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Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 5/21/2010 1:30 PM (GMT -6)   
I'm curious, has a collective lawsuit ever been filed against the CDC regarding Lyme Disease? 
 
I'm nearly done reading Pamela Weintraub's book Cure Unknown, and it makes me sick reading all that is now known about Lyme Disease and co-infections and still denied by the CDC.  Why in the world isn't the CDC doing more to protect our country from this epidemic?  They are THE authority on disease control in this country, and yet nearly 30 after discovering what the cause of this "mystery illness" is, more and more people are contracting Lyme Disease and co-infections and we still have to go through all that we do just to be diagnosed, and little did we know that would be the EASY part in all of this.  This has to stop and they are in the position of power to do it. 
 
It is purely shameful that 1) we have to go through this at all; 2) that it has taken YEARS for the majority of us to even be diagnosed; 3)  that we have to pay cash out of our own pockets for the medical care and the medicine we need for this MEDICAL PROBLEM; 4)  that the doctor's willing to treat us our being sued and pushed out of business. 
 
I fell into this Lyme mess the way most of you did.  We went from doctor to doctor because we KNEW we were sick, and were told we either didn't have anything wrong with us, they had no idea what was wrong with us, or they misdiagnosed us.
 
It is time we collectively sued back and get this medical problem out in the open so that this doesn't continue to happen to more and more of our loved ones.  I don't give a d*** about the people who have never been through this and don't "believe" in it.  I care about us and our loved ones...carma will take care of the non-believers and they too will become "believers" when it personally affects them.
 
 

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 5/21/2010 4:56 PM (GMT -6)   
The recent action against the CDC by Connecticut Attorney General Richard Blumenthal is the only one that I am aware of. Like the rest of you, I cannot believe that they decided not to change the existing guidelines to reflect our best knowledge to-date in treating lyme. How many more will have to suffer before they finally get it right. I am in favor of taking legal action against the CDC.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4113
   Posted 5/21/2010 5:35 PM (GMT -6)   
I believe we need a patient-driven class action lawsuit against the CDC and IDSA, but the funding would be an issue, as would finding legal representation that would accurately represent our case.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.


arthur0112
New Member


Date Joined Jun 2013
Total Posts : 1
   Posted 6/16/2013 1:46 PM (GMT -6)   
The United States Government had a laboratory on Plum Island across from Lyme Conn. develop this man killer called Lyme. The first recorded case was in Lyme Conn thus giving it the name. This disease bacteria can change form as it ages and drives Drs. nuts trying to figure out what is wrong with a patient. 60 percent of the tests come back negative but when bitten it has definately entered your blood stream. Drs are losing licenses over discussing treatment and the Government is also denying they are involved. Fact is that Lyme tick was developed to infect third world countries and kill off people before they could know what they had going on with their bodies. There is substantial proof our government is involved with this disease and yet no law suits are happening to get compensation for those who are off work losing jobs from it and health deteriorating. I am so tired of the headaches,aching joints and not feeling good in general because I am always feeling fatigued.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14746
   Posted 6/16/2013 3:11 PM (GMT -6)   
Hi Arthur, Welcome to our forum!

This is a very old thread. Actually, Lyme has been around for much, much longer. Do you remember hearing about the Ice Man that was found? They found Lyme bacteria in his brain, and he's 5300 years old - a bit before CDC's time!

What the general consensus is that although Lyme has been around for a very long time, the 'weaponized' version is what's new and so very hard to treat.

Have you been diagnosed? Are you being treated? I would highly encourage you to read through our "New to Lyme? Start here!" thread that sits at the top of the forum if you haven't yet. It's packed full of important information about Lyme and the other infections that usually come along with Lyme.
Lyme herbs used: "Chronic Tonic" from www.mistymeadows.org/wendydocs/Lyme Disease.pdf for 9 months

Bart herb - only Houttuynia for 6 months
tx ended 1-2013

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.

Heathersdad
Veteran Member


Date Joined Nov 2012
Total Posts : 840
   Posted 6/16/2013 3:24 PM (GMT -6)   
I agree with everything that has been said in this thread. The things that are happening do not come as shock and surprise to me. I differ from most people in that I realize that our government does not have a benevolent attitude towards its citizens. Many of the decision/policymakers are on public record for stating beliefs that they feel that the earth is overpopulated, and that it would be prudent to depopulate. Several of the "czars" have written position papers to that end. They also feel that it is a legitimate function of federal government to promote depopulation by withholding healthcare. This is not a political rant, as this trend has been going on for many years- crossing administrations.

