How many of you still work?

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Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/14/2010 8:28 AM (GMT -6)   
Hello everyone,

I'm new to this forum but was just curious to know how many of you are still working with this disease?
Also how many have had to go on disability, etc.
If you work, how do you do it? I've been on disability for short spurts 3 times in the past 3 years.

Please let me know how you all do it. Thanks

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/14/2010 1:53 PM (GMT -6)   
I had to quit work in 2000 due to severe chronic nerve pain (which has since gone into remission, thankfully). I tried going back to work in 2006, but it destroyed my health again and so had to stop after my 6 month contract was up.

I tried to apply for SSDI but was rejected 3 times. I don't have enough work credits to qualify, apparently.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/14/2010 3:44 PM (GMT -6)   
Thanks for responding. Its so hard to work with this. I'm feeling better but know I have to go back to work. I'm hoping it doesnt kill the energy I've worked so hard to get back.
I'll just have to deal with whatever comes. I'll take it easy and hope for the best.
I think to get any kind of disability you have to show some form of physical evidence like an xray with herniated discs or something.
Dont think they would ever recognize Lyme and the associated nerve problems.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/14/2010 3:46 PM (GMT -6)   
I had evidence, but none of my doctors at the time I applied believed I was in the pain I was in...so they did not support the disability claim. No doctor support = no SSDI, no matter what the truth of the matter is.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 5/14/2010 4:50 PM (GMT -6)   
I have been working with the exception of 4-5 weeks last July and August after being hospitalized for a week. I'm self employed as an IT consultant and don't get paid when I don't work. We have had kids in college for the past seven years; thankfully my daughter graduated this past weekend. Working continues to be a daily struggle for me, my brain fog is still an issue and the daily stress makes it difficult for me to get well.

I'm very thankful that the company that I do work for has kept me on through this illness. There is very little else I am able to do besides work because it takes all of my energy. I spend all of my non-work time resting. My wife is a teacher and has been very supportive since I first got sick last June.

I'm still hoping for a full recovery from this disease and try to keep a positive attitude.


Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 5/14/2010 4:59 PM (GMT -6)   
 
 
I work a full time job. Most of my symtoms are gone except the severe arthritis in my knees and shoulders. Working is painful, but I fully believe, if I didn't work I would lose mobility quite rapidly.
 
The plan is to have surgery on the knees once I am done with treatment.
 
Momtomonsters

Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/15/2010 11:30 AM (GMT -6)   
Razzle- I didnt get doctor support for my disability either. She said since I came to the office and was
not in a wheelchair then I must be fine. She has no idea. I tried to tell the office but she was firm.
Probably unlikely I will get those disability benefits.

Betterhealth - I hear you. THis fall and last year too, I worked and came home to recuperate. Then did it all over again.
I did alot of half days the end of last year. Thank god I have alot of sick/vacation time.
BUt tHis time I had to stay home for a few weeks. I think the stress of work definately makes it harder to heal.

Momtomonsters - So glad to hear most of your symptoms are gone. If you dont mind, what kind of treatment did you get
and how long did it take for you to recover? Keep up the good work!

momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 5/15/2010 6:09 PM (GMT -6)   

Momtomonsters - So glad to hear most of your symptoms are gone. If you dont mind, what kind of treatment did you get
and how long did it take for you to recover? Keep up the good work!

 

I started 200 mg doxy on June 22, 2009. January 5,2010 saw LLMD. Doxy upped to 300 mg daily, ceftin added. Couple weeks later,zithromax added as well as plaquenil. Doxy stopped and Tindamax started. Currently on ceftin,plaquenil,zithromax and Tindamax. I use diflucan once every 5 days. Everytime I have a medication change, I really feel it in my knees. Doc says this means the lyme is still there.

Momtomonsters


Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/16/2010 7:58 AM (GMT -6)   
Well I'm glad most of your symptoms are gone. I'm sure the arthritis will go away too.
Good luck!
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