After Two years I have my Lyme under control. Here's my meds.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ovaltien
New Member


Date Joined May 2010
Total Posts : 12
   Posted 5/31/2010 6:25 AM (GMT -6)   
Two years ago I was hospitalized for almost a month with Lyme, Babesia microti and Bartonella.  As a result of the Lyme and coinfections I developed meningitis and myocarditis.  I probably had these infections for about three months before my doctor rushed me to the hospital where they conducted a spinal tap and determined the seriousness of the situation.  Since that time I have tried literally everything to get my body and mind back to where it was prior to this illness.  about a year ago I started seeing a new doctor who is a godsend.  My doctor has chronic lyme and is incredibly smart and sympethetic to his patients.  I've tried all the painkillers and new variations of the old stuff like Ultram and ultrex and all have given me different levels of comfort from the daily grind of dealing with the fact that everyday I deal with a new problem.  The constant is always my two thighs feeling weak with a strange sensation but this is almost always accompanied by some sort of joint burning in the knees and shoulders.  Then there is of course the different levels of mental capacity and brain fog.  For the last few weeks I have been feeling as close to normal as I ever have.  I am using Savella to treat my Lyme symptoms and it seems to be doing the trick.  For antibiotics I am copying my doctor and carrying Artemesia pills in my pocket and taking them twice a day whenever I start to feel rundown.  For some reason they seems to bring comfort.  At the beginning and end of the day I take Plaqunel with myocycline.  On the last week of the month I substitute rifampin with the Plaqunel and take it for as long as I can tolerate it.  It seems to be working and the Artemesia is an essential part of this type of pulsed therapy.  The only drawback of the therapy is you must wake up at 5am to start taking the Savella of you won't be able to sleep at night (you will most likely still need sleepinol, valium or ambien to get to sleep still but if you start taking it later even those sleeping aids won't help you).  My goal is to be antibiotic free in a few months.  I know how awful this disease can be and have always thought "if I ever find something that works I will share it with as many people as I can."  Well this therapy seems to work and of course it needs to be accompanied by excersise and an attempt to carry on a normal life.  Hope this helps some of you. smurf

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2010 6:00 PM (GMT -6)   
Hi Ovaltien,

I am glad you have a combination of medicine that is working for you. I take Savella too and it has helped me a great deal. I take it for fibromyalgia. At first, it helped with my engery levels, but now, I have been so tired. I take a pill at night and it doesn't interefere with my sleep but that's probably because I am so tired. I think that my thyroid may be acting up again. What are you taking the Plaquenil for? I was just prescribed that for RA.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


Ovaltien
New Member


Date Joined May 2010
Total Posts : 12
   Posted 6/2/2010 4:14 PM (GMT -6)   
The Plaquenil and myocycline are for Lyme and the Rifampin is for Bartonella.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/2/2010 5:32 PM (GMT -6)   
Are they using the Paquenil as a cyst buster? I sure hope i don't herx from this medication. That's all I need. I am trying to get back on my feet, then deal with the Lyme naturally.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


Ovaltien
New Member


Date Joined May 2010
Total Posts : 12
   Posted 6/2/2010 6:01 PM (GMT -6)   
Plaquenil is usually pretty well tolerated relative to some of the other cyst busters (Flagyll, Rifampin). If your fighting Lyme you need to be on it in conjunction with Doxy or Myocycline to get through the protein shell. No pain no gain.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/2/2010 7:09 PM (GMT -6)   
Well, my liver can't take it. That's why I'm not on antibiotics right now. When I herx, my liver cannot filter out the toxins fast enough, even with detoxing, and my liver enzymes go sky high.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 23, 2017 4:09 AM (GMT -6)
There are a total of 2,858,766 posts in 313,687 threads.
View Active Threads


Who's Online
This forum has 155277 registered members. Please welcome our newest member, fhfhreryrr.
412 Guest(s), 0 Registered Member(s) are currently online.  Details



Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer