Lyme: Brain Fog Question, please help this girl if you can!

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Robin O
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Date Joined Feb 2006
Total Posts : 1206
   Posted 4/22/2010 8:25 AM (GMT -6)   
Hi there,
 
I met someone on facebook who is really ill.  I just want to show her that others are going through this and maybe some of you can post what you did about it.
She said her brain feels like it is floating in jello. Anyone get this? She is on alot of antibiotics on and off every two weeks and she takes diflucan for the antifungal end of it. Just trying to help another victim of Lyme Disease. 
 
Can I ask that others just post that they too have this or had this and just some suggestions about what to do?  Does she need to ride it out or do any or you think it might be linked to too many antibiotics, etc.?
 
We can thank the Infectious Disease Society for all they have done, absolutely nothing. 
 
Hugs,
Robin

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/22/2010 10:09 AM (GMT -6)   
Hi Robin,

Yes, most of us do have this. I had it really bad for a while and it gets worse when I am on antibiotics. Tell her to do a detox bath. She may want to do one a few times a week to start. It is probably the toxins affecting her brain and causing the fog. If you want, you can copy the instructions for the detox bath in the "New To Lyme?....Start Here" thread and give it to her.

What are her other symptoms? Fibromyalgia causes brain fog too and that's something else that I and many others deal with from Lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Co-Moderator Lyme Disease Forum


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 4/22/2010 9:36 PM (GMT -6)   
Hi Robin,

Brain floating in jello is a new way of putting it, but it fits perfectly for what I used to feel! I had it from lyme and bartonella- it got a lot better after I treated bartonella. Yeast can also aggravate it though, so taking the diflucan is probably a good idea.

My doctor did tell me something about how the brain fog is caused by toxins from the bacteria...I don`t remember the details though.

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 4/23/2010 6:52 AM (GMT -6)   
Some fine person on this forum posted a link to an article that explained that brain fog was a result of the ammonia the Lyme bacteria produces. This not only crosses the blood brain barrier but also allows a lot of other things that should never be in your brain to cross over. This is supposed to be responsible for some of the other Lyme psychological and psychiatric problems like rages and depression.

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 4/23/2010 7:32 AM (GMT -6)   
Dr. Jernigan believes it's the ammonia in the brain that causes the problems. His products are formulated to get that ammonia out. She may want to consider using them. Here's the link to his article, "Ammonia on the Brain." http://abc.eznettools.net/jernigannutraceuticals/ammonia.html

I know I feel better after being on this protocol. I did abx initially for six months and switched over to naturals.

There is hope.

Robin O
Veteran Member


Date Joined Feb 2006
Total Posts : 1206
   Posted 4/23/2010 7:50 AM (GMT -6)   
Thank you everyone that responded!!!!  I loved every post!!! I had crazy brain stuff, but it was more like dimentia, spelling my name wrong, lost for words, say words that didn't fit what I was trying to say.  Couldn't add two numbers together, that kind of thing.
 
By all of you responding, it helps all of us in the end!! Thanks again for taking the time!!
Hugs to all!
Robin
 
 

ronymelson
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/23/2010 7:59 AM (GMT -6)   
Lyme disease is an infection that your child can get if he's bitten by a tick carrying certain bacteria. Doctors call it the "great imitator" because it mimics other diseases, making it difficult to diagnose; in addition, a blood test can't confirm it until about three weeks following the bite. Left untreated, the infection can develop into a serious long-lasting illness that can cause nerve damage, arthritis, and heart problems such as irregular heartbeats. Fortunately, the disease is preventable and usually responds well to treatment.
mood stabilizers


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 4/23/2010 8:43 AM (GMT -6)   
If caught quicky it can respond well to treatment. Preventable? That is up for debate. I know people that are so aware and so careful, only to find a tick on them!


 Co-Moderator
Lyme Forum

Post Edited (1bitten2xshy) : 4/23/2010 11:58:40 AM (GMT-6)


Robin O
Veteran Member


Date Joined Feb 2006
Total Posts : 1206
   Posted 4/23/2010 11:37 AM (GMT -6)   
Due to these so called tests, which are so unreliable, not weeks but months even years after being infected, millions are falling through the cracks because the tests are failing them.
 
