Other Bacterial Infections without Lyme?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

aries12
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/9/2010 1:45 PM (GMT -6)   
Hi:

New here.

Background-Virus 2 1/2 years ago. One week later, dizzyness, extreme fatigue and 'strange feeling on left side next to eye'. Several Doctors and lots of tests later no results and little improvement. Not heart, sleep apnea, nothing in blood tests. Not thyroid. No diabetes, etc. Except for being 40 (now 50) lbs overweight, nothing was found except a non-malignant tumor in my parotid gland (removed, no improvement).

about Feb. 2010, I went to a Wholistic ARPN who did a great job of listening to my story of woe.
She started me on an antiviral that didn't seem to have any effect. More tests (ie: food allergies,egg & wheat)
Last test was for Lyme and one band came back positive. She said it was only one, but a significant one. She didn't say which band it was and having brain fog...I didn't ask.

My question is...can you have one of the co-infections without having the Lyme Bacteria itself?
I haven't been in a situation that I am aware of where I would have been bitten by a tick for some 20 years when we went camping in Missouri.

The virus hit me in February of 2008. Not exactly tick time here in North Florida.

Current symptoms are fatigue, unbalance, chemical sensitivities (I didn't have before), vision blurriness has worsened and the opthamologist doesn't know why. And quite often brain fog for part of most days. And then theres that 'heavy feeling' on my left side just above my waist, but I've had that for 4 or 5 years. Had an ultra-sound to see if my spleen was enlarged. Nope...seemed normal.

Mornings when I get up are the worst and I feel like I weigh 500 lbs. Especially my legs. After I'm up for awhile and have had my breakfast, I feel much better most days. Some stiffness, but not a lot of joint pain. Once in a while the joints in my toes will hurt for a short time. Some neuropathy in my hands and left foot mostly.

I am somewhat better than I was originally. There are a lot of other things that are on the list, but I've had them for many years like the Tinnitus and difficulty finding the right word.

Tried Tetracycline. Couldn't take it because of severe stomach pain. Now on Doxycycline which doesn't bother me at all and I've been taking it for 5 days. No noticeable herx reaction so I'm wondering if I have Lyme at all or whether it's a co-infection or something else.

Any insight would be appreciated.

Usually I just use my initials to sign off on forums. Is that not allowed here?

aries12




GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 6/9/2010 4:59 PM (GMT -6)   
Everything you mentioned in your post points to Lyme disease. Is there some reason why you haven't seen a Lyme Literate Medical Doctor (LLMD)? A LLMD would do a Western Blot test on you from Igenex Labs and see if you have lyme and co infections. Although, the tests don't always show up positive, considering how long you've had these symptoms I'd be surprised if your tests didn't show up positive. However, this disease in usually determined based on symptoms, not always on the results of blood tests, in other word, it's a clinical diagnosis.

If it was me, I would make an appt with a LLMD and get tested asap. If it turns out you have lyme disease, the LLMD will put you on a course of abx to treat your symptoms. Since you seem to also be open to natural medicines, there are Lyme Literate Naturopathic Doctors (LLND) who could treat you with natural medicine if you preferred that route.

If you'd like to get some links to websites for LLMD's and LLND's, click my email icon below my name and I will send you links to websites that provide referrals to both LLMD's and LLND's. It seems you are in North FL, is that correct?

What are you taking doxy for at this time and what's your dosage and length of time for taking it? Why did your PCP prescribe it to you? What does he/she think is wrong with you?

Sorry for the suffering you are going through. Seeing the right specialists (LLMD/LLND) will definitely help to put you on the right tract to get better. You can get better, but it's not going to happen seeing PCP's and infectious disease doctors, who for the most part, have no clue about Lyme disease. Time is of the essence, the sooner you see a doctor who specializes in Lyme disease and get tested and treated, the better your chances are of beating this disease.

Gary

aries12
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/10/2010 6:37 AM (GMT -6)   
Thanks for your reply.

My ARPN is as close to Lyme Literate as I can get here. She is associated with the most highly respected Wellness doctor in town.
She treats Lyme Disease and she said she thought that is what I might have.

I don't think it was Igenex but it was Western Blot because we discussed that the other test wasn't as specific. I had already done my research so I had a fair idea of the differences in testing.