You will find yourself doing a lot of kicking and screaming before you will receive aid from our federal government. They have covered all the bases. Some would call my statements pessimism, but I call it an acknowledgement of reality. If your reality differs, then go and run with it!

Don
We are older parents and Heather is our only child. She became so sick and debilitated that we thought that she was going to die, and everything looked so hopeless and bleak. However, God answered our prayers, and used the healing hands of Dr. J. at the Hansa Center to more than restore the health of our precious daughter. I have a moral obligation to help others that are likewise suffering!

1runner
Regular Member


Date Joined Mar 2013
Total Posts : 75
   Posted 6/17/2013 4:38 AM (GMT -6)   
Heathersdad said...
The things that are happening do not come as shock and surprise to me.

I differ from most people in that I realize that our government does not have a benevolent attitude towards its citizens.

Many of the decision/policymakers are on public record for stating beliefs that they feel that the earth is overpopulated, and that it would be prudent to depopulate.

Several of the "czars" have written position papers to that end. They also feel that it is a legitimate function of federal government to promote depopulation by withholding healthcare.

This is not a political rant, as this trend has been going on for many years- crossing administrations.

They have covered all the bases.

Some would call my statements pessimism, but I call it an acknowledgement of reality.

Don
Oh my gosh, I couldn't have said it better myself. What strong spot on points here.

No shock to me either.

What is happening with lyme and co IS NORMAL for govt. They do this on many levels with many things and have been for years.

Think about banking. If mafia charges high interest in loans it's loan sharking therefore illegal, but mortgages and high interest credit cards are legal LOL.

This whole depopulization is accurate indeed, and the govt not having a benevolent attitude towards it citizens is the norm. Spot spot on Don..........

There is a reason people are allowed to protest publicly.

They allow venting............

There's no resolution in venting though is there. That's like some kind of pacifying ploy it would seem and nothing else.

wellbeautifulspirit
Veteran Member


Date Joined Sep 2012
Total Posts : 625
   Posted 6/17/2013 9:20 AM (GMT -6)   
I appreciate these posts,

helps with what do u do with all these emotions

your life stolen from you, when u are still breathing....


I just keep praying that the light is stronger and that gives me hope

I just don't know if I will all the wrongs be right, in my lifetime

the planet is run by evil,in my opinion, but smaller majority than millions of people who are good,

there has to a shift..... real soon, my prayer anyways....

people with lyme and other chronic illnesses should not be like a 'sacrificial lamb' however....

wellbeautifulspirit
Veteran Member


Date Joined Sep 2012
Total Posts : 625
   Posted 6/17/2013 9:21 AM (GMT -6)   
I truly wish we could do something collectively
something, to give it more voice

don't know what that is though.....

and it would be for us, cathartic reasons....

wellbeautifulspirit
Veteran Member


Date Joined Sep 2012
Total Posts : 625
   Posted 6/17/2013 9:24 AM (GMT -6)   
this page helps


support with people who understand

and to know u are not alone

Cat53
Veteran Member


Date Joined Jul 2012
Total Posts : 550
   Posted 6/21/2013 2:26 PM (GMT -6)   
"Some would call my statements pessimism, but I call it an acknowledgement of reality. If your reality differs, then go and run with it!" Don, This is exactly what my husband would say. His response "Call me a pessimist if you want, but I see myself as a realist". With regards to the recognition and treatment..or should I say..non-treatment of Lyme, you - and my husband - are right on the mark. His chiropractor who has been treating him doesn't think it will ever change. Apparently they do have the bases covered. It would be like chipping through a mile long rock to get to the other side..and only to find it is blocked by something else just as difficult to penetrate. God help us all.
"Facts do not cease to exist because they are ignored" Aldous Huxley

Husband, Toby, diagnosed with ALS summer of 2012. Tested positive for Lyme Spring 2013 - Igenex Lab. Treatments used: Rife, Erchonia Laser, Acupuncture, Antibiotic - Doxyclycline, Herbal Rememdies - Japanese Knotweed (powder form), Cat's Claw, Detoxifying - Ionic Foot Baths.

California Cat
Regular Member


Date Joined Feb 2013
Total Posts : 254
   Posted 6/21/2013 4:04 PM (GMT -6)   
A class action suit might work.
 
