anyone can have a bad reaction to a natural herb/supplement. I definitely would want to know what was in this herb/supplement, but that is just my way and no one is obligated to listen to me:)

I hope you understand that as a Moderator, we are not on here 24/7. We do the best that we can as a volunteer. We have lives, families, jobs and added to that mix, we are sick as well. We need to all try to get along and not be so judgemental or harsh on others because others here are sick too. So lets all get past this and get along. Any inflammtory or argumentive posts, will be deleted.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 4/21/2010 11:07 PM (GMT -6)   
I'm quite leery of this too. I've been over on the French forums using a translator trying to figure out what this stuff is. Interesting, not one thing is mentioned on lymenet or MDJunction about this. I searched both forums and nothing came up.

I think JYW is right to warn us to be cautious about new people coming on board sharing about products that we can't even find information on here in the US. Even in France where lymies apparently are familiar with this there doesn't seem to be much information on it.

It appears to me that JYW is just trying to warn us to be careful, and personally I think that's good advice, especially when someone refers to lyme as "lymes". That's always a red flag for me. I'm going to keep searching this tomorrow when I have some additional time and see if I can make some sense of this.

Gary

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 4/22/2010 4:20 AM (GMT -6)   
There are kind ways you can help warn members or bring up your objectives. Attacking is not one of the kind ways.

Mods are on the lookout for spammers and solicitors.  If you feel someone is spamming or soliciting, you can send an Email to the Mods.


 Co-Moderator
Lyme Forum


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 4/22/2010 5:27 AM (GMT -6)   
I agree, attacking the moderators is uncalled for. I was only addressing the fact that his warning to us to be cautious is worth paying heed to. You moderators rock. Great job!

Gary

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/22/2010 7:19 AM (GMT -6)   
Hey all, well it kind of saddens me that a couple of you are basing your skepticism on my spelling of Lyme. But I believe your all missing the point of my post. I'm not looking for any compensation nor do I have any monetary interest in the product. I've spent thousands of dollars on doctors and antibiotic poisons, same as most of you, and I don't have a ton of money JYW. But my doctors certainly do, you want to talk about profit, lets talk about the money the doctors receive from pharmaceutical companies for pushing there product. Their just high end dope dealers. It got rather depressing watching my doctor pull into his new 3500 sq ft office space in his new Mercedes, while half the time he sent in his PA for my follow up appointments. Im sorry I shouldn't take this personally but darn, I just wanted to help people.

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 4/22/2010 8:00 AM (GMT -6)   
fb21, I understand your frustration with some of us who are expressing our skepticism. You've been around long enough (living with lyme) to know that there's always someone offering a new "miracle" healing protocol, medicine, device, etc to us lymies. Many of us are so desperate to get better we'll pay anything for whatever we think might make us better from the evil disease. Lot's of people have been ripped off from con artists, so we need to watch each other's back.

I've actually spent some time on the French lyme forums a couple of days ago, or maybe it was yesterday, not sure. It does appear that some of the people in France who have this disease use this Tic-Tox that you speak of. It's hard to get a grasp of what this stuff is because the forums are in French so I have to use a translator to figure it all out. I would say based on my brief search that it appears to be something that many of the French lymies take to treat their disease, but it still isn't clear to me what it is exactly. Is it a supplement, is it medicine, etc?

If there are no ingredients listed then I think anyone who takes this would be foolish not knowing what they're taking. That's the part I'm still trying to figure out, what in the world is in this stuff? I don't fault you for wanting to share about this and help others get well from this disease, but I think you can understand why people would be skeptical about it. I personally would not take anything that doesn't have the ingredients listed no matter how well you may have gotten from taking this product yourself. But everyone has to make their own mind up about things like this. It's a free country and you can do whatever you want.

I'm going to try to learn more about this product today and report back later what I can find out about it. I'm hoping to have time to investigate it more today, but if not today, then for sure tomorrow. It would be good since you're the one that introduced this to us if you could get more information about it and give us some more details about what this product is and what's in it. Do you think you could do that? Sure would be helpful if you could.

Gary

feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/22/2010 8:56 AM (GMT -6)   
GWB, thanks for your positive reply. I too have been trying to get more info on the product. But as posted previously the company is reluctant to give up any information regarding content. They do not have a patent for the product because you can not patent natural products. Thus should they surrender what ingredients are involved it would open the door to competitors. Since I work in the world of manufacturing I can certainly understand their reluctance to list the ingredients. I too have been on the French forums but find it difficult to ascertain any more info than I already have stated. As far as classifying it as medicine or supplement, well, maybe both as it is natural but has medicinal value. I can tell you this, it tastes god awful at first, like licking a jar of vicks vapo rub, but you get used to it. You may have noticed in your browsing of the forums that the Tic Tox was originally used as a topographical solution applied directly to the tic which would die rather quickly, then apply the tic tox for a couple of days to the bite area essentially killing off the bacteria. I've been searching my dog everyday for tics to try this, lol, my little piece of vengeance I guess. As I said in previous posts I will keep everyone updated and supply any info I can.
Sincerely
Scott