I am taking Doxy for possible Lyme Disease 200mg a day. I switched from Tetracycline to Doxy because the Tetracycline caused too much stomach pain, insomnia, heartburn etc. In other words the side effects were worse than the disease. This is my 6th day. No side effects, no worsening of my symptoms as yet.

Naturopathic (which my ARPN is)would be better for me because I'm not interested in taking huge amounts of antibiotics for a long time.
She does however prescribe medication as necessary and will use whatever seems to work best.

My original question was....can you have one of the co-infections without the Lyme bacteria? I am particularly interested in this because of the heavy feeling in my side and I saw a medical program on a co-infection that talked about the parasite having attacked his spleen. They didn't say he had Lyme, just the co-infection.

Thanks again for your reply and the information you provided.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35849
   Posted 6/10/2010 4:12 PM (GMT -6)   
Yes, you could have a co-infection without having contracted Lyme Disease itself. It's just that Lyme Disease is the one that got all the publicity, so all of the others are "considered" as co-infections.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


aries12
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/11/2010 7:25 AM (GMT -6)   
Ah...thank you. I also found a reference to Southern tick-rash illness on Wikipedia that might be a possibility since I live in North Florida.

Not too much is known about it, but the symptoms are less severe than Lyme.

I've had three CT scans and an MRI. No indication of any abnormal white matter.

Again, thanks for responding. Appreciate it. : )

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/11/2010 9:57 AM (GMT -6)   
Possible, yes. Likely? Depends on how many critters the bug that bit you was carrying and the status of your immune system at the time. Sometimes, one infection dominates and it is only after getting that infection under control that other co-infections surface and become more apparent. This may or may not apply to you, just pointing out the possibilities...

Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35849
   Posted 6/11/2010 10:53 AM (GMT -6)   
I was actually 1st dxed with STARI, known also as Masters' Disease, in order to receive treatment. I was a patient of the wonderful Dr. Masters for a year (I got too ill to travel). It was Dr. Masters that told me I had enough symptoms to safely assume I had not only LD, but all of the co-infections as well. It was because of this man that I made it through a brain infection from those "wonderful" little ticks (we really need a sarcasm button!!), without significant damage. I also had CT & MRI scans of my brain & told that there is no visible issues by regular docs who don't know what to look for anyway.

** I feel free to use his name, as he passed away a couple of years ago**

Although, as Razzle points out, it depends on low many critters the tick that bit you was carrying & the status of your immune system at the time. My immune system has been compromised for many years now with Chronic EBV & possible CFS (at least that's what they told me back in the early 80's when I was searching for answers). I am now looking into the XMRV virus as a culprit as well.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


aries12
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/11/2010 2:48 PM (GMT -6)   
Oh they found the EBV virus (old non-active they said) and Herpes and Chicken Pox virus as well. I think I've had at least 4 blood tests.

I went through a very good period in the late 90's (10 years after my camping trip to MO) where I was in quite good health. Went to the gym 6 days a week, so I'm not convinced it's a tick bite from that long ago.

And of course I don't recall any kind of a tick bite in February of 2008. It's really too cold for them at that time of year.

My immune system was at a low point though. I was in the last phase of a 2 1/2 year probate for my father's estate and it took a lot out of me. So, I finally finish with it and don't even get to enjoy not having to worry about it. Really...not fair. : )

Well, I still have the film for the MRI and the CD from the first CT Scan, so I'll mention it to my ARPN next time I see her. She could have her sponsoring Doctor take a look at it.

The neurologist is the one that said there wasn't anything wrong with my brain.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/11/2010 3:58 PM (GMT -6)   
Lyme can go into a sort of hibernation for years and years and then upon immune system challenge, re-assert itself again... I've heard that viruses like EBV/CMV can do this too...
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35849
   Posted 6/11/2010 6:14 PM (GMT -6)   
Razzle said...
Lyme can go into a sort of hibernation for years and years and then upon immune system challenge, re-assert itself again... I've heard that viruses like EBV/CMV can do this too...


I agree, Razzle.
This is why I am having such trouble trying to figure out what I may be dealing with at any given time.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 25, 2017 8:14 PM (GMT -6)
There are a total of 2,873,282 posts in 315,320 threads.
View Active Threads


Who's Online
This forum has 156808 registered members. Please welcome our newest member, sammyp.
459 Guest(s), 8 Registered Member(s) are currently online.  Details
19tarpon47, glutensugarfree, BabsBunny, SlappyHappy, Misalily, sebreg, owleyes, scar1919


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer