Jernigan Protocol-Question for Gary, Rhonda or Denise

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Caldonia Sun
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Date Joined Aug 2009
Total Posts : 310
   Posted 5/21/2010 11:46 AM (GMT -6)   
I've been using the Jernigan protocol since February and feeling pretty well on it. Just started my fourth round of product. But this week, I have an old symptom returning - eye pain. The whole eye socket, eyes and temple hurt like they did early on.

Did any of you have returning symptoms while on the protocol? If so, did you just keep going and wait for them to subside?

Thanks,
Sally

Deejavu
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Date Joined Aug 2005
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   Posted 5/21/2010 3:54 PM (GMT -6)   
Hi Sally,
 
Good for you for trying something different!  How are you doing Dr. J's protocol, are you taking the botanicals and detoxing?  Dr. J. is really big on detoxing. 
 
I didn't have the eye problems or any returning symptoms when I did his protocol.  There was a time where I had to stop the protocol for a very short time due to financial reasons as it was a choice between buying heating oil or the botanicals and it was freezing cold so the heating oil won! 
 
Diet plays a role in this too..  Do you have Dr. J's book? 
 
Hope this helps and hang in there okay?
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 5/21/2010 10:51 PM (GMT -6)   
Hi Sally,

It's actually quite encouraging that you share, "I've been using the Jernigan protocol since February and feeling pretty well on it." I'm so glad that you're "feeling pretty well." That's like three or four months so far. Great!!

Sorry you are having issues with your eyes. As far as the "eye pain" I do remember in the past, Gary had eye pain and went to an eye specialist just to rule out something "serious" (something other than Lyme). According to the Opthamologist his eye health was fine except, as I recall, he had dry eyes. Gary will probably share more with you about that himself.

In Dr. J's book he talks about the symptoms people have while being treated for Lyme and Co. mostly are related to toxin overload. As Denise said above, "Dr. J is really big on detoxing."

Recently, I relapsed, again, and instead of starting a third round of abx (in the past I was so very sick, in bed for days, some days couldn't even go to work) I decided to follow Dr. J's protocol. I just started three weeks ago so in all fairness I'm not ready to comment yet, however, I for sure will. Good news--I'm not "so very sick" like I was on abx. Thank God!

Gary and I are following as much of the detox info in the book as is available to us in our area. We are actually checking into getting an infrared sauna.

Just a few thoughts:

* I Dry Skin Brush twice a day. Did you know, according to Dr. J's book, that the skin organ releases up to two pounds of waste a day, waste=toxins! (Dry Skin Brushing is such a simple thing. The toxic world we live in, I personally believe everyone should do this--Lyme or not.)

* In addition, I take the Hydrogen Peroxide/Epsom Salt/Ginger detox baths and notice an immediate difference in the way I feel.

Look forward to sharing more later.

Blessings,
Rhonda

PS: I did not go to the Hansa Center for the two week program as Gary did.

GWB
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Date Joined Jul 2005
Total Posts : 570
   Posted 5/21/2010 11:24 PM (GMT -6)   
Sally, which Neuro-Anitox ll Formula are you on? You may want to change over to another one depending on what you're on now. If I were choosing which formula to take, based on your symptoms, I would chose the CNS/PNS formula. Actually, right now what I'm doing is alternating between the CNS/PNS and the Musculo-Skeletal formulas because I've been dealing with symptoms that both of these formulas work on.

You can purchase the formulas yourself on the Jernigan Nutraceutical website here: http://abc.eznettools.net/jernigannutraceuticals/Neuro-Antitox2.html While you're there looking at the various Neuro-Toxin formulas take a look at some of the other remedies and products they offer as well.

I'm just speculating here, but when my lyme went neuro, after the toxins started moving around in me, it affected my eyes. I had some eye pain (not a lot) but I had a lot of blurriness. In fact, the blurriness was so bad I went to see the eye doctor on three occasions just to make sure there was nothing serious going on with me eyes. One thing the eye doctor did discover during his tests was the fact that my eyes were super dry. He gave me some drops to use and a gel to put in my eyes at night.

I forgot the name of the gel but it's a bit messy and it makes your eyes even more blurry, but since you put it in your eyes during bedtime it doesn't really matter. I wasn't faithful taking the gel but I still do take the eye drops. The drops I take are Refresh Plus for sensitive eyes. They have no preservatives in them which is what I'd recommend. They do make it without preservatives, they're a bit cheaper, but I prefer the individually packed drops with no preservatives just because it gives me peace of mind.