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/22/2010 10:01 AM (GMT -6)   
Scott,

I think it is very risky to start a product from a company that does not list their ingedients. It could be VERY risky for someone taking it, that has a severe reaction and whinds up in the hospital not knowing what they were taking. This could be fatal. If this company thinks that their product is so great, then they should take the time and money to patent it. I don't mean to be so blunt, but this is serious.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/22/2010 12:24 PM (GMT -6)   
Hi Cajun, I understand your concern. I researched some patent info and found that it does seem to be very difficult to patent a natural product. That of course is here in the US, I can't speak for the European community, but I know they have far less restrictions on there products then we do here in the states. Now all bluntness aside, I'm certainly not trying to shove this product down anyones throat. I know it has worked well for me and 300 of Theresa's other patients and one dog, showing no side affects except for the one women whos blood pressure had gone up slightly.
You know as I read some of the responses to my posts I feel as if my posts are being read with a prejudged air of skepticism, and no one is really "reading" the material. No where in my posts do I say "ORDER NOW AND RECEIVE 2 BOTTLES OF TIC TOX FOR THE UNBELIEVABLE LOW PRICE OF JUST $99.99" If you don't want to look into it, thats fine, I have nothing to gain here except the satisfaction that just maybe I've helped someone else overcome this awful disease.
sincerely
Scott

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/22/2010 8:52 PM (GMT -6)   
I asked very nicely to please stop the bashing and arguing. Myself and other Mods have to keep deleting these kinds of posts. If it continues, I will contact Admin and your privelages to be on this site may be terminted. Please think before you post.

Thanks:)


**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 4/23/2010 9:52:31 AM (GMT-6)


feelingbetter21
New Member


Date Joined Apr 2010
Total Posts : 19
   Posted 4/23/2010 8:34 AM (GMT -6)   
Cajun, I did read JYW post before you had a chance to delete it and he certainly has a right to is opinion, but I do appreciate your due diligence. Thank you. I've been thinking about some of the posts with concerns to the ingredients not listed in Tic Tox. So I decided to look into some of the ingredients of other medications that I've been taking, 1st- Mepron, Ingredients are.... hmmm not listed, but it does have atovaquone, which must be good because the doctor said so. Side effects-just a couple:Fever, Nausea*, Rash, Diarrhea*, Insomnia*, Headache, Vomiting, Cough, Abdominal Pain, Pain, Sweat, Monilia, Asthenia, Dizziness, Anxiety, Anorexia, Sinusitis, Dyspepsia, Rhinitis, Taste Perversion, Hypoglycemia, Hypotension and the list goes on. 2nd-Doryx(doxycycline hyclate) Ingredients, not listed, lets go to the web... The chemical designation for doxycycline hyclate is [4S(4aR,5S,5aR,6R,12aS)] -4-(dimethylamino)-1,4,4a,5,5a,6,11,12a-octahydro-3,5,10,12,12a-pentahydroxy-6 methyl-1,11-deoxonapthtacene-2-carboxamide monohydrochloride, compound with ethyl alcohol (2:1), monohydrate. Yum. Side effects:Anorexia, nausea, vomiting, diarrhea*, glossitis, dysphagia, enterocolitis, and inflammatory lesions (with monilial overgrowth) in the anogenital region. Rare instances of esophagitis and esophageal ulcerations* have been reported in patients receiving capsule and tablet forms of drugs in the tetracycline class. Enough right? Look I know these medications have been helpful to people, myself included. Unfortunately our society has become a society of skeptics and followers, "Doctor said so, so it must be so". And unfortunately there is a whole culture of rip off artists and scammers which lead us to our skepticism. Am I risk taker, sure, I tried something that the FDA hasn't approved (I've tried alot of things the FDA hasn't approved smilewinkgrin) or may not even be aware of. I don't think I need to explain my point here.
I researched the product as best I could and took a leap of faith and its paid off, and I've encountered no side effects to date. I will continue to update all of you on my progress, and wish you all the best in your efforts to recovery.
Sincerely
Scott

*side effects I encountered when on those medications

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2010 9:56 AM (GMT -6)   
feelingbetter,

I'm so glad that you got better, but what I posted in a previous post was just my concern. You can go online and look up any prescription medication to get all of the ingredients. I do it all the time. I'm sure, if it were listed, most people wouldn't have a problem with it. By the way, all of my supplements list their ingredients as well.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2010 9:58 AM (GMT -6)   
Another thing that concerns me is that some herbs/supplements cannot be taken with presciption medication, so listing what is in it is very important. Another example is Willow Wood Bark. It says it is natural BUT if you have a problem with ulcers, you need to be careful taking it too much. Well, I'm glad I looked it up because guess what? I have stomach problems and have had ulcers before.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

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