I'm back...and in a very unhappy situation

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nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/18/2010 11:50 AM (GMT -6)   
I'm sorry....I haven't been on HW for such a long time; I've just been sort of hibernating I guess. Sort of in a dark and quiet place where I didn't even want to answer emails. Am I depressed?

Anyway, the basic updates are that I've had a SPECT scan which was negative, so it won't help me in my fight with Anthem Blue Cross. I'm now on IV Rocephin; I just started it this week!

I'm trying to get Blue Cross to pay for my IV Rocephin. I did use that wonderful appeal letter you sent me, CajunGrl...thanks again!! The appeal process is still going on, and I don't know how it will come out.

Because of all of the financial strain we are losing our house. We have put it up for sale, but it's a short sale because we're upside-down on our mortgage. sad

This disease steals so much from us!! Just a few years ago I was Super Woman! I was working two jobs, I was energetic and (relatively) healthy, I was paying all of my bills on time. Now I've lost my part-time job and am on partial disability and only working 24 hours a week from home. I may be forced to go on full-time disability soon....there is a meeting about *me* scheduled for this coming Monday at 11am PDT to decide my fate! I'm scared and sad....

Sorry that I don't have too many good things to report! Well, starting IV Rocephin is a good thing, even if I do have to pay for it myself!! I am REALLY hoping that this does the trick adn starts making a difference with my neuro symptoms.

I hope all are doing well!!
(((((hugs))))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 6/18/2010 7:19 PM (GMT -6)   
Ugh unbelieveable. I really feel for you. I also used the appeal letter but lost the second appeal against BC/BS with a letter saying that in fact this woman does not have lyme disease. It sent me into a tizzy. Luckily, I had just made an apt. for a new LLMD and thank god. She told me not to expend my time and energy fighting the insurnace company as there were many other avenues to go, such as different orals, shots, etc. I am 6 wks into her treatment and feeling good. She did find I had another coinfection adn said it could be what is causing alot of symptoms. I am not done fighting the insurance company just taking a break to regain my momentum. I wish you all the luck in the world.

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 6/18/2010 7:50 PM (GMT -6)   
Hi JoAnn,

We're so glad that you have returned! Sorry to hear that you have been dealing with so much lately, it's tough enough just coping with this illness from day to day. Sending you hugs, prayers and moral support to help you and your family through this difficult time. Hopefully things will start falling in your favor soon. I had really good results with IV-Rocephin and believe that I might have been cured if my ID doctor would have agreed to extend the treatment beyond the 28 days. I have been on oral abx for about 3 months now and my new LLMD is encouraging me to return to
IV-Rocephin.

Think positive - there will be brighter days ahead.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 6/19/2010 4:23 AM (GMT -6)   
Hi JoAnn,
 
I'm so sorry all this is happening to you, the last thing you need is this extra stress.   Have you called a HOPE hotline number regarding your house, it's possible you may qualify for a lower mortgage rate so you won't have to sell your house no matter how many months you are behind.
 
Hang in there okay and keep us updated.
 
Hugs,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/19/2010 8:18 AM (GMT -6)   
Thanks springsjean, betterhealth, and Denise....I appreciate your inputs, prayers, and hugs!

Springsjean, that's terrible! Who sent the letter saying you didn't have Lyme? I would have gone ballistic! I'm glad you've found a new doctor that helping you!

Betterhealth, I'm glad to hear that the IV Rocephin helped you so much in just 4 weeks! I may not be able to afford it for very many weeks unless Blue Cross steps up. Good luck with your new doctor!

Thanks for the suggestion, Denise. Our situation is a little complicated, in that I really need to move to a cooler cloudier climate to help with my recent extreme sensitivity to heat and light. But the straw that broke the camel's back and sent us on this course was when our mortgage company sent us a letter announcing that our payment would go up by $650 per month starting in July! All because the previous mortgage company had miscalculated how much to put in the escrow account.... sad

Oh well....c'est la vie!

I will keep you updated on things, especially how the IV Rocephin is working!
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35754
   Posted 6/19/2010 10:05 AM (GMT -6)   
Oh my word, JoAnn!!!
What a mess! I am sooo very sorry for all that you have been going through!!!

I wish I had something to say that would help, but all I can do is send hugs, healing thoughts, & many prayers.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/20/2010 8:41 AM (GMT -6)   
Thanks Traveler....hugs and prayers are much appreciated! :)
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/20/2010 10:52 AM (GMT -6)   
nasalady,

Wow hun! I am so sorry for everything you are going through. Like you need all of this stress right now. I pray that it all works out for you. Maybe this climate change is what you needed all along. Feel better soon hun!
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/20/2010 6:14 PM (GMT -6)   
CajunGrl, thank you for the prayers.....I am hoping that the move will help!

(((((hugs)))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 6/21/2010 5:26 PM (GMT -6)   
Nasalady,
Good to hear from you again. I'm sorry things are in such a sad state and hope they get better. Sometimes I seriously wonder
about the health profession. If you need anything get in touch with me.
Godspeed
Nana Monster

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/21/2010 6:32 PM (GMT -6)   
Thank you Nana Monster, you're very kind!

I do think the health insurance industry is out of control; they shouldn't be allowed to deny medication prescribed by a doctor. In effect, they are saying that the doctor is wrong and that I don't need to be treated.....and they've never even MET me! How can they diagnose me like that??

I know that many many people here are in similar situations to mine...

((((((hugs))))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 6/21/2010 6:52 PM (GMT -6)   
Nasalady, I know this is a along shot but any chance you can get to a dr. that does muscle testing. I was doing well until I went on zithromax and then seemed to get worse fast. When my new dr. did muscle testing, she found zithromax was not for me. Believe me, I didn't believe in it either but with the new concoction helping so much, perhaps she's on to something.
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