Anyway, when the toxins start moving around in me, for some reason it goes to my eyes and brain and it's really bothersome when that happens. Yes, on occasion this still happens to me. That's what I think may be happening with you right now, but that's only a guess. I think what you are experiencing is normal and it will pass in time.

Are you being faithful taking detox baths? This is so very important as Denise often points out. Dry brush your skin daily and take detox baths at least three times a week. The infrared sauna you are using is wonderful, but you still need to take the detox baths. If you go to the top of the forum where it says, "New to Lyme...Start here", you'll see the detox bath recipe. I know you probably know this already, but did you read what each substance in the recipe does for your body and how and why it benefits you? Good information there, not just the recipe, but the reason WHY detox baths are so important. The infrared sauna is a great detox tool, but don't think because you're using the infrared sauna that the detox baths aren't important--they really are important. You really need to do both if you want to get as much lyme toxins out of your body as possible.

I just read your post on the other thread regarding your your allergy/sinus stuff going on right now. Ahhh, I wish I had read that first! Yes indeed, this could very well another reason (or THE reason) that you are having eye pain. I do recall having head pressure, eye pain (mostly in left eye) several months ago. What really got me concerned about it was from time to time I would get a whiff of infection smell that seemed to be coming from my sinuses. It was barely noticeable but as time went on the smell became stronger. I decided to see an ENT and I was stunned to find out that I had a very serious sinus infection and allergies. I told the ENT I don't have allergies. He said, I not only had allergies, I have one of the worst sinus infections he's seen in awhile. He gave me some steroid nasal spray and some abx to take.

I told the doctor I got very sick from steroid shots not long ago and didn't want to take steroid spray. He told me it would be safe and not get into my blood stream and not to worry about it. I did some research and found out that it can get into your blood stream, even though it might be a small amount and not enough to do me any harm, I just didn't want to go there and take the chance. I did some research and found something called a Neti-Pot which I had never heard of before. It's all natural and it has excellent user reviews on Amazon http://www.amazon.com/NeilMed-NasaFlo-Unbreakable-Premixed-Packets/dp/B000ITHH86/ref=sr_1_5?ie=UTF8&s=hpc&qid=1274503805&sr=1-5

It comes with premixed, all natural USP Grade (99.9% Pure) Sodium Chloride & Sodium Bicarbonate Mixture (pH balanced, natural ingredients, isotonic, preservative free & iodine free). I read about this on other lyme forums and on various forums where people talk about allergy remedies, etc, and this came highly recommended. I went to Walgreens to buy it and used it twice a day for a month. I returned to my ENT for my scheduled check-up. and the doctor said, "Your sinuses look great!". He asked me if I was being faithful taking the steroid spray and abx? I told him that I was not taking either one due to my fear of steroids and the fact that my abx don't agree with me.

I explained that I was using a Neti-Pot. He was stunned when I told him that. He said he knew what a Neti-Pot was and he was very surprised to see how clear my nasal cavity looked and how much better my allergies were. I thought he'd be pretty ticked off at me for not following his instructions, but instead of being ticked off, he said, "it's working for you so keep it up!" So now when I feel that pressure coming on, and my sinuses start to act up, I immediately get the Neti-Pot out and use it twice a day. It clears my sinuses up in no time, every time I use it.

Anyway, I know I said an awful lot here, but the point is, if what you're experiencing is due to your allergies, I highly recommend you to get a Neti-Pot and the premixed packages that come with it. If what you are experiencing is related to your allergies, this should get your sinus/allergies under control pretty quick. It's cheap, it's natural, and best of all, it really works! Maybe that's what's causing your eye pain, so start there and see if that helps you.

By the way, are you taking the Beyond Chelation Improved supplements that are part of the "Core Protocol"? How are you doing with those? Are you able to take them without upset stomach or any other side effects? I haven't started on this yet and am curious how it's working out for you.

I better close this before it becomes a book, eh? smilewinkgrin

Hope this helps. Keep us posted and let us know if things get better for you.

Gary

Post Edited (GWB) : 5/21/2010 11:28:15 PM (GMT-6)


GWB
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Date Joined Jul 2005
Total Posts : 570
   Posted 5/21/2010 11:34 PM (GMT -6)   
Sally, one more thing. You mentioned that you're following the protocol that's outlined on the website. Do you mean the Hansa Center website? I cannot find a protocol anywhere on the website. Could you give me a link for that?