The campaigning Lyme activists have been doing is making some difference - AZ health dept. now admits Lyme exists there - that is a little improvement. The West Los Angeles vector control dept. has posted a map of confirmed Bb infected ticks - 9 sites in one part of one county. There is some change happening.
 
 All the little steps help but without publicity there will be a painfully slow pace - like the last 30 years.
 
A case against the US for weaponized Lyme is nearly impossible to win. If you want progress, go after treatment. There's less threat to people in power. Also, more people will believe.
 
 If Lyme is a weapon then do you really think a suit would be allowed? Natl. security. And how easy is it to make people look like whacko conspiracy theorists? Not too hard to discredit people. Testimony from lots of people who's  MEASURABLE symptoms improved is useful.
 
However, the evidence from carefully conducted research can make a good case that CDC recognized treatment protocols are woefully outdated.
 
 Don't expect someone to backdown graciously if they have to loose face or admit to criminal acts. Leave someone a way to change with minimal personal pain.
 
Vengeance is not the goal, proper health care is. I think it's Sun Tsu who says basically, if someone is cornered with only death as an option, they will fight to the death. It's safer to allow a retreat!
 
Publicity is the answer. Think about a couple hot button topics for the last many years. 1. legalizing marijuana 2. legalizing gay marriage. REGARDLESS of your personal opinions on either, both ideas are getting more support in the media, and the polls. Why? Real life stories making the issues about individuals.
 
When people see the real impact of policy on individuals it is hard to support something that hurts the individuals. I don't want to spark debate on the merits or demerits of those issues above.
 
 I want to remind people that if someone meets a kid and sees he has constant pain,  most people will care. If another person can stand up and say "I used to hurt like he does. I had to get treatment outside of insurance to get better, but I AM BETTER.", people will begin to recognize the injustice.
 
We need the support of newspapers, tv, radio, the bloggosphere, magazines, etc. It is not enough to say I need help, we need to prove that the right help can even cure non-existant chronic Lyme or post treatment Lyme syndrome.
 
A study which shows a squirrel which tests clean can transmit Lyme to a tick helps, if people hear about it.
 
A study which shows post treatment monkeys still have Bb bacteria present  helps, if people hear about it.
 
Hey Arthur - Q- r u SCA? look at my name. Just wonderin.

California Cat
Regular Member


Date Joined Feb 2013
Total Posts : 254
   Posted 6/23/2013 3:24 AM (GMT -6)   
So, does anyone have a lawyer they can ask about this? What is possible?

Does anyone have reporter or editor friends?

Any place that reported on Lyme before may do it again....let's ask!

wellbeautifulspirit
Veteran Member


Date Joined Sep 2012
Total Posts : 625
   Posted 6/23/2013 10:43 AM (GMT -6)   
I don't know any lawyers
 
 
I do agree when someone said, god help us all
 
 
how many of us in the USA alone are sick,? I don't know the true numbers
 
well we know the cdc does not have accurate count
 
how many have died from this?
 
meaning,  there is enough of us,  to come together for a common cause
 
our voice be heard in such a manner that will be taken seriously
 
just to make a point known....
 
some of us are dying, and they don't have time to wait
 
for at least some recognition as a whole, that is is real and messes u up bad
 
beyond what a person who has not been in the trenches with family or has it themselves
 
that people like us need more support
 
and help and accurate testing
 
and treatment quickly and doctors to be educated, and police and psychologists and counslors
 
and laws for employment to protect the employees that they can go back to work later on
 
I pray and intend for some steps to be taken in this direction
 
it is totally worth a shot
 
 
 
lyme has been re eningered on plum island, there is some proof, or at least proof that ticks were infected
 
we know lyme has been around
 
that is why they saw this as a possibility
 
unit 257
 
 
 
we have a case here, totally,  in some form
 
so now, it is about getting it together by the best lawyers in the world,
 
to carefuly word it, present it,
 
 
prayers that this can happen in my lifetime
 
 
 
 
 

Time2Act
Regular Member


Date Joined Jun 2013
Total Posts : 26
   Posted 6/23/2013 5:10 PM (GMT -6)   
New to forum... have had the same experience(s)
as countless others regarding CDC "guidelines." I
thought about a lawsuit some time ago. Yes, the
key would be finding a high-profile group with deep
pockets. Those who specialize in malpractice for
IDS (especially Wormser & Steere) and another firm
for the CDC/Uncle Sam.