Take, for example, the ELISA (in the lyme world, its known as the test that lies.)
With a 30%accuracy rate, lets say that 1,000,000 people are bitten in the next six months.  That means 700,000 will NEVER know they have it unless they know Lyme Disease and know that the test is a gamble. Unfortunately, instead of the physician telling the patient the truth about these gamble-type tests, they say "you don't have Lyme Disease."  So, you start looking for answers and never in a million years did you think your doctor would use a test on you that is not reliable.
Now, with the Western Blot, again not even close to being reliable, you have a better chance of testing positive, but not much.  That test is approx. 65% accurate. 
 
 When and if the Infectious Disease Society and the big pharma ever allow a reliable test to hit the market, that is when the truth will come out.
 
And get ready, that is when the entire medical industry will crumble.  Unfortunately, the Infectious Disease Society is making it very clear they never ever want the horrible infections that ticks carry to ever be told to the world.  But, guess what? It is.  Watch "Under Our Skin".  Everytime I watch this, I cannot believe how inhumane our medical industry really is. I am not talking about nurses and doctors who are innocent through this. I am talking about the dark side of all of this. The ones who know that ticks carry horrific infections, far beyond Lyme Disease.    How many of us will it take?   
 
Millions are suffering so needlessly.   I will continue to tell the world about Lyme Disease.  Its the root cause of so many other illnesses.  Its scientifically proven but politically squashed.
 
For those too sick to fight, I will fight for you while I can still stand.  I never want anyone with this crap to feel any worse because they can't fight.  You have CajunGirl and 1bitten2Xshy and just so many people out there who care!  This forum is so great!
Thank you again everyone for helping my friend. I actually met her on facebook due to a number of us on there now!!  But if I ever had to say where did I get the most help when I needed it, it was healing well!!!  so thank you again!
 
Hugs to all,
Robin O.
 

Post Edited (Robin O) : 4/23/2010 11:43:26 AM (GMT-6)


mikazmat
Regular Member


Date Joined Sep 2009
Total Posts : 133
   Posted 4/23/2010 4:10 PM (GMT -6)   
Oh, Robin O.......well said and good of you for typing what I'm sure many know as the truth. I'd really be interested in your thoughts regarding the connection, if any, between LD and Plum Island (tick research 1950-1960). Being on this side of the pond (UK) I can only read books (Lab 257) and study whats allowed to be published on the WWW, so I'm intrigued what thoughts you folk over there may consider to be the truth. I know there is always conspiracy theories, regarding everything, but this one is just too believable.

Thanks Mik.

Robin O
Veteran Member


Date Joined Feb 2006
Total Posts : 1206
   Posted 4/24/2010 11:08 AM (GMT -6)   
Hi Mik,
When I initially heard of Plum Island and the animal/science studies being conducted there, well, I didn't want to believe that this is where it could stem from.  It was all so much for me to handle.  Afterall, in America, we would never allow such a huge secret to remain a secret, especially if it was costing the lives of millions of people right?  So, I have one friend in the Lyme Comm, well I have lots of friends in the lyme community, but this one friend who lives in Pennsylvania, who due to a child very ill for years, has studied lyme very closely.  She never lets her emotions run with her, unlike me.  I knew she had the answer but I was afraid to ask her what she thought of Plum Island. But, I called her and asked her "So, please tell me your thoughts, what do you think of Plum Island and the connection and do you believe that is why they have covered up this massive horrific infection?  I said to her "please do NOT tell me you think this is true, do you?" 
Silence on the other end and there was my answer.  I trembled most of the day knowing the truth was yes, Plum Island was known for tick testing, and God knows what else. I posted something regarding Plum Island and a friend of mine, due to lyme, told me she can see Plum Island from where she lives. Of course she is really ill too.
I am sorry if I bummed you out.  I do NOT though have 100% proof but you have to ask yourself, why in the world, other than the fact they have been using lousy testing methods for years, would they want to hide this? Why is the world NOT told about all the infections ticks carry.  I have often heard that ther countries also have experimented with the infections ticks carry for their biowarfare.  I can see why, it will stop most of us from doing anything!   If you ever have a chance, look up the Tuskegee experiment.  It was done over a span, I believe of 30 plus years. They injected black males in the south with syphilis, told them it was to help their blood because they lied and told these poor folks they had bad blood. It was done by, you guessed it, the Center for Disease Control in the good ole USA  Now, of course people will say that was years ago, but I say, evil has no end and when it comes to money, well you know....
Good news is there is way too many of us now. I heard a Civil Actin is being stirred up now. Keep in touch and I will keep you updated.  We have had it.   Since the IDSA has chosen NOT to change their guidelines, we have to protest and take action so they do change their evil waysl
Take care and you can always email me too!!!
Robin
 