Dr. Jernigan's second edition book, "Beating Lyme Disease" is what you need to be following. It's got some new remedies and supplements in it that the first edition book doesn't have. Anyway, if you could tell me where that outline is, I'd sure appreciate it!

Thanks!

Gary

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 5/22/2010 8:04 AM (GMT -6)   
Gary, here is the link for Jernigan's lyme protocol. You have to download it.

http://www.jernigannutraceuticals.com/Healing%20at%20Home%20.html

Thank you for all the info. I am not doing baths, relying mainly on the sauna for detoxing. I could do one once in a while but I really dislike and am uncomfortable with tub baths. I use a bath brush in the shower, but I guess that's not the same as dry brushing. I'll have to work on that one.

I do use a neti pot, but haven't lately. I'll pull it out and get crackin'.

I am taking the Beyond Chelation supplements. The first few days, something bothered my stomach a bit - I think it was the evening of primrose oil. But I kept taking them and just make sure I have food on my stomach before and shortly after to mop up that oil.

My first three months, I did the Antitox CNS/PNS. Just finished it Wednesday and started the Musculo/Skeletal. I requested it because I was having joint pain in my hands and the neuro stuff seemed to be resolved.

Hope you are doing well.
Sally

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 5/22/2010 8:08 AM (GMT -6)   
Rhonda, sorry to hear that you have had a relapse. I hope it is short-lived and you feel better soon.

That's what my LLMD told me to expect. He said I was doing very well, would get occasional flares but that that I would be able to get them under control. I surely hope so. In fact, I've counted on that being the case. I just was asked to take on the bookkeeping at my job and I said yes, so I need my eyes to be good.

Thanks for posting.
Sally

Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/22/2010 10:17 AM (GMT -6)   
I dont know if this is of any help, I hope it is, and I'm not on Dr Jernigans protocol, but I am getting homeopathic/herbal treatments which sound similar in alot of ways. I noticed that I would feel better and better
and then have a set back, which would not last long and was not the full out symptom I'd have before, but it scared me enough to contact my Doctor. She told me that symptoms would come up and then go.
Which they have. The symptoms that stay are the ones we will concentrate on. I believe this could just be a normal healing response. Although its hard not to panic when these things pop up.
I have to keep telling myself, "this is temporary and will also pass".

That being said, it would not hurt to have your eyes checked out or to try the netti pot also.

I am now going on my 4th week with this treatment and I'm having great days (yes, great! Riding my bike in the sunshine and walking) and some not so good days (the weakness sets in, again). BUt the not so good days are getting more spread out.

I was lucky enough to get 2 more weeks of disability and have more time to heal. THat takes alot of the stress out of the equation. But I'm beginning to wonder if I'll even need them now.

Blessings for a speedy healing everyone!

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 5/22/2010 8:19 PM (GMT -6)   
Sally, thank you for your words of concern. I do believe this relapse will be short-lived and I'll be feeling 100% soon!! My LLD expects nothing less, and I'm counting on that.

I know what you mean about your eyes. For me it's energy/alertness as I'm a sign language interpreter (among other things) and I have to be alert.

Something just hit me funny (I admit I have a weird sense of humor) you working with numbers, whew, gotta get that info right; And me working with "interpreting messages", whew, gotta get that info right. LOL!

Laughter does good like medicine!

May you experience God's peace and healing touch,
Rhonda

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 5/22/2010 8:34 PM (GMT -6)   
Sally, thanks for the link. I tried the link and it leads you to the page to download the protocol I couldn't download it. I clicked the "add to cart" button and it leads you to a page where you place orders. The protocol is apparently supposed to be mailed to you at no cost if you request it. I've actually tried that two other times when I placed orders through their website but I never got the protocol in the mail with the rest of the remedies I ordered. I suspect they aren't allowing people to download the protocol anymore. You must have downloaded it before they stopped allowing people to do this.

I have the book, Beating Lyme Disease" and the protocol is in the book, but if you don't mind copying and pasting the downloaded protocol you have I would appreciate if you could email it to me. It would be nice to be able to just staple the protocol together and highlight certain areas and bring it with me when I go places without having to bring the whole book with me. If you're able to do that I'd appreciate it, if not, no problem.

Hope you're having a nice relaxing weekend. Praying that your eye pain get better soon! Please keep us posted on that.

Gary

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 5/22/2010 8:52 PM (GMT -6)   
Kodak, so glad to read what's up with you and the good results you are having. Wonderful!