Don't know if the latter is even possible; but it's
worth a shot. Also, I think we need to take a page
out of the AIDS history & ACT UP. It wasn't until
they marched on Wall Street (1984?) that things
began to change. We need more publicity as one
of the other posters noted. Something as simple
as a lyme-green tee shirt with the right logo would
be a start. Then a National Lyme Awareness Day
when everyone wears their tee. Followed by some
type of Act Up march in Washington. Just ideas so
far; but something has to be done. Much sooner,
rather than later.

I would like to hear other people's thoughts on this.
Our power is in numbers: the real number of late
stage Lyme sufferers. Not those goofy CDC statistics.
Well, enough for a first timer. There are certainly a
lot of well-informed, thoughtful people on here. I'm
optimistic that, as a very large group, we can get
something done.

Heathersdad
Veteran Member


Date Joined Nov 2012
Total Posts : 840
   Posted 6/23/2013 9:57 PM (GMT -6)   
Seeing Green,

WELCOME to the forum! We are glad that you have a common cause with us- a kindred spirit of suffering and neglect. I really am not glad that you are suffering, but rather, that you have found us, and decided to join with us.

We would love to hear more about your story, and any insights that you may have gleaned along the way.

You may not be new to lyme, but I will encourage you to take a look at the thread entitled "New to Lyme?.....Start Here!" anyhow. It has a lot of good information including detoxing strategies to reduce the toxic load that is excreted by the die-off of the microbes. Detoxing will serve to make your healing experience a bit more tolerable. Detoxing may be old news for you, but I always mention it when welcoming new members.

On behalf of the forum membership, I want to thank you for the kind comments. I agree with you about the "lot of well-informed, thoughtful people on here". We may have a diverse spectrum of perspectives with regard to various issues, but we do try to be civil. I can already tell that you will fit in very nicely. We want to encourage and support you!

Once again- welcome aboard the healing train!

Don
We are older parents and Heather is our only child. She became so sick and debilitated that we thought that she was going to die, and everything looked so hopeless and bleak. However, God answered our prayers, and used the healing hands of Dr. J. at the Hansa Center to more than restore the health of our precious daughter. I have a moral obligation to help others that are likewise suffering!

California Cat
Regular Member


Date Joined Feb 2013
Total Posts : 254
   Posted 6/24/2013 12:13 AM (GMT -6)   
Hi Seeing Green,
You might like looking into NATCAPLYME - they have sent me some good info about their marches, etc. And, there was an international Lyme Protest recently.
 
More of the same, with bigger numbers and louder participants will be a good thing.
I think some Lyme patients may be too sick to get out and about, but the rest of us can try.  Plus, it does get to be pretty exhausting to be poopoo'd over and over.
 
How did fibro myalgia and chronic fatigue get recognition?
 
As for a shirt, anyone who prints - I'd like a medium, cap sleeve style in hideously bright LYME green with a nasty big tick in a circle/slash on front, TICKS SUCK  around the circle (think Ghost Busters). On the back an actual size pic of nymph and adult under huge banner words "actual size" so people have to look carefully to see what the heck it's about. Below that in more medium size words,
 LYME Sucks.
idea
I can manage up to twenty bucks for that shirt. This is my official permission for anyone to take that idea or parts of it and go with it. I'll even try to sell some for you, just don't prevent me from making some too if I get to it.
 
I know there are some famous people who have this cruddy bug, could folks please name some?
 
Thanks

California Cat
Regular Member


Date Joined Feb 2013
Total Posts : 254
   Posted 6/24/2013 12:14 AM (GMT -6)   
Oh yeah, who led the way in the agent orange fight? Just askin...
 
And, how credible is the evidence for weaponization? That's a subject that will make anyone sound like a wingnut unless it's beyond sustantial.

Post Edited (California Cat) : 6/25/2013 12:36:00 AM (GMT-6)


Cat53
Veteran Member


Date Joined Jul 2012
Total Posts : 550
   Posted 6/25/2013 2:38 PM (GMT -6)   
I'm in. Whatever I can do, I will. I will be there for the ones who cannot because they are physically and mentally affected by this hideous disease. I will be there for my husband who could very well have died with ALS symptoms if I hadn't discovered the heroes fighting against mainstream medicine's head turning. We need to unite and be strong for the ones who aren't able to.
"Facts do not cease to exist because they are ignored" Aldous Huxley

Husband, Toby, diagnosed with ALS summer of 2012. Tested positive for Lyme Spring 2013 - Igenex Lab. Treatments used: Rife, Erchonia Laser, Acupuncture, Antibiotic - Doxyclycline, Herbal Rememdies - Japanese Knotweed (powder form), Cat's Claw, Detoxifying - Ionic Foot Baths.

violets
Veteran Member


Date Joined May 2006
Total Posts : 864
   Posted 6/25/2013 7:28 PM (GMT -6)   
Hi Everyone,
 
I pretty much posted the same thing but back in ~2006. It was back when ticker was here as a moderator.
 
