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Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 4/27/2010 9:54 AM (GMT -6)   

Hello lymes family!

    Well last time I was here I had lost my mind lol. I made the LONG journey to my LLMD doctor sick as could be. Its still so hard to wrap my head around the 18 years of Multiple Sclerosis, that was wrong and Now I have Lymes/ Masters. Funny as I thought this Lymes would be easy to understand, ITS NOT! Ms is easy, It sucks! But the meds are easy to understand.

 My doctor seemed disappointed in me as I told him what I have done, I did the diet and took my antibiotics, BUT I only stayed on Doxy antibiotic 1 year and never moved threw ALL the antibiotics. ASK me why, I hate hate pills! I couldn’t understand the right exact time to change. I also find it really hard to know how I feel as everyday is kinda just a struggle, That’s from MS treatments and so on stuck in my head. Its really tuff to understand this stuff. So many things are changing now to my body, just different then before.

  I need help understanding what and how to do all this, Im alone and no friends or family really to take time to help me understand. Im beging to think they feel Im grasping for a lie of having lymes, and I need to fess up on the MS. I can understand I feel same way! After 18 years of ms then positive babesia test comes back, I only took the test to prove I had ms to nero. Lol` Guess the laugh was on me. Its crazy Im so grateful for the truth, yet I haven’t stood up and said HELP ME SOMEONE! As if there is anyone to hear me, No I have you all to help me, I know this.

  Is there a drill sargeant on here to call us daily and ***** at me to take new meds? Don’t eat yeast or sugar? Anyone? Im dead serious lol` Maybe that could help ……even a email  to ***** at me…lol.

Anyone have a hard time with this, when to switch antibiotics.

 Today I noticed My viens in my arms are dark blue? Anyone have this happen?  I have a bad cold now and my arms are tan from car trip, seems like it just happened overnight tho?

Well, I re read my instructions and doctor said to step up to  ceftin, so im going to. Im not even sure why im afraid. I feel like a coward and ashamed of myself. Heck, I took injections that made you cry and beg to die….what is wrong with me?

God gave me this answer, the truth yet here I am sitting still stuck on stupid! Ive been praying , that’s the only thing that comforts me.

 My llmd wants me to get labs done, I made app and go this Friday. Now, How do I explain to my health care guy what I need done…lol…I cant lie, I mean really I don’t want to tell him what im doing as they don’t believe in this treatment. How do you all deal with this. Keep it a secret from your health care doctor? I keep waiting for the police to kick the door open and drag me to jail…lol… I swear last time I was there I actually whispered to him, I have a LLMD doctor. His face read, well ok, good thing you whispered it lol.

 

So I’m looking for a BIG BULLY~ One that isn’t sweet or nice! One person who will call and scream at me or email me, Telling me don’t be a SISSY, suck it up and do it! Any takers please email me! Although

 I may seem weak, I’m not and I can offer same service… Not gifted in knowledge of lymes, But I have Christ and faith and a BIG MOUTH lol~

  Sorry Wrote so much!

So to sum it up~ any thoughts on blue arm viens?

How to deal with health care doctor, that isn’t into our treatments?

O` And looking for Pill Pushing Bully for Phone or emails!! Lol~

Im offering My Bully services also, Not smart but really good bully!

  God Bless you all, I thank God for this Board and My lymes family on here,

Hugs all around!!!!

Kimmie


betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 4/27/2010 8:03 PM (GMT -6)   
Hi Kimmie,

It is important that you follow the advice given to you by your LLMD. If you have any specific questions we can try to help along with encouraging you on your journey to getting well again. Has your neurologist instructed you to stop your MS medications?
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 4/29/2010 8:17 AM (GMT -6)   
Sorry I spoke to much wasnt specific!
I haven taken MS injections or IV steriods in 3 years! I stopped after I tested Posotive for Babesia.
I have seen my LLMD 3 times now, Its been little over a year. My symptoms have improved, But have changed so new different ones are tuff to deal with.
I suppose My biggest problem is knowing when to switch Antibiotics! Like I said I stayed on the Doxycilcine a year! My doctor told me I need to fear my diease more then the pills. I agree, but we all know its easy to say something but not so easy to get over your fear.
I find this WHOLE process confusing, The meds and food that is. It makes things harder when your brain seems to have departed lol! My thoughts and memory are Pretty bad! I used to just have word loss, bit confused here and there. Now I find it can last for hours, I have to think about where I am, How I got there, People I know, I seem to not know thier name or how I met them. Its really scary, bottom line.
AsHow to deal with health care doctor, that isn’t into our treatments?
O` And looking for Pill Pushing Bully for Phone or emails!! Lol~
Im offering My Bully services also, Not smart but really good bully!
I said before, I feel like I need a friend to Bully me one I know that is in the same boat as I am.


Thanks for your thoughts Better health!
God Bless You all, Hugs all around
Kim

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 4/29/2010 12:10 PM (GMT -6)   
My doctor told me I need to fear my disease more then the pills. I agree, but we all know its easy to say something but not so easy to get over your fear.


Kimmie!

Fear your disease? No! You need to be angry with this disease. You need to be ready to punch its lights out! Fear the pills! Bah, those aren't the enemy (that's the bacteria whispering in your ear telling you that). You are fighting a long and raging battle and those pills are the cavalry coming into help you fight the good fight. Every bump up to a new medicine is reinforcements coming to help you. They come from different directions and one day you'll have that disease cowering in some bunker and you'll blast it out. And then you'll have your life back.

And man, are you going to live it!

You're a bully, you say -- Well start bullying those bacteria! turn

Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 5/4/2010 3:29 PM (GMT -6)   
Achieving Grace,
    I cant tell you what your post did for me. Isnt it such a strange world when someone just stops and calls it plain out to you! The way you broke it down comforted me and in fact made me feel, Angry, Brave and able to do it! Still I havent budged from my Blue doxy pill  procrastination.....fear. How dare I call myself a Bully yet cower! Your right! Its on Now, The fight is on! Im gonna Bumb it up! I can do this! God has brought me so many blessings and Now He gave me the truth no MS Now Lymes, Im ashamed of myself, even that I was such a baby.
  Its funny how other people can break it down...and the bulb goes off! I swear if I was standing near you I would give you a huge Kiss and BIG hug!! Thanks God Bless you!
 Im going in!!!!!
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