For the most part I'm doing pretty good.

I know what you mean about a symptom showing up and not going into "Yikes Mode" (as I call it). I take those "backsliding" thoughts captive, heee heee and say, "this is temporary and will also pass" and the truth is--it's true!!!

FYI, Dr. J says to continue treatment two months beyond symptoms.

And a speedy recovery to you too.

God bless,
Rhonda

Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 5/24/2010 11:05 PM (GMT -6)   
I just got Dr. Jernigan's book and am considering his at-home protocol also, so this thread has been very helpful to me! I may have more questions later!
 
Also wanted to share that I don't have time for a full detox bath, but what I do is plug the drain when I take a shower, and add handfuls of epsom salt and some hydrogen peroxide.  I take 10 minute showers every day - I figure it's got to be better than nothing and I'm doing this every day.

Post Edited (Tala3) : 5/24/2010 11:10:12 PM (GMT-6)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/25/2010 4:46 AM (GMT -6)   
Gary,

I just emailed you a copy of the Healing At Home Protocol (pdf file) from Dr. J's website. Let me know if you don't receive it and I'll try again.

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently on TPN due to bowel obstruction.
Meds:  IV Doxycycline - changing to IV Cipro next week, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Milk Thistle, Magnesium, homeopathy.


Kodak
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/26/2010 8:40 AM (GMT -6)   
Hi Rhonda,

So glad your doing well too.

I just talked to my homeopathic doctor yesterday and found out that I was having some symptoms due to detoxing.
THe pimples on my head and face, the weird smell when I pee and the fact that the baths didnt seem to do anything anymore,
were all signs that the Lyme was clearing out of my body. I thought the herbs were the cause of that weird smell, but she said it was not the herbs
it was all the bad stuff that didnt belong in my body. So that made me feel so much better.
I may try to go to work next week. She told me to take it slow and possibly work half days if I can so not to overdue it and have a set back.

After a few weeks we will have another phone session and discuss current symptoms and adjust my protocol and she said it will be much
easier as we go along and I'll feel better and better. And I will need to take less and less stuff. We are peeling that union of all the layers and
getting down to the causes of all this. She said too if I have a set back it wont be as bad as it was but it wil show us where we need to focus on.

I'm very happy with this treatment and glad I didnt go back to the antibiotics. I was so worried I was doing the wrong thing.
But now that I'm seeing results I feel like it was the right decision and my instincts are still in tact.

Keep up the good work and enjoy!!
Peace

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 5/26/2010 12:27 PM (GMT -6)   
Kodak, Thanks and I'm still doing well!!  I appreciate the update about you.  That is great news.
 
Your doctor sounds very knowledgable and "intune" with your body.  That's a big plus.
 
I believe our "instincts" are VERY important.  I learned that the hard way...but the good news I LEARNED!  blush
 
Keep on keeping on--today is a great day and there are greater days ahead!
 

trish0417
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 5/26/2010 1:13 PM (GMT -6)   
Caldonia sun- I too have eye pain in both eyes. Deep in my eye sockets along with digestive issues and many other things. When I went to the hansa clinic the pain never got better. What did you take? I know how horrible it is. Its worse if i dont get much sleep and burns. Then gives me headaches. I have it 24-7. What did you take of his protocols? Ive been on so many of his remedies for a month and havent seen as results. I might have to start taking something else. thanks for any feedback!

GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 5/26/2010 1:41 PM (GMT -6)   
Trish, are you following the protocol faithfully and taking the remedies the doctor sent you home with? Are you eating a good diet without carbs and sugar? Are you doing the detox baths three or four times a week? I also went to the HC and when I got home I mostly got better. However, I had a spell where I felt I had regressed a bit and was discouraged.

Deejavu gave me some good advice--be patient-- and detox, detox, detox. That's what it's all about. You gotta be patient and give the protocol time to work. The detox baths have done a world of good for me. I think anyone who doesn't do three of four of these baths a week are not doing themselves any favors. Detoxing is a very important part of this protocol.

If you want to talk more about this privately feel free to click my email icon and I'll be glad to talk with you some more. Deejavu also did the protocol from the book. She didn't go to the HC for treatment but she got better in 8-9 months doing the protocol at home. She will be glad to answer any questions you have too. Just shoot her an email and she'll respond to your questions.

I've been on the protocol for five months and the past four days are the best days I've had yet. It takes time. You didn't get this disease overnight, and it isn't going to go away overnight.

