Anybody Take Breaks From Antibiotics?

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Sassy1014
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Date Joined Jun 2010
Total Posts : 81
   Posted 6/23/2010 3:20 PM (GMT -6)   
I am on antibiotics for a year now.  I feel maybe 20% better than my initial symptoms last May.  My question is..has anybody just gone off the antibiotics for a few months?  While I seem to have no side effects from the mega doses of antibiotics, I know it's not the greatest thing for your body but neither is Lyme.  Thanks in advance!

IH8Ticks
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Date Joined Jan 2009
Total Posts : 296
   Posted 6/23/2010 4:40 PM (GMT -6)   
I was forced to stop taking the abx about a year and half ago. I was off for maybe a month to a month and a half. It was awful. My symptoms stayed the same for about two weeks, and then they hit me like a ton of bricks. It took months to get back to where I was before I stopped the abx.

I think that the more important question is why you are only 20% better at this stage. You should be a lot better by now. I don't know what you are taking, but maybe it's time to switch up your protocol. My infection has responded to some abx, but not others. I don't know why. It could that different people respond differently to different drugs, or it may be that there are different strains of the bacteria that respond to different drugs. Your LLMD should know what other options to try.

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 6/23/2010 4:59 PM (GMT -6)   
After being diagnosed with Lyme last summer, I was prescribed 3 months of antibiotics. I took a 5 month break after that and my symptoms gradually worsened month by month. I now see a LLMD and have been back on abx for about 3 months now. I actually feel much worse since starting high dose abx and would give anything to take a break however, my doctor has persuaded me to continue.

I'm not sure that I am willing to continue antibiotics beyond a year.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin, Ceftin.
 
 


Sassy1014
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Date Joined Jun 2010
Total Posts : 81
   Posted 6/23/2010 5:46 PM (GMT -6)   
Every 3 months I go on a different "round" of antibiotics. I do not want to get worst and I take it going off of ABX is not the best thing to do. So I will continue to down the drugs at this point. I gather patience is the key to fighting this horrific disease. Thanks for the responses.

Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 6/23/2010 8:32 PM (GMT -6)   
I was on abx for 26 months. At 1 year in I wasn't even 20% better, but I would take breaks, but only up to 3 days to give my stomach a rest. I knew I needed to be on them more than being off them. When I finally went off them I was 95% better and then I was well enough to get to 100% on my own.

I would stay on them if you can tolerate them. Taking a few days when you need them probably wouldn't hurt, but check with your dr. first. It just felt good too to take a couple days off when needed.

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 6/23/2010 9:41 PM (GMT -6)   
Sassy, I do not know the answers to your questions (even the Drs don't!) I can only share my own opinion/theory, which has not yet been tested.  And firstly, I believe every body is different.
 
Late summer of last year I took 3500 mg/day Amox for 60 days. (LLMD did not claim that would cure me, but I was not able to ever go back to him because  he did not accept insurance (or vice versa).
 
A lot of the pain improved while on Amox. But anxiety and depression were unbearable. (Amox can cause depression). I do not know if this was all a herx or if side effects of Amox.
 
After the 60 days on abx, I experienced a lot of improvement, along w/ the hope that my dose could have been high enough to cure me.
 
However, very slowly and very surely, the old, crappy symptoms started creeping up on me. I was able to deny some of it, but I now realize I am right back to where I was.  Well, some of my old symptoms are not as severe, but several of them are now more severe.
 
After being on a ID Dr's ( who is an LLMD) waiting list for over a year, I finally have an appt w/ him Tues, June 29.  He comes highly recommended, however, as an ID, I noted in his medical papers, he refers to 'Lyme Syndrome'. So I do not know what this will bring, tho I've chosen to have a lot of faith in him, until I have reason not to.  At least he IS researching this.
 
ANYWAY, IF he is a Dr who believes in putting patients on very long term abx, then I have decided to ask him about 'pulsing'. (Dr Burr has a paper on this).  Not exactly per Dr. Burr, but I'm thinking of asking to take a couple of months high dose abx, then take a break for about a month, then hit it again, and so forth, over and over.  Somehow this makes good sense to me.
 
