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Nervous-lab tests tomorrow
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Date Joined Oct 2009
Total Posts : 109
Posted 5/27/2010 12:33 AM (GMT -6)
Well, tomorrow is the day I go back to the rheumy to rule out Lupus. He did a LOT of tests for SLE, Liver stuff,
stuff, and a bunch of other "stuff"lol. I have to drive 4 and 1/2 hours to get there and I'm going to talk to him about
IGenex testing too. I'm not very assertive when it comes to Docs, so I'm not sure how convincing I'll be.
My main goal is to find out what is causing my symptoms so that I can get treatment. I am just tired of doctors telling me nothing is wrong (well not really telling me that, just testing for one thing and sending me home). I think that they are so used to drug seekers that they sort of view everyone that way. They often look at me surprised when I tell them I don't want pain meds to mask my symptoms; I wanna know what's causing them first!
Don't really know what to hope for. I mean I think that hoping I'm well or normal is out of the question at this point. Don't want any of the conditions that are being suggested (SLE, MS, Hepatitis, Lyme), but I guess I just wanna know what it is. Been suffering for a long time...
If all comes out normal I may just scream! Is it normal to think that way? It's like I'm asking for an illness? I'm really not, I guess. Can anyone relate to that?
Jessica, diagnosis: unsure
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Date Joined Aug 2007
Total Posts : 4399
Posted 5/27/2010 4:10 AM (GMT -6)
Yes, I can totally relate. It took almost 30 years for me to get diagnosed with Lyme. In all that time, with all the doctors I saw, very few tests were positive, and many of the doctors blew me off because of this. I used to bemoan not knowing what for sure was going on, because the things the doctors were coming up with as diagnoses just didn't quite seem to fit with my symptoms and test results. So I'd be told I had things like "secondary lupus-like syndrome" (whatever the heck that is) or "IBS" because the doctors had no clue.
The only thing I can say is don't give up looking for answers.
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently on TPN due to bowel problems.
Meds: IV Cipro, Heparin (to flush PICC line), Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Milk Thistle, Magnesium, homeopathy.
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