2 1/2 Days In The Hospital

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JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 5/9/2010 1:13 PM (GMT -6)   
I need a new pooper (let's see if that gets censored).  Anyway, it's going after my right side and my BM's.  I am only 45, this all started when I was 35.... and I really do not want to talk about BM's; But...  I just spent 2 and 1/2 days in the hospital.  I go in next week for a colonoscopy to find out what part of my body took a nose-dive).  The hospital and its' staff were wonderful (which was a 1st for me), but my room-mate was a nightmare and I had to leave the room and then started crying (pain meds - the do it to me every time).
 
This disease has hit every single part of my body (except my frontal lobe = a lobotomy - which I might welcome after all of this BS).... I don't even know why I keep trying, but I do.  I guess it's that inbred instinct to survive as a species.
 
Anyway, I have LD, it sucks and I've spent 10 years looking for someone to believe my positive test results and prescribe a cure.
 
I don't mean to bum anyone out, but when the medical community spends over 18 months diagnosing and prescribing for LD..... I believe it's too late... at least is was in my case.
 
Colonoscopy early next week. I'll keep ya'll updated.  Thanks for being here and reading my bummer announcements.  I wish I could be more positive and on my way to a "cure", but it hasn't happened yet.
 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/9/2010 4:43 PM (GMT -6)   
So sorry Jelaine. I know you have been struggling for a while now. what does Dr. C. have to say about all of this? Have you ever tried any natural protocols?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 5/10/2010 11:11 AM (GMT -6)   
Jelainep,

Make that 2 of us needing a new pooper, LOL. Lyme has destroyed the ability of my gut to function normally from top to bottom (pun intended). I hope your colonoscopy goes well and they are able to help you. Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3455
   Posted 5/10/2010 12:30 PM (GMT -6)   
my dx was Ulcertive colitis, does it mean that Lyme's actually did this to me? I don't understand. I stopped all abx for now, the last shot of Bicillin a form of penicillin, sent me into a "adrenaline rush" panic attack if you ask me and I'm scared as heck to take it again. The first 14 shots did nothing, this last one did. I was driving too and thought I needed to pull over and flag someone down to take me to the hospital. Instantly, from being so afraid, I pooped at Burger King, hardly made it (went in my pants a little) so I don't want to take anything right now. I'm giving Lauricidin a try now. All natural. I swear I've done everything natural you can think ok, but I will give this a go.
 
 I believe my colon can be healed.
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics (for 10 days here and there), not much better. Supplements: No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, stopped those.Started Bicillin injection 1/12/10, once a week of injections.On Zithromax and Flagyl as well, about 2 year protocol to rid myself of bacteria Babesia, Chylmadia Phenomia and Borresliosis. Taking Oxy Aloe Flush and liquid vitamins, curcumin and CO Q10


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 5/10/2010 1:34 PM (GMT -6)   
Therearemiracles,

Yes, Lyme may have caused the inflammation in your colon that was diagnosed as UC. But it is also possible that you happen to have both Lyme and UC.

Artificial and other food additives can certainly aggravate the colon - things like sulfite & other preservatives, artificial flavors/colors, carageenan, etc.

The anxiety was possibly from a herx...Lyme is known to cause anxiety and often herxes consist of Lyme symptoms that are more intense than our usual symptoms (and herxes can also bring on symptoms we didn't have before).

Yes, I too believe the colon can be healed. Don't give up - there are lots of different things out there for Lyme, it is just a matter of finding what will work for you specifically.

Good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3455
   Posted 5/10/2010 1:54 PM (GMT -6)   
Thanks Razzel.  Once my UC doctor told me (after 6 weeks of drugs for my condition, my bleeding had stopped) that my ulcers were gone and he was shocked and said, your healed and you can stop meds cold turkey! However, my urgency and pooping my pants didn't stop and my poo was mushy and stinky and I told him this. So yes the ulcers were gone, but was it yeast that was my problem? I don't know. So I quit, just as he said I could do, 3 days later, blood and all the stuff started up again.
 
I'm taking Lauricindin now, hopefully this will help me. I don't know anymore.
 
I have tried everything, diets, meds, therapies and nothing helps. If I could hire a personal chef, no lie, if I could to cook me all gluten, yeast free I would do it. I need to eat just chicken, fish, some beef, and tons of veggies. I'm thinking of seriously putting in ad in my local paper to hire someone to cook my meals, so I can bring them to work wtih me. I need help.
 
thanks
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics (for 10 days here and there), not much better. Supplements: No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, stopped those.Started Bicillin injection 1/12/10, once a week of injections.On Zithromax and Flagyl as well, about 2 year protocol to rid myself of bacteria Babesia, Chylmadia Phenomia and Borresliosis. Taking Oxy Aloe Flush and liquid vitamins, curcumin and CO Q10


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 5/12/2010 6:06 PM (GMT -6)   
Jelaine~
I'm really sorry to hear about all of this stuff that's going on with you. I can understand your struggle to stay positive, it's not always achievable on some days, IMO.

Please do let us know how the colonoscopy goes & if they find out anything.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

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