I was SO angry that I knew "they" (many of the main stream infectious disease doctors and yes I believe the CDC knew/knows) but did absolutely NOTHING  about it. How could they not...they would have to be really stupid!
 
I went to a very well known infectious disease doctor when I was sick. He never even did a Lyme test.  And you know why? I believe I know why... because he figured I was chronic and he didn't believe in long term antibiotics.
 
He said to me and I quote (I will never forget it)...when I asked him what I could possibly have even though all my lab tests were normal.  He became solemn and appeared reflective and said "there is something out there that some people seem to be getting, but there is really nothing that you can do about it. Hopefully, it will go away with time". And he sent me on my way...in my view point basically to die. 
 
Remember, some count on the fact that eventually you will just get on some band-aid med. An anti-depressant, a sleep aide, an anxiety drug, several pain meds...you name it and eventually you will just fade away.
 
But...what they didn't count on is some of us refused to do that AND we are still here! I am here ~ 7 years after basically being dismissed! Yes, dismissed. Even with good insurance. I think that many of us received a wake call when we got our lyme or our lyme-like illness. Our medical care IS NOT what we think it is.  Much of it is determined by the big pharmaceutical companies.
 
The good news! I refused the bandaid meds. I believed I could get well!  I kept on (12 doctors later) and found a doctor who cared!  
 
I just did a half marathon and won my age group! And I am here...and I am not going away! When I was my sickest I started to give away my things..I thought I was going to die. 
 
But.... here I am and doing OK no thanks to Mr. Infectious Doctor.  Question the Experts!
 
Remember AIDS...they said it was a death sentence and yet years later people are living functional lives. Rabies, they used to think no one would ever survive rabies without getting the vacine in time. I have read of at least two people that have lived. The same will happen for us...if you just remember not to kill yourself trying to kill the Lyme. Hang in there.
You think Hep C is a Boomer Disease... will wait until it finally comes out about this epidemic!   
 
I do believe it will be "US" that solves this terrible disease state.  So please don't get "mucked up" on drugs like they'd like you to. Remember, there is now a so called official diagnosis of "fibromyalgia" and what is the drug of choice? LYRICA!  Not a drug to get rid of the disease but a drug to numb your pain.   Fibromyalgia is not a disease state! It is a symptom of something else, but yet amazing the pharmaceutical company has managed to come up with a drug for a "symptom" as if it is a disease!  
 
The Infectious Disease Doctor finally admitted and recently stated that "they are not saying there is no chronic lyme" they are just saying "that there is no research based proof long term antibiotics can help it". He has changed his tune. I do believe he had written articles prior to that statement that claimed there was no such thing as chronic Lyme.  I have the articles somewhere just don't have time to look them up now.
 
Let's see if he changes his tune again in the near future. I bet he will!  What goes around comes around!
 
Hang in there!  You can't go back and start over but you can start from here and have a better future! No one ever succeeded not believing they could do it!
 
 
 
 

Post Edited (violets) : 6/26/2013 4:49:14 AM (GMT-6)


California Cat
Regular Member


Date Joined Feb 2013
Total Posts : 254
   Posted 6/26/2013 2:08 AM (GMT -6)   

Violets, I'm not sure I believe you. You might just be a pigment of my imagination. Did you really say an ID changed his mind? shocked "The tide is turning..."

No research based evidence of the effectiveness of long term antibiotic use? Hmm. There's been human clinical trials going for ... years. The testimony of patients who have improved, and been able to shed the rx for the misdiagnoses, and have recovered the meaningful, productive lives they missed is evidence.

When a Psychiatric drug is evaluated in clinical trials they have to use some subjective evaluations! How do you feel? Do you still want to die? Do you hate the world? Something that lets them know if the drug is changing a person's head!

It is not unscientific to use the personal experiences of patients to evaluate the effectiveness of a treatment! The fact that many people use a combo of treatments makes it harder, but not impossible!

Big Pharma will comb the far flung reaches of the world to find a useful plant. They will take hundreds of species to investigate. We have edited down the list quite a bit. People have found treatments that work.