Post Edited (Robin O) : 4/24/2010 11:15:41 AM (GMT-6)


Robin O
Veteran Member


Date Joined Feb 2006
Total Posts : 1206
   Posted 4/24/2010 11:24 AM (GMT -6)   
Robin O said...
Hi Mik,
When I initially heard of Plum Island and the animal/science studies being conducted there, well, I didn't want to believe that this is where it could stem from.  It was all so much for me to handle.  Afterall, in America, we would never allow such a huge secret to remain a secret, especially if it was costing the lives of millions of people right?  I have a very level headed friend, who due to a child very ill for years, has studied lyme very closely.  She never lets her emotions run with her, unlike me. lol!  I knew she had the answer but I was afraid to ask her what she thought of Plum Island because if the answer was yes, well it was one more thing I had to carry around with me. Its bad enough knowing that millions are infected and given every diagnosis under the sun but the right one. I called her and asked her "So, please tell me your thoughts, what do you think of Plum Island and the connection and do you believe that is why they have covered up this massive horrific infection?  I said to her "please do NOT tell me you think this is true, do you?" 
Silence on the other end and there was my answer.  I trembled most of the day knowing the truth was yes, Plum Island was known for tick testing, and God knows what else. I posted something regarding Plum Island and a friend of mine, due to lyme, told me she can see Plum Island from where she lives. Of course she is really ill too.
I am sorry if I bummed you out.  I do NOT though have 100% proof but you have to ask yourself, why in the world, other than the fact they have been using lousy testing methods for years, would they want to hide this? Why is the world NOT told about all the infections ticks carry.  I have often heard that ther countries also have experimented with the infections ticks carry for their biowarfare.  I can see why, it will stop most of us from doing anything!   If you ever have a chance, look up the Tuskegee experiment.  It was done over a span, I believe of 30 plus years. They injected black males in the south with syphilis, told them it was to help their blood because they lied and told these poor folks they had bad blood. It was done by, you guessed it, the Center for Disease Control in the good ole USA  Now, of course people will say that was years ago, but I say, evil has no end and when it comes to money, well you know....
Good news is there is way too many of us now. I heard a Civil Actin is being stirred up now. Keep in touch and I will keep you updated.  We have had it.   Since the IDSA has chosen NOT to change their guidelines, we have to protest and take action so they do change their evil waysl
Take care and you can always email me too!!!
Robin
 

PainInFL
Veteran Member


Date Joined Aug 2007
Total Posts : 1430
   Posted 4/24/2010 10:23 PM (GMT -6)   
PattiB-

It bothers me to no end that you are not able to be treated because insurance refuses to pay. I have a question about whether you have looked into something that me Dr offers. He is in Florida but it may be something worth looking in to if you haven't already.

Email me when you get the chance at acoastalcoverage@aol.com

Thanks!

Anne
Infected in 1988.  DX w/Lyme, HGE, Bartonella 2007.   Successfully treated 2007-2008 w/Vanco, Flagyl, and many other things....etc, herniated L5/S1, Relapse 3/2010-Currently on Vanco/Flagyl for 2-4 weeks with this first relapse, Hydromporphone/Percocet for pain, Soma, Clonazepam

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