Need meal plan for lyme encephalitis and advise on antibiotic or IV treatments

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mckeonjj
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/9/2010 3:45 PM (GMT -6)   
My sister has been in pain for years and doctors have never helped or new what was wrong with her till a few months ago when she was diagnosed with lyme encephalitis

Because of this the doctors say that she cannot eat breads, pasta, anything with gluten and sugar etc.
Does anyone know good meals I can buy at the store to help my sister out?
Or is there a good cookbook for lyme encephalitis out there?
iv been researching all day today and i figured id ask the community cause bloggers are better info than doctors or anythig in my past experiences :)





In addition, my sister is going tomorrow to a really expensive doc that doesnt take insurance etc and she doesnt know if she should do antibiotic treatments or IV treatments?
Im kinda new to all this stuff and cause i just finished my junior year of college i have all summer to help my sister out and i didnt know if anyone had advise on what path antiboitics or IV is better for late finding lyme disease patients?

Let me know and thanks for all your guys help!!

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 5/10/2010 7:49 PM (GMT -6)   
hi
how did your sis get diagnosed with encephalitis? was it a brain scan> what were her symptoms thank u so much

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 5/10/2010 7:49 PM (GMT -6)   
hi
how did your sis get diagnosed with encephalitis? was it a brain scan> what were her symptoms thank u so much

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 5/12/2010 11:49 AM (GMT -6)   
mckeonjj

Try researching Alkaline foods.
 


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 5/12/2010 1:20 PM (GMT -6)   
mckeonjj, sorry to hear about your sister. Many of us who suffer with Lyme disease become gluten sensitive (I did). I took the test to see if I had celiac disease or if I had gluten sensitivities, both tests came back negative. However, these tests are known for producing false negatives and cannot be relied on. The best way to know if you're gluten sensitive is simply avoiding gluten products, if it helps, then you know you're gluten sensitive.

Regardless, it's best for those of us with Lyme disease to avoid gluten and carbohydrates that come from processed foods. They aren't good for our health and can prolong our healing process. Eating all natural foods (organic as much as possible) is always best for everyone, but even more so for those of us with Lyme disease.

The best place to learn more about gluten sensitivities is at http://www.celiac.com/ . This website is not just about celiac disease but a lot of excellent information about gluten, etc. Great articles there and some really good recipes too. There's also a link for a gluten free mall that offers all kinds of gluten free products. If you have a Whole Foods market in your area they carry tons of gluten free products. I can honestly say, I don't miss the foods that have gluten in them. And now that they make gluten free pasta, gluten free bread, and all kinds of other gluten free foods, your sister really won't be depriving herself of as many foods as she might think. However, many of these gluten free products have a high sugar content, so you gotta watch that as sugar is our enemy.

I used to eat pastry every morning for breakfast and desserts every night after dinner--no more. I really don't miss it, especially now that I'm feeling better. It's so worth giving up a few things that we like to eat to be able to have optimal health. Anyway, have her take a look at this website and I believe she will find it to be full of helpful information. It's been a great resource for me and has helped me to understand gluten sensitivities better. I've found some great recipes there and have occasionally ordered things from their gluten free online mall that I can't get here in town. We don't have a Whole Foods here, but will be getting one next year! :-)

If you have any questions feel free to post them here or click my email icon on the upper left side of this post, right under my name, and I'll be glad to answer any questions you might have.

By the way, is this doctor your sister is going to see tomorrow a Lyme Literate Medical Doctor (LLMD)? I sure hope he/she is. The only doctors who are truly qualified to treat this disease are LLMD's or LLND (Natural Doctors). It's very important she get treated by a doctor who specializes in treating Lyme disease or she could end up flushing a lot of money down the drain. Sadly, most LLMD's and LLND's don't take insurance, not so much because they don't want to, but because they can't. Too long of a story to explain here, but as you search the internet and educate yourself about this disease, you'll see there's a lot of politics involved that prevents people like us from getting the treatment we need. But that's a whole nother subject that we'll save for another time.

Right now, the most important thing you can do for your sister is make sure she sees a LLMD or LLND and get treated as soon as possible before this disease does more damage to her. The longer a person has this disease, and goes without treatment, the more difficult it becomes to treat. Time is of the essence. Your sister is fortunate to have a brother like you who cares enough to come on a forum like this and educate yourself and do what you can to help her. Often times, family members are not very supportive or understanding towards those who have this disease because they don't understand it. It's wonderful that you are taking the time to understand this disease and helping your sister like this.

By the way, to answer your question about oral vs IV, that's best left to the LLMD to decide. It just depends on what co-infections she might have and how long she's had this disease. Her LLMD will determine his/her approach to treatment after all of the tests come back and finds out what her symptoms are. And just so you know, there are other options to treating this disease than taking antibiotics. For more information about those options I'd recommend you look up posts by Deejavu and myself (gwb) and see how we chose to treat our disease and how we better. You can find our threads and posts by doing a search here, but if you have any problem finding them let me know and I'll post the links for you.

Keep us posted and let us know how your sister's appointment works out for her tomorrow. I pray that your sister get the answers she's looking for and will soon be on the path to healing. This is one horrible, dastardly disease that no one deserves to have. Your sister is blessed to have a brother like you who cares enough to help her like you are.

Look forward to hearing back from you when you get some more information from the doctor about your sister.

Gary
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