Partly because I feel that long term abx (like 2 yrs) is not good. And partly because of what we know about this bacteria. So I"m thinking about something like a double whammy on those danged spiros for a couple of months, take a one month break, allowing them to come out of hiding, and then hit them again, and so forth, over and over.
 
And if this Dr is of the mind that it takes a couple of years of abx, I will especially be interested in following THIS pattern, as opposed to no breaks in abx for 2 yrs..
 
I also plan to ask him about LDN because of all that I have read, as well as other health issues I am concerned about.
So, anyway, I tend to agree w/ Jeminij, above, except that I might consider a longer break in between to give my immune system a chance to jump in there.
 
GOOD LUCK TO EVERYONE HERE! 
 
PS:  I neglected to add that I sure do not know about those of you who are not able to tolerate the abx.  But maybe this could help some?  The LLMD that I went to last summer, and to whom I could not afford to continue going, had mentioned that he might have me take 1 big shot of penicillin per week. For how long, I do not know. And he'd said he would teach me how to do it myself.
 
HIs reasoning here is that w/ an injection, there's no hardship on the stomach, etc.
 


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Post Edited (+Lyme) : 6/23/2010 9:46:34 PM (GMT-6)


Sassy1014
Regular Member


Date Joined Jun 2010
Total Posts : 81
   Posted 6/24/2010 6:34 AM (GMT -6)   
I would love to know what the doc said after your June 29th appointment regarding this. Do you mind posting afterwards? I would greatly appreciate it. I have had NO problems taking ABX. I have always had an iron system (thank God) so I will continue taking ABX if I have to go for years (unfortunately). I think maybe healthy eating (I have been a vegetarian for 17 years and eat very well) may help me. Thanks so much!

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/24/2010 8:04 AM (GMT -6)   
Sassy, I, myself will be very anxious to hear what he says and I will be sure to post. Thinking it may take longer than the 29th, as I'm thinking he will order whatever labs that day and who knows when I'll get results and then get back in to see him!

btw, I do not eat healthy at all -- can't even seem to. I do not eat any crap (hardly, anyway), but I do not eat what I should. My appetite has become very poor for the past few months. But still I keep putting on the weight (thyroid needs treatment)
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


Sassy1014
Regular Member


Date Joined Jun 2010
Total Posts : 81
   Posted 6/24/2010 10:21 AM (GMT -6)   
I feel for you.  Good luck on the 29th. I hope he/she has some good answers.  Thanks for updating us in advance.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 6/24/2010 4:39 PM (GMT -6)   
Hi Sassy and everyone else,
 
Goodness, do you really want to take antibiotics for years?   Years can cause so much damage to your body.   Are you detoxing at all?  If not, please read the sticky thread on top called "New to Lyme?  Start Here" as there are detoxing instructions in that thread.   I strongly believe that most symptoms are caused from toxins from the die-offs, not the lyme bacteria.
 
Good luck!
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


Sassy1014
Regular Member


Date Joined Jun 2010
Total Posts : 81
   Posted 6/24/2010 4:51 PM (GMT -6)   
Denise...You raised an interesting point and I did read New to Lyme.  I am going to start the detox baths.  I actually got Cellfood and started putting the drops in my water three times a day.  It's supposed to give you more O2.  I am sure hydrogen peroxide in my water is basically the same thing and a lot cheaper.  But my mother bought it for me so I am going with it!

spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 6/24/2010 5:11 PM (GMT -6)   
I was untreated for more than a decade prior to starting oral antibiotic combo's in 2008. Anytime I have been on an "antibiotic break/holiday" my health has slowly but surely taken a nosedive to the point that I am highly symptomatic, housebound, and sometimes bedridden.

At one point, I experienced about an estimated 30% reduction in symptoms; however, the symptoms that have remained are the most problematic ones which means my treatment since 2008 has not translated into increased functionality or the ability to work, even within my home environment.

For that reason and many others, I believe Lyme disease is the worst thing that has entered my life, and indeed it sucks. At least I have memories of being high-functioning, as well as an estimated addition 30 IQ points.

Sorry for being a Debbie Downer...
*Oral Abx Combo Tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '05; Essential Tremor ’02; Fibromyalgia ’00; Osteoarthritis; Depression; IBS; Interstitial Cystitis

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