 Even if there's a need to test a hundred or two different plants and chemicals, and in hundreds of combos, it's what they already do. No need to face death by pirhana or angry tribesman. Don't go catch a mystery bug near the Ebola river, we've got a foundation for you to work from already near home.

Lymies have already been Guinea Pigs - this stuff has been tested for use in humans by humans. And even if a treatment is herbal, plant based and not patentable, I don't see herbal supplements as small potatos and not profitable!

The most common infectious disease in the US, known to exist around the world, still spreading, with a pool of patients still undiagnosed! Wow, can you say windfall? Just show me the chemical process by which your treatment works and that it works then I'll buy as many doses as I need.

People already buy, but if the purchases get focused on some proven, standardized products, that's going to be a lot of sales. And, since Lyme gets it's nasty self into different parts of us, that means there's room for more than one product. The research can do double duty. Some of it is bound to apply to more that one strain, or more than one area of symptoms!

I see a big carrot here.

Last thought, if a company wants a boost of recognition, there's a pretty big network of Lyme torch bearers.

 


violets
Veteran Member


Date Joined May 2006
Total Posts : 864
   Posted 6/26/2013 5:45 AM (GMT -6)   
2000 B.C. - Here, eat this root.

1000 A.D. - That root is heathen. Here, say this prayer
.
1850 A.D. - That prayer is superstition. Here, drink this potion.

1940 A.D. - That potion is snake oil. Here, swallow this pill.

1985 A.D. - That pill is ineffective. Here, take this antibiotic.

2000 A.D. - That antibiotic is artificial. Here, eat this root. ......................................................

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3795
   Posted 6/26/2013 6:56 AM (GMT -6)   
Well, I guess I was one of the rare people who after diagnosing myself was sent to an ID doctor back in year 2000 who talked about IgeneX testing to me which I did.  He also believed in long term antibiotics but I didn't.  A voice inside of me said antibiotics were not the answer and I'm glad I listened to my gut feeling and went on a quest to find another way which I did.
 
I also think AIDS and Lyme are 2 different animals, people don't die from lyme (I believe they die from the treatment of lyme).  Lyme is a cousin to syphilis since both diseases have one thing in common:  spirochetes.
 
Just my thoughts,
Denise
 
 
 
 
 
Well for 7 years without any symptoms ~ used Dr. Jernigan's protocol.

Our bodies are wise as they can heal themselves, all one has to do is nourish them properly. Thus it's about the Immune System mixed with Daily Detoxing, a dose of Positive Thinking, and Lowering Stress Levels.

I come back to help others for others helped me when I was sick. Pay it forward! :-)

California Cat
Regular Member


Date Joined Feb 2013
Total Posts : 254
   Posted 6/26/2013 1:46 PM (GMT -6)   
Deejavu, can you give me info on that ID? I'm all in favor of herbal treatment too. But I also believe in antibiotics. Syphylis can kill people, and drive them out of their minds.

The down side of herbals is that many are of inconsistant strengths. Also, remember not too many years back there was a proclamation that spinach didn't have as much iron as previously believed. Perhaps the soil was depleted? The same kind of variations can happen within any plant.

There's also an illusion that plants are safer because they are natural. Oleander is natural and deadly. Ditto dozens of plants. I prefer the idea of getting the range of chemicals in a plant because I suspect often there is a combined effect.

But pharma is pared down to a specific reactive ingredient, which can also have benefits for very selective targeting.

It would really be reassuring to have chemical knowledge of the plants that have worked best for many Lyme patients.

Q. How does anyone feel about the name Lymies?

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14746
   Posted 6/26/2013 2:19 PM (GMT -6)   
The reaction to the name 'Lymies' is mixed - LOL!! I used to use it frequently, but offended enough people that I try to limit my usage of the word now.

The thing about using herbs for treatment is that most often there are compounds in the plant that the chemical equivalents leave out and often those compounds work synergistically to keep herxing or other damage down.

For the most part, pharma drugs that are developed from plants only take one or two components and leave the rest - seemingly 'inactive' ingredients that actually have a very valuable function. I believe this is why those who are very ill with these infections sometimes respond better to herbs.

Abx have their place though!!! If a person has just contracted Lyme just a matter of days/weeks before, Doxy is quite hard to beat!! Fast, easy and simple.
Lyme herbs used: "Chronic Tonic" from www.mistymeadows.org/wendydocs/Lyme Disease.pdf for 9 months

Bart herb - only Houttuynia for 6 months
tx ended 1-2013

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.
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