I believe you can get better. Hang in there and let us share with you some ideas that might help you along the way.

Gary

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 5/26/2010 1:44 PM (GMT -6)   
trish0417,

Yes, that pain is deep in the eye socket. If I touch around that bone, it hurts!

I have been taking Borrelogen, Lymogen, Antitox CNS/PNS, Yeastease, Wobenzyme and Beyond Chelation. Those are the products they recommend for a lyme patient who cannot go to Hansa. But before I started Jernigan's protocol, I did Buhner's herbs (still taking cat's claw) and six months of oral abx. I also had 12 IV rocephin treatments.

My eyes just started feeling better one day. I think the Antitox CNS/PNS helped, but I also started an antidepressant around then. I recently went off of it and I wonder if I should have. My theory is that since I had CNS involvement and most likely, some damage, the antidepressant helped to calm that nerve, hence helping the eye pain. IDK.

But I also have allergy/sinus issues and right now, pollens and molds are very high. So this pain could be from sinusitis. It's getting a little better, but I am taking Tylenol Allergy/Sinus meds and using the neti pot twice a day. One thing I have noticed is that since getting lyme, sinus pain has changed; it's gotten worse and involves the eyes more than it used to.

Hope you get some relief very soon.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 5/26/2010 4:31 PM (GMT -6)   
Hi all,
 
I never had pain in my eyes so maybe it is the allergies as the pollen count is really high right now depending on where one lives.    I also think that toxins do move around the body, in my case, it was always my legs. 
 
Trish, give this protocol time, it really works if done right.  One can never detox enough in my opinion. 
 
Tala, glad you have Dr. J's book, good for you!  Ask as many questions as you want, that's what we are here for.   You mentioned that you are putting the salts and hydrogen peroxide in the tub when you shower, do you ever have 20 to 30 minutes where you can soak your feet in a basin?   If I know I'm going to be on the computer, I have this inflatable foot tub that I fill up with hot water, add the ingredients, and soak my feet as I am answering e-mails or posting on this forum.  Or if I decide I am going to sit on the couch and watch some TV and knit, I soak my feet then.   Just some ideas.
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 5/27/2010 7:20 AM (GMT -6)   
Deejavu,
Thank you for your reply and suggestions. Once in a while I do soak my feet while on the computer. The problem is that I usually use computer and other down times to use my small exercise bike which can be used under a desk or whereever, so I get my exercise time in. I'll make an effort to try to do the foot soaks a couple of times a week instead.

I'm really torn if I should keep my appointment that I have set up with a new LLMD in June or just go ahead and start Dr. J's protocol instead. I hate to waste money on the appointment (and probably more tests), because we all know it's cash out of our pocket, that could be used for the products in Dr. J's protocol. But then I worry that I really should have an LLMD at least in the background. My former doctor has taken a leave from her practice, so I don't currently even have a doctor's support. Although she was not a true LLMD (she was an alternative MD, specializing in bioidentical hormones, etc.), she had/was treating other Lyme patients also w/ support of an LLMD for treatment protocol. I had prescriptions for antibiotics through the end of May, so I'm almost done with those. I do have teasel root extract, which I took for 4 months and then took a break from, which I've just started again in anticipation of ending the antibiotics. What would you do - go to the appointment and start his protocol or tell him I plan to start Dr. J's protocol, but want a doctor in my corner, OR just skip the appointment for now and use the money toward Dr. J's protocol and reschedule the appointment if the Dr. J's protocol doesn't work out for me?? Thank you for whatever insight you may be able to provide!

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 5/27/2010 4:47 PM (GMT -6)   
Hi Tala,
 
Wow, I never heard of an exercise bike that small..  Exercise is really important especially if it makes you sweat (another fantastic way of detoxing), yeah, sweating out the toxins!  The foot bath not only draws out toxins but raises your core body temperature.
 
As far as seeing this new LLMD, I don't know what to tell you.  If you feel you are getting better on antibiotics (don't know how long you have been on them) maybe you should keep your app't.  Do you feel you are getting better on antibiotics?  If I were in your shoes that's what I would ask myself.  Also, Dr. J's protocol isn't going anywhere. 
 
What does your gut instinct tell you?  That's what I usually follow. 
 
Wish I could be of more help,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 5/28/2010 7:24 PM (GMT -6)   
Deejavu,
Thank you for taking the time to answer. I don't know if I'm getting better or not - some things are better, but the pain is not really all that much better. I'll just think on it, I guess! Thanks again!
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